Nigel I know you are right but this is causing so much friction. I know if I keep going on at him he will not tell me anything about how he is feeling. He is so adamant that he knows his own body so I am having to put things on hold for 2 weeks and then have a long talk with consultant. He will hate that.

Min you are right about putting…[Read more]

Hi Min

Frank went to doctor and guess what – muscular. I asked him to ask dr for an xray but was told again (by Fran) that they only xray bones and not muscles. He is so looking forward to Spain. His appointment with consultant is 14 April so I will phone and ask for him to see consultant rather than registrar.

Min I bought that pack…[Read more]

Hi Jo

Thank you so much for your kind thoughts. He is going to see GP tomorrow but our GP knows nothing about Myeloma. I admit that I am so scared, I wish he would see consultant, or at least go for and xray, but it is in Gods hands now.

Glad you enjoyed Grand Canary. Frank was saying today that he would like to go to Maspolamas in…[Read more]

I also needed that John. Thanks
Jean x

You are so right Eve. Slim and Frank sounds like clones!!! Frank was a late baby ~(although has brother and sister) but his family doted on him and he always got his own way, and still expects to get his way. He really does not understand what is going on my head. I also think that his "on mindedness" (is there such a word) will help him with…[Read more]

Hi all
Thank you all for your responses. I can relate to points on all of your posts. Last week when Frank was in so much pain, I could not take any more and I told him that I was going to phone the Myeloma nurse or the doctor. He went ballistic. Kept on about it not being in his ribs and as you say Min ?I know my own body, and this is…[Read more]

Pain is no easier today. I have convinced myself that this sh**ty disease has kicked in. He is going to see doctor again on Tuesday but I want to phone consultant and he wont. We are supposed to be going to Spain on Friday and I dont want to go. Frank says that he is going. Why dont blo**dy men ever listen. Sorry to all you men out there -…[Read more]

Thank you all for your replies. I managed to persuade Frank to go and see doctor. The doctor said that it was a pulled muscle but I am not happy about it. I want him to contact the Myeloma nurse but he wont. He gets quite angry when I talk about it. It does not hurt when he is still but when he moves it is really painful. I askd if it was…[Read more]

Hi Amanda

I'm glad you got it sorted. I hope it is as helpful to you as it was for me.

Best wishes
Jean x

Hi Gill

I hope Sephen gets many many more years. I really admire your attitude to this bl**dy awful disease – I wish I could be more like you. Take care and may your God bless you.

Love Jean xx

Hi Amanda

Here in Belfast counselling is available, it was arranged through the Cancer Resource Center. I went to counselling when Frank was first diagnosed. I went for about 6 months and it really helped me. I had to go back again to see the counsellor iddle of last year afor about 2 months. Declan (the consellor was brilliant) and the…[Read more]

Hi Amanda

My welcome also to the site. The site and the lovlely people
on it has seen me through ddifficult times. My husband was diagnosed with Smoulderig Myeloma in September 2006. I really did not understand whY they did not start treatment right away. The only thing they give Frank was was Zometa for about 6 months. But he has great…[Read more]

Really beautiful Dai. You ae very talented.

Love Jean x

Hi Gill

When Frank was first dignosed we used MIA for travel insurance. He is not on any treatment and has only had Zometa. Last time we were going we contacted MIA again and tey refused to insure him. They said that they had changed their policy. They were not very forth coming. W were told about Columbus insurance and we got a gret deal…[Read more]

Brilliant Min. Enjoy every minute. After a while you will wonder how on earth you fitted work in!!!

Love Jean xx

Hi Min

I have been away a few days and just caching up. I laughed so much that Frank came running in to see if something was wrong with me!!! I was choking with laughter. Thank you so much. I needed it.

Love Jean

Min you got me as well!!!! I was trying to figure out where you would get potatoe bags!
Jean

Hi David

I feel so disillusioned!!! I thought I was great doing my Wee Fit!!

REgards Jean

Hi Bridget

I am so sorry to read that you are having such a rough time. The only thing I know about Dex is what I read here – and it seems to be really unpleasant. Your family and friends know the real you, so will understand that it is the "dreaded Dex". You listen to all our rants, so carry on as much as you like.

Hope you start to…[Read more]