jmsmyth replied to the topic Hi in the forum Newcomers 10 years, 11 months ago
Hi Frances
My husband had STC IN March this year and turnd 70 in April. Consultant told us that they don’t usually do SCT at 70 but she said that Frank was fit and healthy (!!!!!). He had heart and lung tests and all was ok. I think it depends on your fitness. There are quiet a few people on the forum who decided against SCT and are doing ok. I…[Read more]
jmsmyth replied to the topic A year on from SCT! in the forum Treatment 10 years, 11 months ago
Hi Vicki
Frank is a bit like Colin. Last week he was up and down. Every day was different. One day he cleaned all the windows inside with no problem. Next day he was knackered. This week he’s been great. Two nights in a row we have been out for dinner with friends and tonight with family and on both nights we went to the theatre !!!! He’s…[Read more]
jmsmyth replied to the topic Dad's been diagnosed in the forum Newcomers 10 years, 11 months ago
My husband is 70 and had SCT March and is coming along. His consultant made his day when she toOld him he looked like he was mid 50’s lol
Hope things improve
Jean x
jmsmyth replied to the topic A year on from SCT! in the forum Treatment 10 years, 11 months ago
Hi Chris
Glad that things are going good for you. Frank had SCT In March and like you he’s going through th re-vacation. He’s had second lot and brought a lot of material to read about the vacations. We did laugh as all the points started “if your child shows ..,,..” He’s 70 so we don’t know what a 70 year old would experience!!!!!!
Hope…[Read more]
jmsmyth replied to the topic survival in the forum General 10 years, 11 months ago
Hi Maureen
I have been taking Manuku honey for about 5 years and haven’t had as much as a cold. Hope I Hevesy spoke too soon. Frank won’t take it as he says it’s too sweet. Hope Ian is improving
Jean
jmsmyth replied to the topic Newly diagnosed with smouldering myeloma in the forum Newcomers 10 years, 11 months ago
Hi Luciano
Sorry you have been diagnosed with smouldering MM. My husband was diagnosed with smouldering in 2006. He had STC In March this year. He is improving a little every day and in September we went on a 16 day cruise round the Med. When he was smouldering we made the best of things and went travelling quite a lot. When Frank was…[Read more]
jmsmyth replied to the topic Our Dai. in the forum General 10 years, 11 months ago
Thanks Andy for passing on the post. I too was emembering Dai yesterday and thinking Bout his family. He kept popping into my head the oddest of times. His sister Angie posted a link to song on Facebook that was composed by a friend of Dai. If you get a chance listen to,it it is beautiful. He will be sorely missed but his memory and spirit will…[Read more]
jmsmyth replied to the topic Heart lung checks before collection or SCT? in the forum Treatment 10 years, 11 months ago
Hi Carol
I can only tell you Franks experience. SCT was decided but before he was given date for procedure he had to go through quite a lot of tests and heart and lungs were two of them. Has your consultant not mentioned it. Maybe on younger people they don’t carry out the tests. Mind be worthwhile to mention to consultant. Hope all goes…[Read more]
jmsmyth replied to the topic Test results, wrong, right, right wrong! in the forum General 11 years, 6 months ago
Hi Wendy
I read your blogg and you have had a terrible experience. I remember feeling elated when I read that a mistake had been made in your test and cannot believe that such a terrible mistake could be bade. I hope that that your next appointment brings better positive news.
Hope your mums wrist is ok
Best wishes Jean
jmsmyth replied to the topic Dr Brian Durie discusses diet for people with Myeloma in the forum General 11 years, 6 months ago
Thanks Tom I appreciate that. Will order paperback
Jean
jmsmyth replied to the topic Dr Brian Durie discusses diet for people with Myeloma in the forum General 11 years, 6 months ago
Hi Tom
I had listened to an article on diet on radio 4 by a presenter who has MM and they talked about Mediterranean diets (Wendy posted link on Facebook ). So when i read your post i was very interested so I went on to Amazon to order the kindle version of it and this was the message that popped up
This book is currently unavailable…[Read more]
jmsmyth started the topic Novel MM drugs. in the forum Treatment 11 years, 6 months ago
Hi all
I found this very interesting so I wanted to share a link to audio and video programs produced by Patient Power with leading medical experts and inspiring patients.
Novel Myeloma Drugs Revolutionize Treatment Options – http://www.patientpower.info/video/novel-myeloma-drugs-revolutionize-treatment-options
Best wishes
Jean
jmsmyth replied to the topic Smelling the bluebells in the forum Off topic 11 years, 6 months ago
Hi Eve:-/
Fed up cleaning :-/ but it has to be done. I read on face book about your new motor home – good health wished on you both to enjoy (don't know if that's an English thing but we say it here when you get something new). I hope that you get good news on tomorrow and that you can get back on the road again theres a song with that title…[Read more]
jmsmyth replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 6 months ago
Hi Helen
You are having a bad time 🙁 . I hope things start to improve soon and you get back to your old self soon. Re the day clinic; we went yesterday and Frank has started Zometa again. Normally when we go in, bloods are taken, wait begins, we see consultant and then sent to wait for a chair to become available for the infusion. This as…[Read more]
jmsmyth replied to the topic Smelling the bluebells in the forum Off topic 11 years, 6 months ago
David what a lovely photo 🙂
Love Jean x
jmsmyth replied to the topic Date for SCT in the forum Treatment 11 years, 6 months ago
Just want to add my best wishes Geoff take it one day at aime
Love Jean x
jmsmyth replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Karen
Welcome to the forum – I know you would rather not be here but we are all a very friendly bunch. My hubby has MM and I don't know what I would have done without my 'cyber friends'. Great place to get support, share info, get advice and also if you want to rant this is the place to be :-),
Love Jean
jmsmyth replied to the topic Three steps back and thumbs up? in the forum Treatment 11 years, 6 months ago
Hi Dai that's great for you and am sure Janet is delighted. And an extra bonus you can do visits – great 🙂 Hope all goes well
Helen good luck with the treatment. Will be thinking of you
Love Jean xx
jmsmyth replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
Andy that was so lovely written. You were able to write things that I would not be able to put in writing. Thank you for that. Andy I think you would a great representative for Keith's cyber friends at this most sad time. My thoughts and love will be with Sue and family and you and all his friends.
Love Jean xx
jmsmyth replied to the topic Question…..maintenance treatment in the forum General 11 years, 6 months ago
Hi Peter I have PM you for info
Love Jean x