Brilliant brilliant news David. Well done. Keep,up the good news

Love Jean x

Hi Vickie
Sorry to hear that things are no better. I know it can be difficult with some consultants, they seem to be "the all powerful" but they are human. So as you say be assertive Vickie, have a written list of questions so there is nothing left out. When we visit consultant I take a little recorder to record the consult, as I have the worse…[Read more]

Wendy I understand where you are coming from, there has been some bad news from our friends. But I agree it is very uplifting for people like me to read stories like yours and Eve's, it makes me feel like there is light at the end of the tunnel and not another blo*dy train coming. Thanks for sharing
Love Jean x

Hi Vicki

Are they trying again tomorrow? Oh I really hope that it works this time. It really makes me sick with this post code lottery. If someone needs medication it should not make a difference where the h*ll they live. I am like you Vickie I worry if I'm not worried. I questioned the SCT co ordinator if the Belfast trust funded prelixfor.…[Read more]

Thanks Lynn will follow your posts with interest. Will have everything crossed for Pete in October. Best wishes to you both
Love Jean x

Happy anniversary Wendy and thanks for the link. Frank hopes to start STC in new year. So will read with enthusiasm.
Love Jean x

Hi Vicki

I have not replied to your posts as we are not at your and Colin's stage yet and dont know that much about STC but I have been following posts very closely. I was devastated to hear that it failed. Vickie can Colin's consultant be able to tell you what plan c can be. you must be so worried and hopefully someone else will be able to…[Read more]

Hi Gill

6 years ago my husband had Zometa every month for 2 years. He has just started treatment and is back on Zometa. Hope you get it sorted out.

Jean x

Hi Jennifer

Welcome to the club no one wants to join. My husband has SMM for 6 years. MM diaganosed while looking for something else. Frank was monitored every 3 months and his PP rose to 34 ( I think). Lesions were found in his ribs but radio therapist decided radiotherapy not necessary but consultant decided that treatment was necessary so in…[Read more]

Hi All

Frank is due (all things going well) for SCTin the new year. I went to a meeting last week on SCT and to be truthful at the time I was sorry that I went. I felt i got more info from the forum and in a more encouraging way. The one thing I did get out of it was, there was a man who had a SCT 3 years ago and told us what it was like – it…[Read more]

Hi Amanda and Bob

I am sure you don't want to be here but your are both very welcome. Feel free to rant (it's great to get things off your chest) but you will get great support, help and advice. They are a great bunch of people here who you will meet over time. Take care and best wishes to you both
Jean

Dear Gill

My thoughts and prayers are with you and Stephen at this time. Gill, Dai, Eve and Tom have said it eloquently, I am not good at words, but I just wanted you to know that I am thinking about you. I have followed your and Stephns journey with this awful disease and you have been there for me and many others and we are here for you. You…[Read more]

Hi Mari

Hope all goes well with Sreve's SCT. I didn't know 2nd STC has to be funded. Keep well
Love Jean

Dear Eve

What fantastic news 🙂 . I'm so pleased. I admit to having tears in mye eyes reading it as Slim has had such a tough journey and to have this outcome is really brilliant. We seem to have been getting a lot of new members recently and I'm sure reading yourr post will be the best tonic for them. Eve have a brilliant time and a good…[Read more]

Dear Teresa

I can only imagine what you are going through and my heart goes out to you. The love of your life has gone but you have been left with lovely memories. My love and thoughts are with you and thank you for your post.

Love Jean x

Hi Megan and and welcome from me. Michele is right "a trouble shared is a trouble halved". This forum has been a God send to me. I have had help, support and above all friendship. My best wishes go to you Nd Phil – good luck

Love Jean x

Hi Andrea
Sorry you had to join us but you are in the best place. My husband was diaganosed 6 years ago with smouldering myeloma, he was being checked for something else. He just started CDT in June and has 3 more cycles to go before STC. Andrea I know its difficult not to worry (I'm the best at that) but we had a great 6 years, doing things that…[Read more]

Hi Tina
Hope you have a lovely break. And good luck for your next step. Kep well
Love Jean

Dear David

I'm so sorry to hear your news but if anyone can kick it into touch, you can. Hope treatment does the trick. VASBYTE

Much love
jean xx

Dear Gill

I am so sorry to read your post. You both have been in my thoughts and prayers. Stephen is having a terrible time and it must be so difficult for to watch him in so much pain. I hope that the Wizards magic kicks in soon and Stephen gets relieved of his pain soon. I am not good with words Gill, but please know that you both are in my…[Read more]