jmsmyth replied to the topic A little bit of good news! in the forum Off topic 12 years, 4 months ago
Congratulations Liz and Kev and what a lovely name. Grand children are a joy we have just had 2 of our grand daughters over from Kent. Hard to say goodbye to them
Enjoy them they are a blessing
Love Jean x
jmsmyth replied to the topic Wish Me Luck as I have in the forum Off topic 12 years, 4 months ago
Hey Tom that's brilliant. They still haven't had a male quarter millionaire hope you will be the first.
Good luck
Love Jean x
jmsmyth replied to the topic Smouldering myeloma in the forum Newcomers 12 years, 4 months ago
Hi Ronnie
My Husband smouldered for 6 years. He had pain in his ribs and complained for 18 months to consultant. Frank did tell her that it was muscular. She sent him for a skeletal and an MRI which showed up nothing. She was not concerned as his proteins were dropping. After nagging she sent him for CT scan which showed up 2 lesions on ribs.…[Read more]
jmsmyth replied to the topic Back to the dreaded D word in the forum Side-effects 12 years, 4 months ago
Hi Keith
Read your post abouth the Dex with interest. Frank started the first cycle of CDT last month. He was taking 20 x40 mg on the first day for 4 days. The withdrawal was not nice. He felt so peculiar. When we told consultant she decided this month to wean him off. He took 20,20, 20,20,5,4,3,2. Frank said that he is going to,tell her that…[Read more]
jmsmyth replied to the topic How long before I start to feel 'normal' in the forum Side-effects 12 years, 4 months ago
Hi Tina
Frank is on 2nd cycle Of CDT. He is worse on Mondays when he takes the Chemo and the Dex together. The Frank we know disappears and a short tempered Frank appears. I know what you mean About the burps he is plagued with them. We are now in the 12th day of 2nd cycle and we have a tired Frank back – with burps and all that it brings.…[Read more]
jmsmyth replied to the topic Hi Ho…. Hi Ho… It's off to work we go… in the forum General 12 years, 4 months ago
Hi Helen
Well done ! You had a productive day. I loved
the Bit "booked a holiday " where and when? Good on you!
Love Jean x
jmsmyth replied to the topic Time for a laugh in the forum Off topic 12 years, 4 months ago
Good one Min. Made me laugh but makes
Me think that someone has been in my house making notes!!!
Love Jean x
jmsmyth replied to the topic My Dad-cycle 2 in the forum General 12 years, 4 months ago
Good news on your dad Jen hope he goes from strength to strength. Hope boys start to feel better soon.
Take care
Jean x
jmsmyth replied to the topic Tickets for Wimblendom in the forum Off topic 12 years, 4 months ago
Eve so glad your daughter enjoyed Wimbledom and winning a trip to the Bahamas – fantastic. Well done her. When will she be going ? She deserves a good break
Live Jean x
jmsmyth replied to the topic Smouldering myeloma in the forum Newcomers 12 years, 4 months ago
Hi Beverley
Welcome to the forum. I'm sure you don't want to be here but they are a great bunch of peeople on here, you will get support, info and friendship. My hubby was diagnosed with smouldering myeloma 6 years ago and just started treatment last month. Come here and ask any questions, they are a very knowledgeable lot.
Regards Jean
jmsmyth replied to the topic Some good news in the forum General 12 years, 4 months ago
Wendy a brilliant photo and hair style. Well done you on the run
Jean x
jmsmyth replied to the topic Myeloma changed in the forum General 12 years, 4 months ago
Hi Jo
They said that the cells had been producing Pp for 6 years and then for the past 4 months the PP's were dropping and are now at 8. Consultant went on about rogue cells and made a comment about non-secretory but I got the info from the Myeloma nurse. Am doing research on it.
Will be thinking of you on Monday, good luck
Love Jean x
jmsmyth replied to the topic Tickets for Wimblendom in the forum Off topic 12 years, 4 months ago
That is great Eve she deserves it and I hope she has a brilliant time and that at the end she has something to go wild about!! Murray winning Wimbledom —- WHOW
Love jean x
jmsmyth replied to the topic Some good news in the forum General 12 years, 4 months ago
Read your good news on face book Wendy. Brilliant news. Long may it continue
Jean x
jmsmyth replied to the topic Myeloma changed in the forum General 12 years, 4 months ago
Ha ha. Thanks Eve. My son said he would give me a ream of paper and I can bring it into them. Should put me in credit for some time 😛 will ask for them next time
Jean x
jmsmyth replied to the topic Myeloma changed in the forum General 12 years, 4 months ago
Hi Eve
Thanks for that. A couple of months ago I asked for a print out and was told they were not allowed to print the results – saving paper!!! So i just make a note of them in Myeloma diary. They said bloods were ok haemaglobin 13.5. Said light chains had changed a bit. Now that I know a bit more I will be more demanding. I remember one of…[Read more]
jmsmyth started the topic Myeloma changed. in the forum General 12 years, 4 months ago
Hi
After consultation with registrar yesterday and conflicting responses to Franks protein dropping by itself (registrar saying it was good and consultant saying it was bad)I took the advice of Helen and phoned our Myeloma nurse. The long and short of it is that after 6 years, although very rare the myeloma has changed from secretory to…[Read more]
jmsmyth started the topic Right hand-left hand??. in the forum General 12 years, 4 months ago
Hi All
The mind boggles. I'm beginning to wonder if the right hand has any idea what the left hand is doing. At hospital this morning and saw registrar. He said there was good news the protein had dropped to 9. I told him that according to the consultant this was not good news as the protein had been steadily dropping over months before CDT…[Read more]
jmsmyth replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 12 years, 4 months ago
Dear Dai
What a lovely thought for Bridget. I never thought I would cry over someone I never 'met'. Bridget was an inspiration to me through her posts not just in answering queries that I had but her posts to other people. Her family must be so proud of her as she was a truly wonderful person. She will be missed. Rest in peace dear…[Read more]
jmsmyth replied to the topic Some good news in the forum General 12 years, 5 months ago
Hi Mavis
Great news. Hope you get a long long remission. Don't know about withdrawal from CDT as Frank is on the 2nd cycle of the first time.
Take care
God bless
Love Jean x