JeanSmyth

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Viewing 15 posts - 196 through 210 (of 1,025 total)
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  • #102805

    jmsmyth
    Participant

    Dai what fantastic news. Keep it up 🙂
    Love Jean x

    #95065

    jmsmyth
    Participant

    Pat she's a wee beaut 🙂 . Any idea of visit yet?
    Love Jean x

    #95062

    jmsmyth
    Participant

    Hi Helen really great news – keep it up !!! 🙂

    Pat good for you keep smiling. How's wee Beatrix

    Love Jean x

    #87715

    jmsmyth
    Participant

    Hi Fi

    Welcome to the forum. We are a friendly bunch and you wil get a lot of support. I hope your dad recovers quickly from the SCT and gets home quickly

    My husband had his SCT 3 months ago and goes tomorrow for 100 day assessment. Fi I can only tell you what I did. The most important thing I think is to vet any visitor. We only allowed family to visit for the first 6 weeks (think that's what it was). They knew they were not to come anywhere near their dad if they as much as had a sniffle. Hand sanitizer was left at the door and they used it before seeing their dad. All surfaces In the house house were wiped down twice a day and after visitors (I was a bit paranoid). I asked the consultant if Frank could take anything to help build neutrophils and she said no. She said that his diet should be that of a pregnant women – no patty, soft cheese , no takeaways until the neutrophils rose. Frank also continued to use the mouth wash for some time after leaving hospital. It did take him some time to get appetite back and was very weak for some time. (Mind you he was a bit quicker in having a whiskey 🙂

    There will be other people coming along and giving you their tips. Hope your dad has a smooth recovery

    Love Jean x

    #105302

    jmsmyth
    Participant

    Hi Lizzy

    Welcome to the forum. I'm so sorry that your sister is having a bad time. When my hubby had his first Chemo he had different and weird side effect but nothing like that. I'm sure someone will come along who will be able to help

    Best wishes Jean

    #95437

    jmsmyth
    Participant

    Dear Tom

    Swear as much as you like !! What a terrible thing. Franks Melphalan took 4 days to come up and we thought that was bad but what's happened to to you is awful. As Helen if you want, keep swearing if it relieves some of the tension. When will it start over
    Love Jean xx

    #102780

    jmsmyth
    Participant

    Hi Jacquie

    That was quick. Well done Geoff. Hope it wasn't too bad and that he gets up and running soon

    Best wishes
    Love Jean x

    #105297

    jmsmyth
    Participant

    Hi Anthony (tony)

    Frank was on CTD for 6 months he had various side affects but once he said "it's lke an alien has taken over my body and I have no control". It was rough but h came through it and SCT and yesterday was his 100 day post SCT. I know its tough ut it's "do able". It will get better Hope it eases up and it's soon and a past memory
    Love Jean x

    #102776

    jmsmyth
    Participant

    Dai what a terrible experience. Sounds like something out of a Stephen Kings novel 🙁 .glad it ended. Your bloods look good – hope that its not a blip and they continue to improve. Franks platelets have dropped last three visits to consultant 😐 . Sounds like you had a wee angel in the doctor. I hate seeing a different registrar every visit and having to go over the story every time. Take care Dai and hope things improve. Best wishes to Janet
    Love Mean x

    #95412

    jmsmyth
    Participant

    Well done Tom Jnr hope the next stage goes well and you and take Tom Snr (??) advice, use the mouth wash like there's going to be a famine:-) when Frank was going through SCT, Toms words would be in my head and every time he got out of bed I was handing him the wash. It worked not one bit of trouble.
    Best wishes Tom

    Scott hope all goes well for you
    Love Jen x

    #110819

    jmsmyth
    Participant

    Hi Tom as I said on FB they don't know what they:-) have missed. Yea take Sandra's advice go for the chase
    Love Jean x

    #102724

    jmsmyth
    Participant

    Great Karen. Love news like this and hope the radiologists have good news on the MRI

    Best wishes
    Love Jean x

    #102693

    jmsmyth
    Participant

    Tom and Michelle that is what we all love to hear – shows that it can be down. Well done to you both and loooooong may to continue
    Love Jean x

    #95354

    jmsmyth
    Participant

    Dear Mari

    So sorry that Steve is having a rough time and hope that the new treatment does its job. Frank is like Colin – if he is having a whiskey he's feeling not too bad. ????Weird way to find out how he's feeling!! My very best to you both
    Live Jean x

    #95362

    jmsmyth
    Participant

    Hi Pauline and Marc

    Very good advice from all above. You have every right to know what the results are. I asked MMUK for one of their diaries. To me they are invaluable. It is decided into sections e.g questions to ask, appointments, proper ranges of bloods and a section where you record the results. Mari is right Pauline you have to me fore forceful – in a nice way. When we first started seeing consultant she talked to Frank and ignored me. I told her that I needed to know blood results and now I go I. Armed with my diary and after she has spoken to Frank she tells me all the results and asks me if I have questions for her. Stick to your guns Pauline

    Best wishes
    Jean
    Ps if you want a diary just give them a ring

Viewing 15 posts - 196 through 210 (of 1,025 total)