jmsmyth replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
Dear Sue
My prayers and thoughts are with you and your family at this very sad time. I never met Keith but I followed his journey for some time. He gave us all support and comfort and his knowledge of the awful disease, even whie going through such a hard time himself. May your memories and family give you strength through this very sad…[Read more]
jmsmyth replied to the topic Long haul travel in the forum General 11 years, 7 months ago
Hi Liz
Hope you have a brilliant time – bit green with envy 🙂 frank is 7 weeks post SCT and Frank is also looking forward to a nice holiday. He smouldered for nearly 7 years so we travelled a lot. I am a bit paranoid. We use Quinessence Synergy. We have been using it for years. Before we board flight put a few drops on hanky and just stiff…[Read more]
jmsmyth replied to the topic ANOTHER SCT JOURNEY ABOUT TO START in the forum General 11 years, 7 months ago
Good luck Scott. Hope you get a long remission
Jean x
jmsmyth replied to the topic 70 Today in the forum Off topic 11 years, 7 months ago
Thanks Helen for the good wishes. I tried to get tipsy but with the whole family together – frank and 2 sons United supporters and 2 Liverpool supporters – lets just say it was not a quiet day :-D. I'm really surprised how well Frank is getting on. He said last night he was doing to look at flights for Malaga but I sort of side tracked it.…[Read more]
jmsmyth replied to the topic 70 Today in the forum Off topic 11 years, 7 months ago
Frank thanks you all for your good wishes. Don't know whether its a good thing or not but he is slightly tipsy at the moment 🙂 He did enjoy himself and that s the main thing. We had to leave the restaurant a little early – have you guessed – yup United were playing but he continued partying even after the draw.
Thank you all again
Love…
jmsmyth started the topic 70 Today. in the forum Off topic 11 years, 7 months ago
Hi all NOT ME 😛 frank is 70 today – I'm his toy girl you understand :-S No arrangements to celebrate were made as we did not know how he would be feelIng. So glad to say that he he is feeling so much better and our local restaurant were able to accommodate 13 of us at the very last minute for a birthday lunch. His bloods have improved and he…[Read more]
jmsmyth replied to the topic On Tour in the forum Off topic 11 years, 7 months ago
From me to David – have a good one
Jean x
jmsmyth replied to the topic Date for SCT in the forum Treatment 11 years, 7 months ago
Best of luck Geoff. It will be woth it. Frank gets a little better every day. Jacquie have a good trip and a wonderful time. I know you will be torn between two places but I agree with Geoff
Love Jean
jmsmyth replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Helen
So sorry that it is a relapse and not a blip. Weird thata you feel so good. Maybe that's an omen that you will,have lots of energy for the next round 😛 you have such a positive attitude, I have everything crossed for you
Love Jean x
jmsmyth replied to the topic Keith Hindmarch in the forum General 11 years, 7 months ago
Thanks Ellen for passing on Sues message. My thoughts are with Keith and Sue I too remember Keith's postings from the old site. He was a great support to many. My love and prayers are with them both
Love Jean
jmsmyth replied to the topic Stem Cell Transplant- Low Potassium? in the forum Treatment 11 years, 7 months ago
Hi Nikki
Frank was in the same boat. All his bloods were dood except for potassium. The kept him in an extra 3 days on a drip.potassium started to rise and they said he could go home. Frank asked was it his own body or the potassium drip that was responsible for the increase. They said it was a good point and kept him in another day. They gave…[Read more]
jmsmyth replied to the topic Wife's life on hold? in the forum General 11 years, 7 months ago
Hi Terry
My husband has had MM for nearly 7 years. He has just had his SCT. I couldn't care less if I never have another holiday in my life. As long as I have Frank I will be happy. I do not know your wife but I am certain that she "is not waiting around until the end before she can move on with her life". As Andy says – every days a gift.…[Read more]
jmsmyth replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Vicki
Frank is doing ok – I think :-S He is getting his appetite back. Eating small amounts but few times a day. He has had a G& T, Guiness atnd beer. Hasn't got the taste for wine back and vegetables, he won't touch them. Doesn't appear to be putting on any weigh. Going tomorrow to see consultant
How is Colin now?
Best to you…[Read more]
jmsmyth replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Helen
More more ups than downs pleaseA :-D. Hey why did they take your spot of you damn cheek !! Hope all comes right
love Jean x
jmsmyth replied to the topic After Stem Cell in the forum General 11 years, 7 months ago
Hi Mary
What Tom says is right. The cleaner the better. Frank came home after SCT 2 weeks ago. He did try to climb stairs as soon as he got in but didn't make it. Couple of hours later he did. Now it is his daily exercise – climbing the stairs. I would add to vet all visitors. Mind you I only allow the family and no one else. They know that if…[Read more]
jmsmyth replied to the topic Treatment has started in the forum Treatment 11 years, 7 months ago
Hello Jean
I know it's hard when your loved one has to start treatment. My hubby had no treatment for 6 1/2 years. He then had pain in his side which turned out to be small lesion on ribs. Radio therapist not concerned about it and did no treatment. Then some months after the consultant said it was time to start treatment. I know it is scary…[Read more]
jmsmyth replied to the topic Anti Biotics in the forum General 11 years, 7 months ago
Aw Tom wondered why you were so quiet on Face book :-S . I do hope you are back to your normal self soon. Think of your poor club – like Franks local – there profits have dropped dramatically 😀 Joking Tom!!! Get well soon
Love Jean x
jmsmyth replied to the topic Update on 21/2 years in the forum General 11 years, 7 months ago
Eve
Glad to hear that Slim has no more lesions. You just seem to be banging your head against a brick wall. Can Ellen or Maggie give you any advice. Franks consultant said that the PET scan was needed to detect how active if at all the Myeloma is. There is no proteins in the blood and as they had been dropping for some months before treatment…[Read more]
jmsmyth replied to the topic From Harvest to Transplant in the forum Treatment 11 years, 7 months ago
Hi Jacquie
No – no more chemo. His PPs were 1 when transplant happened. But i know others have had much higher PP when transplant took place. He has been home now over a week and every day there is a slight improvement. No good me telling you not to worry as you will, just as I did. What is the delay? Frank goes to Belfast City Hospital in…[Read more]
jmsmyth replied to the topic Passports? in the forum General 11 years, 7 months ago
Hi Helen as the boys say he must be feeling better as he is complaining 😀 appetite is improving every day. Still not eating a lot but getting there. He had a beer and a whiskey tonight – one thing about Frank – he gets his priorities right. His daily exercise is climbing the stairs a few times a day. When he first came out he couldn't manage…[Read more]