john62 replied to the topic Friendly reminder in the forum Newcomers 10 years, 9 months ago
Hi eve
I live in Chester 10 minutes from Liverpool
I was born just over the border in wales.
when we played football against teams in Liverpool they called us woolly backs
I just tried to send Rebecca a message but made a mess of it,
My heart is with you people truly my people we are special
people get a bit heart when they don’t get a…[Read more]
john62 replied to the topic Friendly reminder in the forum Newcomers 10 years, 9 months ago
Hi Rebecca
Just got back home rained off installing a big waist water tank in
the ground.
SCT 13 December 2012 out on 28 December back to work three weeks
Babington about the same time.
I do agree that you have to listen to your body
but you have to not let the week side of your mined dictate your decision.
It didn’t take me long to say to the…[Read more]
john62 replied to the topic Friendly reminder in the forum Newcomers 10 years, 9 months ago
Hooray I think am in
come on lets get this site back to haw it was it has gone flat,
I am probably the worst with email than all of you,
Just a few words of encouragement and reply to say well done,
love you all
john PS Those men and women in the trenches gave there lives
to give us fighting chance we will not let tem down
john62 replied to the topic One year on (A long year) in the forum Newcomers 11 years, 11 months ago
Hi paul
snap i was diagnosed in april
we maybe myeloma twins good look on 100 days
This may sound od but this year has been the best year
of my life the presure is off and i am number one
let me know whot you get randomised whith
best of the best
john
john62 replied to the topic Question…..maintenance treatment in the forum General 11 years, 11 months ago
Hi tina snap but i am on 10 ml rev and zolinza
start to day
Thay dont know haw long for ?? beats me to
love john
john62 replied to the topic Happy 1st Birthday to my Stemcells. in the forum General 11 years, 11 months ago
Hi babs, this is john, well done i am so pleased and it givess all of us following you encouragement and hope. Ive just been out to the pub for a pint and read your post. I can now go to bed feeling happy. Im thinking you are our leaer tonight. Well done again, and these are the messages that lift us all. enjoy austrailier and next year the monn.…[Read more]
john62 replied to the topic Full Remission in the forum Treatment 11 years, 11 months ago
Hi peter
I go back tomorow to pick up revlimid and zolinza thats the outcome
of randomisation to maintenance +BMB OWWWWCH PP 1
I dont know for hawlong or what
take care john
john62 replied to the topic Full Remission in the forum Treatment 11 years, 11 months ago
Hi rebecca hope your kidneys improving my doc says thay will repair
them selves.
SCT you will do it you r strong.
100 days last wednesday ranDomised revlimid and zolinza ? Pick up drugs tomorow and have BMB OWWWCH
PP 1
Wish i could be more help
john x
john62 replied to the topic Full Remission in the forum Treatment 11 years, 12 months ago
well done peter keep it up
Its my 100 days tomorow hope i get the same result
john cad
john62 replied to the topic my mum has myeloma. first time post in the forum Newcomers 11 years, 12 months ago
Hi
This is John,my level of pp was below 1 when I had stem cell transplant.This is what we all try to achieve,however we cannot always achieve this level
and people have gone on to stem cell transplants with higher levels
and achieved good results.
all the best and good luck
John (King of Gwynydd)
john62 replied to the topic First post! in the forum Newcomers 11 years, 12 months ago
Good look on monday the people on hear ar great
i bumpted in to some of them on saterday at the leeds
info day should have gone to spec savers he he
john
john62 replied to the topic Information/Experience on relapse and velcade in the forum General 12 years ago
hi dan
just read you blog i can come dawn and stay near and help
you out say three days a month i am haer for you and dad
john
john62 replied to the topic new to this in the forum Newcomers 12 years ago
Hi every one its John, The hundred days are coming up, Starting to get a bit frightened, But when i read all your posts I have to be strong for all you guys..You are remarcable people, and this is a problem you didnt choose.But together we seem to be achieving something. I feel ive known some of you for years, and i go to bed every night thinking…[Read more]
john62 replied to the topic Dad's been diagnosed.. I want to understand more! in the forum Newcomers 12 years, 1 month ago
Hi robin
sorry to hear your bad news
I WAS diagnosed last easter after back and to from doctors for 4 months we just go on and on my pp was 70 its a long road and we will get there there is a sunny day around the corner stay strong
john xxxx love you all
john62 replied to the topic new to this in the forum Newcomers 12 years, 1 month ago
Hi
jean and frank
pp 2 it could stay like that for months see if you can get to zero
befor SCT NO PANICK
love you all john cadwallader king of gwynedd xxxxxx
john62 replied to the topic new to this in the forum Newcomers 12 years, 1 month ago
Hi
vicki and colin
I was so happy to se reply this morning.
IT takes me say two hours to post message no confidence,
Put me in a meeting with the council or the environment agentcy thay wont get aword in,
My myeloma is my problem not my secreterys,
you r right the body is the key
but the mind is the other key which gives you mental…[Read more]
john62 replied to the topic new to this in the forum Newcomers 12 years, 1 month ago
Hi tom
thanks for your post
Yes back to work self employed got to pay the bills, but allso there is an anger that needs to be turned in to a positive.
Living on my own has its advantages and somtimes disadvantages,
you ar the people i listen to but if i am not well i will stay in bed.
tom what do you think randomisation
1 no…[Read more]
john62 replied to the topic Just been diagnosed with Myeloma in the forum Newcomers 12 years, 1 month ago
Hi Susan
There is lots i want to say but i am not to good on computers..
I was diagnosed in March last year and went on a trial. I was at stage 111.
i was on the RCD trial of wich i had 5 months followed by SCT in December. up and about now. i have been looking at this site since June and like you was worried from the start. the comments i read…[Read more]
john62 replied to the topic new to this in the forum Newcomers 12 years, 1 month ago
hi jean thanks for your reply
I was diagnosed in march at stage 111 mm
had 5 months of revlimid ex
10th of december SCT
OUT 30th of december back to work doing bits this week
I live in Chester, would be good to talk to your partner as i found most of the SCT was in the mind but we are all diffrent. i find that turning a negative into a…[Read more]
john62 started the topic new to this. in the forum Newcomers 12 years, 1 month ago
sct hi all new to this spent xmas in hospital SCT ok Back to work been reading all your messages dont do computers so help me a bit love to you all john cadwallader