Hello Jacquie

Frank was harvested in December and transplanted end of February. I was also worried I case he relapsed- proteins going up but consultant did not seem to concerned. Maybe someone else on forum can give you more insight into it. I hope Geoff has an easy time with it

Best wishes
Jean

That's right Helen 6 months for USA

Jean x

Hi Eve

Don't understand why hospitals all differ. Franks consultant is organising a PET scan for him. As she said no myeloma showed up in blood and as his PPs were falling before treatment started it is the ONLY way to find if the myeloma is active and to what extent. Eve you fight Slims corner with all your strength – keep nagging until they…[Read more]

Hey Jo Jo

Glad you are out of hosptall and on the mend. Hope all goes well with next cycle

Cyber hugs (as Tom so nicely puts it)
Love Jean xx

Hi Pete and all

Well done Pete 9 years brilliant 🙂 long long may it continue.

We are just back from consultant once again she was ahoy with Franks bloods. But after the news of the other day "NI indication of myeloma in blood" started to bug me. As I said in previous post Franks protein had been dropping long before treatment started. So…[Read more]

Hi Ella

My advice is to bring appointment forward. My hubby Frank smouldered for 6 and 1/2 years. Then he had a pain in his left side. Tried to coax everyone Including himself that he had pulled a muscle. Consultant sent him for an MRI which showed up a small lesion on ribs. When he saw radio therapist she said it was so small she wouldn't do…[Read more]

Hi Andy

I am so pleased for you and Steph. I am sure you are over the moon. Enjoy your drinks you deserve them, it's about time you had good news 🙂

Love Jean x

Gill that is a really lovely photo 🙂 . I'm sure it brought back wonderful memories.

Love Jean xx

Ann that's great about Pete going back to work I'm sure you are both delighted that he has come so far in such a few weeks. Well done Pete 🙂 . Frank also has no energy, he is eating a little and had a choc ice cream this afternoon. He also had a Guiness last night and is having another one tonight. He had a sip of my wine and he liked it but…[Read more]

Hi Vikki and Colin

Don't apologise Vikki I know exactly how you are feeling. :-S congratulations on your promotion well done you. I don't want to sound selfish but three years ago I had the chance of taking early retirement and after talking it over with Frank I did. Don't get me wrong I wouldn't change it but I sometimes wish that I had…[Read more]

Hi Helen

Mind running riot. As Franks PPs were dropping long before CDT consultant suspected non secretory. Nothing was done to find out but Ellen had said it would be very unusual to change after 6 years. As far as I know a BMB is the way to find out if there is any progression of the MM. seeing her on Thursday so will ask then

I have…[Read more]

Hi Wendy

Loved your blog on your trip to India. You really had a blast 🙂 You are very determined lady and long may your adventures continue

Jean

Hi Vikki and Colin

Frank got home on Tuesday – 2 and a half stone lighter with no energy and very tired. I told him this was what he had to expect. We were at consultant and she said with the exceptions od the neutrophils his bloods were good. He has started to eat small bits of food – and I mean minute but at least it is come thing. And guess…[Read more]

Hi David

Just want to add my good wishes to you on your journey with Velcade. I hope it's good to you

Love Jean x

Hi Richard

Things like that happen here in Norther Ireland. Frank went in on A Thursday and the chemo was to start then and stem transplant on Friday. We were told lies (contradictory explanations) but said chemo would be late and that would mean the transplant would be late on Friday and they couldn't do it as there would be no consultant or…[Read more]

Thank you all for your responses

Unfortunately frank has little energy so for the moment I won't suggest he makes me some cheese on toast but I will when his energy improves 🙂 .He is still eating very little but he is eating!!

David I have Dettol all over the house and hand sanitizer sits by the front door. No one gets into the room till…[Read more]

Hi all

Frank went to hospital to the clinic. After 3 hour wait we saw consultant who was furious. I have never seem her so angry. She said she left instructions that Frank was not to come to clinic until Monday. She said had she have known that he was coming she would have ensured he would have been sent to day unit, bloods taken and she…[Read more]

Dear Mega, Dai and Eve

Thanks for your replies. I have Re read other post and what is going on in my tummy seems to be the norm:-S. Dai Frank managed to get up the stairs – mind you it took him some time – and I pretended to be busy in another room. He wanted to do it on his own and didn't want me to see him struggle. He said last night he…[Read more]