[jmsmythParticipant]

Wendy I understand where you are coming from, there has been some bad news from our friends. But I agree it is very uplifting for people like me to read stories like yours and Eve's, it makes me feel like there is light at the end of the tunnel and not another blo*dy train coming. Thanks for sharing
Love Jean x

[jmsmythParticipant]

Hi Vicki

Are they trying again tomorrow? Oh I really hope that it works this time. It really makes me sick with this post code lottery. If someone needs medication it should not make a difference where the h*ll they live. I am like you Vickie I worry if I'm not worried. I questioned the SCT co ordinator if the Belfast trust funded prelixfor. She told me that so far they had funded 6. She did not expand but I got the impression the funding had to be applied for. Something else for me to worry about. You are right about Ellen, I torture the poor women, she must have the patience of a saint. And as you say she is so quick,in getting back – I thinks she realises how uptight we all are.

Glad you and Colin got out for a little bit tonight and you will both be in my thoughts and prayers tonight that tomorrow will bring you a much better result. Think it will be the first time I will ask for someone to have pain 😀
Love Jean

[jmsmythParticipant]

Thanks Lynn will follow your posts with interest. Will have everything crossed for Pete in October. Best wishes to you both
Love Jean x

[jmsmythParticipant]

Happy anniversary Wendy and thanks for the link. Frank hopes to start STC in new year. So will read with enthusiasm.
Love Jean x

[jmsmythParticipant]

Hi Vicki

I have not replied to your posts as we are not at your and Colin's stage yet and dont know that much about STC but I have been following posts very closely. I was devastated to hear that it failed. Vickie can Colin's consultant be able to tell you what plan c can be. you must be so worried and hopefully someone else will be able to help with advice. My thoughts are with you both
Love Jean x

[jmsmythParticipant]

Hi Gill

6 years ago my husband had Zometa every month for 2 years. He has just started treatment and is back on Zometa. Hope you get it sorted out.

Jean x

[jmsmythParticipant]

Hi Jennifer

Welcome to the club no one wants to join. My husband has SMM for 6 years. MM diaganosed while looking for something else. Frank was monitored every 3 months and his PP rose to 34 ( I think). Lesions were found in his ribs but radio therapist decided radiotherapy not necessary but consultant decided that treatment was necessary so in June he started CDT and hopes to have SCT in new year. LANs consultant will keep a close eye on him our consultant told us that they take other thi gs into account besides PpP – kidney function, light chains etc. If you do a search for Ted, he has had SMM for, if I remember near,u 7 years and is still doing well. If he sees your post I'm sure you will get I of from him.

I won't tell you not to worry, because you will, but please use the forum for help advice and friendship, the are a great bunch of people who will help you and Alan through your journey.

Let us know how thi gs go and best wishes
Jean

[jmsmythParticipant]

Hi All

Frank is due (all things going well) for SCTin the new year. I went to a meeting last week on SCT and to be truthful at the time I was sorry that I went. I felt i got more info from the forum and in a more encouraging way. The one thing I did get out of it was, there was a man who had a SCT 3 years ago and told us what it was like – it scared the life out of me but he must have seen the look on my face as he looked directly at me and said " you want to ask me was it worth it and would I puit myself through it again – IN A HEARTBEAT ". I spoke to him afterwards and he reassured me that although it was tough it was worth it.

My very best wishes to,you all
Love Jean x

[jmsmythParticipant]

Hi Amanda and Bob

I am sure you don't want to be here but your are both very welcome. Feel free to rant (it's great to get things off your chest) but you will get great support, help and advice. They are a great bunch of people here who you will meet over time. Take care and best wishes to you both
Jean

[jmsmythParticipant]

Dear Gill

My thoughts and prayers are with you and Stephen at this time. Gill, Dai, Eve and Tom have said it eloquently, I am not good at words, but I just wanted you to know that I am thinking about you. I have followed your and Stephns journey with this awful disease and you have been there for me and many others and we are here for you. You have had good times and you will have your lovely memories, take comfort in your love for each other. God give you both strength.

Love and hugs
Jean xx

[jmsmythParticipant]

Hi Mari

Hope all goes well with Sreve's SCT. I didn't know 2nd STC has to be funded. Keep well
Love Jean

[jmsmythParticipant]

Dear Eve

What fantastic news 🙂 . I'm so pleased. I admit to having tears in mye eyes reading it as Slim has had such a tough journey and to have this outcome is really brilliant. We seem to have been getting a lot of new members recently and I'm sure reading yourr post will be the best tonic for them. Eve have a brilliant time and a good rest if anyone deserves it it is you and Slim. Enjoy life8-) my best wishes to Slim and tell him WELL DONE
Love Jean xx

[jmsmythParticipant]

Dear Teresa

I can only imagine what you are going through and my heart goes out to you. The love of your life has gone but you have been left with lovely memories. My love and thoughts are with you and thank you for your post.

Love Jean x

[jmsmythParticipant]

Hi Megan and and welcome from me. Michele is right "a trouble shared is a trouble halved". This forum has been a God send to me. I have had help, support and above all friendship. My best wishes go to you Nd Phil – good luck

Love Jean x

[jmsmythParticipant]

Hi Andrea
Sorry you had to join us but you are in the best place. My husband was diaganosed 6 years ago with smouldering myeloma, he was being checked for something else. He just started CDT in June and has 3 more cycles to go before STC. Andrea I know its difficult not to worry (I'm the best at that) but we had a great 6 years, doing things that we wanted, and hope that after treatment we will be able to continue. My very best to you
Love Jean

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