jmsmyth replied to the topic Gill and Stephen Nash in the forum Carers 7 years, 11 months ago
Donna I was shocked and saddened to read about your mum Gill. She was truly a lovely, sympathetic women who was alway supportive. I Loved to read about trips to France and the dogs. I always remember Gill replying to a post on advice for travel advice and she answered “Stephen says he’s not going to wake up in the morning with an acute case of…[Read more]
jmsmyth replied to the topic The 5th anniversary in the forum General 8 years, 6 months ago
Hi Helen
I’m very rarely on the forum these days. Just popped in and saw your post. So glad to read that you are doing well. Have you been able to get away anywhere. Hope you go from strength to strength
Mavis glad to read your remission is still strong. Frank is on pregablin for the aftermath pain of shingles. He’s been on them over 2 years but…[Read more]
jmsmyth replied to the topic hemoglobin in the forum Smouldering myeloma / MGUS 8 years, 7 months ago
Hope it does work for you Ted. Keep us informed
Jean x
jmsmyth replied to the topic hemoglobin in the forum Smouldering myeloma / MGUS 8 years, 7 months ago
Hi Ted
I don’t know about adults but one of my sons, when a baby, had one chest infection after another. Things where really bad – they test d him for cystic fibrosis (thank God – negative). They suggested hemaglobin injections. He had them and it was great for him. My hubby is 3 year remission and recently he has had quite a few chest…[Read more]
jmsmyth replied to the topic Medical insurance in the forum Off topic 8 years, 8 months ago
Lorraine
Are you on FB. I asked and got replys – you can do a search for UK Myeloma Support Group on Face Book. Michelle posted “What problems is she having Jean? I’ve accepted all the joining requests over the past few days?” Someone else suggested that you ask Ellen Watters who is in Myekoma UK. If you still can’t get on let me know. It is an…[Read more]
jmsmyth replied to the topic Medical insurance in the forum Off topic 8 years, 8 months ago
Hi Jane
Sorry if I’ve mislead you. Frank smouldered for nearly 7 years and proteins where rising – very slowly – consultant decided to do SCT. In retrospect we think she did it a bit quickly because of his age. In Northern Ireland cutoff for SCT is 70. She started him on CDT. Chemo, Dexter and thalidomide. How long has hubby been smouldering? Is…[Read more]
jmsmyth replied to the topic Medical insurance in the forum Off topic 8 years, 8 months ago
My husband diaganosed with Smouldering Myeloma in 2006. Had SCT IN March 2013. We have BUPA and when diaganosed he spoke to his consultant about going private. She was not in favour of it and he went NHS. They have been brilliant. When he needs scans etc he gets them quite quickly. Couldn’t fault NHS
Jean
jmsmyth replied to the topic Hello All in the forum General 8 years, 8 months ago
Hi Vicki what a lovely surprise. I’m rarely on forum as I’m on the Facebook forum. Pop in occasionally. How are you doing. Really lovely to hear from you. The say Frank is still in remission but he has now developed diverticulitis which is painful. Seeing consultant 25 February and after all this time I’ve a list of questions Vicki I hope you are…[Read more]
jmsmyth replied to the topic Hello All in the forum General 8 years, 8 months ago
Hi Vicki what a lovely surprise. I’m rarely on forum as I’m on the Facebook forum. Pop in occasionally. How are you doing. Really lovely to hear from you. The say Frank is still in remission but he has now developed diverticulitis which is painful. Seeing consultant 25 February and after all this time I’ve a list of questions. Months before…[Read more]
jmsmyth replied to the topic Hello All in the forum General 8 years, 8 months ago
Hi Vicki what a lovely surprise. I’m rarely on forum as I’m on the Facebook forum. Pop in occasionally. How are you doing. Really lovely to hear from you. The say Frank is still in remission but he has now developed diverticulitis which is painful. Seeing consultant 25 February and after all this time I’ve a list of questions. Months before…[Read more]
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jmsmyth replied to the topic Holiday or not? in the forum General 8 years, 9 months ago
Hi annlynn. Going to playa blanca to Volcan. You?
jmsmyth replied to the topic Holiday or not? in the forum General 8 years, 9 months ago
Mag my hubby was diaganosed in 2006 with smouldering myeloma. Had SCT in March 2013 – thank God in remission. The only time we stopped holidaying was during SCT and for 3 months after. We have cruised and holidayed in Europe. We have a yearly policy with All Clear. Only place haven’t been back to is America as insurance is too high. We are also…[Read more]
jmsmyth replied to the topic Re: Just joined today dgx with a paraprotein pls help! in the forum Under 50s 8 years, 11 months ago
Hi Pav
Don’t know if I will be of any help. Myeloma is a very I dividuL disease. My husband, like yourself, a routine blood blood test and something showed up and doctor sent him to haematologist. They did a bone marrow test and told him that it showed myeloma but he was smouldering. That was in 2006 and up until 2013 he was still not showing…[Read more]
jmsmyth replied to the topic Has anyone else's life been lost through having a SCT? in the forum End of Life and Grief 8 years, 12 months ago
Laura I’m truly devastated to read your post. The risks were explained to us before my husband had SCT but to be honest I don’t think they registered with me. Although my husband has been in remission for over two years, he said he would never do it again. I’m truly sorry for your loss
Jean xx
jmsmyth replied to the topic 3 years in the forum End of Life and Grief 9 years, 1 month ago
Hi Gill
So lovely to hear from you. It is hard to believe it’s been 3 years since Stephen died. I always read your posts and especially about France. One thing has stayed in my memory – the thread was travel insurance – and part of your post was ……. And Stephen said “I’m not going to wake up in the morning with a severe case of Myeloma ”
jmsmyth replied to the topic Mum starts SCT….. your thoughts please in the forum Newcomers 9 years, 1 month ago
Hi Roseanna
I think it depends on the hospital. When my hubby was in for SCt, for about 1 week I was the only one allowed to visit him. Before I went into his room I had to go into an anti room and put on a gown and gloves. Every time I left his room I had to go through the same thing. He didn’t and at times couldn’t eat, so,I brought in his…[Read more]