[jmsmythParticipant]

Hi allison

You also have had a very rough time and hope that things can only get better. Welcome to our "family" (I'm sure you don't want to be here but they are a great bunch of people). If my hubby gets through CDT he will be having SCT.

My very best wishes to you
Jean x

[jmsmythParticipant]

Tom you do make me laugh. 😛 thanks. It must be bad as he's in bed and not watching football!

Ta love Jean x

[jmsmythParticipant]

Thanks Dai and David. Franks has been good getting through his water (or at least he tells me) he has also been able to have G & T's

Thanks again
Jean x

[jmsmythParticipant]

Dear Eva, Eve and Jo

Thanks for your answers. Seeing consultant tomorrow so will put them to her. Frank has just told me that he wants no one to know about the thrush. Is this a man thingg!!

Eve sorry to hear that Slim is in hospital. Hope he gets out soon, there's no place like your own home. You are so right Eve this is a real steep learning curve.

Best wishes to you all
Jean x

[jmsmythParticipant]

Rachael is right. I was so upset when I read it under treatment earlier. Thanks Eve and Tom for your comments. Put a smile on my face!!
Love Jean x

[jmsmythParticipant]

Hi Jo

Hope things go well tomorrow at the clinic, I know what you mean about worrying. No matter what people say to me I get so up tight before we go – lets know hw you get on. Franks back is giving him merry hell. We did mention it to consultant and she said to wait and see how he is when we go on Thursday. It took her 14 months to find out what the pain in his side was! But when I see her on Thirsday I'll ask for X-rays. His protein had dropped again to 10 she said again its not a good thing. I have not listened to the recording yet – putting it off but I'm going to this afternoon. I remember her saying something that made me think that things were not right. He is getting medication renewed on Thursday. She put him back on 2 Thalidomde a night. He has no taste except for a martini!!!! So on Friday he will be starting the dreaded Dex for 4 days. She reckoned what he was suffering last time was withdrawal from Dex. He is getting quite a few power failures. Just gone to bed now.

Never been to IOW though our son who lives on Southampton goes often. I'm sure you will get there. Hope the weather will be good for you. We had 3 days of continuous rain. Thought it would never stop. We went out for dinner on Friday and the flooding was terrible.

Will cross fingers for tomorrow
Take care love Jean x

[jmsmythParticipant]

Judd
What a terrible time you have been through and so young. I'm sorry to have to welcome you to the site but you are in the right place so WELCOME. Although I have been a member of the forum for many years -6 to be exact – hubby diaganosed early – he has just started treatment past two weeks CDT. So I'm not experienced to give a lot of advice but we have lovely bunch of people here who I'm sure will be able to help with questions, tips and advice. So anything you need to know or to rant just come here

Best wishes to you
Love Jean x

[jmsmythParticipant]

Hello Siobhan

I read onFB of the passing of your lovely mum. I was completely devastated as I was "talking" to her a few weeks ado. Like the others have said, I never had the pleasure of meeting your mum, but she was my friend and so vey helpful and supporting tome and us all even in her bad times. She had a great sense of humour and she wil be sadly missed. You will take comfort in the love she had for you and your family,and the great respect that she was held on the forum. I know you are as proud of her as she was of you all. My love and best wishes are sent to you all.

Love Jean xx

[jmsmythParticipant]

Rachael

Sorry that you have joined us but you are very welcome. You have come to the best place for support and information. I am new to the treatment aspect of this awful disease as my husband has just started first cycle of CDT, but if you have questions or worries there will be someone that can help.

I hope your mum does well on the treatment.
Love Jean x

[jmsmythParticipant]

Devastated to hear the news of the passing of Bridget. Such a lovely lady who will be truly missed. Deepest sympathy to her family

Jean x

[jmsmythParticipant]

Hi Roy

Thank you for you post. It is so good to read something positive. My very wishes to you, your wife and daughters

Love Jean x

[jmsmythParticipant]

Hi Jennah

Haven't experienced Chemo in hospital with Frank (on tablet form) but when my brother was having it his wife used to txt me to tell me he was snoring his head off!!

Take care and best wishes to your dad 😀

Jean x

[jmsmythParticipant]

Hi Mari

I had just been saying to Frank a few minutes ago that I was going to phone Jackie our myeloma nurse tomorrow to clarify things but he said he would rather I didn't. He intends to speak to consultant when we see her next Thursday. Just hope Frank has no problem with reduced Thalidomide.

Thanks Mari
Love Jean xx

[jmsmythParticipant]

Hi Jo

Happy birthday. Hope you have a lovely day – 21!!!! You had sunshine – lucky you – we are blowing up for a storm. Hope you had a nice drive

The consultant said that the myeloma cells are changing and the predominant myeloma cell is not producing protein says that it is a sign that the myeloma is progressing. Told us the count had dropped by a half without anything being done.  Following the protein was not the answer and will be looking at him and at the bones and taking other factors into consideration.

There was a bit that I missed because of the noise. I will ask again on Thursday when we go back to see about the thalidomide.

Take care
Love Jean xx

 

[jmsmythParticipant]

Hey Vicki that's great news about Colin. Hope he goes from strength to strength. I thought that about the protein but I taped the conversation so I will listen to it and then ask her next Thursday.

All the very best
Jean x

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