jo53

  • jo53 replied to the topic Pom cycle 18 in the forum Treatment 8 years, 8 months ago

    Hi Andy
    Hope you had/are having a good time in Greece.

    Pomalidomide is giving me problems both on efficacy and side effects. My light chains originally fell, but are now going up: not very high, last reading was 650 and if that was all I think no-one would be too worried. But the treatment is also really hitting my blood counts, especially…[Read more]

  • jo53 replied to the topic Pom cycle 18 in the forum Treatment 8 years, 8 months ago

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  • jo53 replied to the topic Pom cycle 18 in the forum Treatment 8 years, 8 months ago

    Hi Carol

    This is my first post though I have been reading the site for some time. Am prompted to join in now to say I am shocked to hear the ‘quips’ you’ve had about pomalidomide cost. Not very professional is it, and quite understand that it is upsetting to you. Perhaps they are just trying (but failing) to lighten the mood in clin…[Read more]

  • jo53 replied to the topic Pom cycle 18 in the forum Treatment 8 years, 8 months ago

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  • jo53 became a registered member 8 years, 9 months ago