Hi eve
I live in Chester 10 minutes from Liverpool
I was born just over the border in wales.
when we played football against teams in Liverpool they called us woolly backs

I just tried to send Rebecca a message but made a mess of it,

My heart is with you people truly my people we are special

people get a bit heart when they don’t get a…[Read more]

Hi Rebecca
Just got back home rained off installing a big waist water tank in
the ground.

SCT 13 December 2012 out on 28 December back to work three weeks
Babington about the same time.

I do agree that you have to listen to your body
but you have to not let the week side of your mined dictate your decision.

It didn’t take me long to say to the…[Read more]

Hooray I think am in
come on lets get this site back to haw it was it has gone flat,

I am probably the worst with email than all of you,

Just a few words of encouragement and reply to say well done,

love you all
john PS Those men and women in the trenches gave there lives
to give us fighting chance we will not let tem down

Hi paul
snap i was diagnosed in april

we maybe myeloma twins good look on 100 days

This may sound od but this year has been the best year
of my life the presure is off and i am number one
let me know whot you get randomised whith

best of the best
john

Hi tina snap but i am on 10 ml rev and zolinza

start to day

Thay dont know haw long for ?? beats me to

love john

Hi babs, this is john, well done i am so pleased and it givess all of us following you encouragement and hope. Ive just been out to the pub for a pint and read your post. I can now go to bed feeling happy. Im thinking you are our leaer tonight. Well done again, and these are the messages that lift us all. enjoy austrailier and next year the monn.…[Read more]

Hi peter
I go back tomorow to pick up revlimid and zolinza thats the outcome
of randomisation to maintenance +BMB OWWWWCH PP 1
I dont know for hawlong or what
take care john

Hi rebecca hope your kidneys improving my doc says thay will repair
them selves.
SCT you will do it you r strong.

100 days last wednesday ranDomised revlimid and zolinza ? Pick up drugs tomorow and have BMB OWWWCH
PP 1
Wish i could be more help
john x

well done peter keep it up
Its my 100 days tomorow hope i get the same result
john cad

Hi
This is John,my level of pp was below 1 when I had stem cell transplant.This is what we all try to achieve,however we cannot always achieve this level
and people have gone on to stem cell transplants with higher levels
and achieved good results.
all the best and good luck
John (King of Gwynydd)

Good look on monday the people on hear ar great
i bumpted in to some of them on saterday at the leeds
info day should have gone to spec savers he he

john

hi dan
just read you blog i can come dawn and stay near and help

you out say three days a month i am haer for you and dad

john

Hi every one its John, The hundred days are coming up, Starting to get a bit frightened, But when i read all your posts I have to be strong for all you guys..You are remarcable people, and this is a problem you didnt choose.But together we seem to be achieving something. I feel ive known some of you for years, and i go to bed every night thinking…[Read more]

Hi robin
sorry to hear your bad news
I WAS diagnosed last easter after back and to from doctors for 4 months we just go on and on my pp was 70 its a long road and we will get there there is a sunny day around the corner stay strong
john xxxx love you all

Hi
jean and frank
pp 2 it could stay like that for months see if you can get to zero
befor SCT NO PANICK

love you all john cadwallader king of gwynedd xxxxxx

Hi
vicki and colin
I was so happy to se reply this morning.
IT takes me say two hours to post message no confidence,
Put me in a meeting with the council or the environment agentcy thay wont get aword in,
My myeloma is my problem not my secreterys,
you r right the body is the key
but the mind is the other key which gives you mental…[Read more]

Hi tom
thanks for your post
Yes back to work self employed got to pay the bills, but allso there is an anger that needs to be turned in to a positive.

Living on my own has its advantages and somtimes disadvantages,

you ar the people i listen to but if i am not well i will stay in bed.
tom what do you think randomisation
1 no…[Read more]

Hi Susan
There is lots i want to say but i am not to good on computers..
I was diagnosed in March last year and went on a trial. I was at stage 111.
i was on the RCD trial of wich i had 5 months followed by SCT in December. up and about now. i have been looking at this site since June and like you was worried from the start. the comments i read…[Read more]

hi jean thanks for your reply
I was diagnosed in march at stage 111 mm
had 5 months of revlimid ex
10th of december SCT
OUT 30th of december back to work doing bits this week
I live in Chester, would be good to talk to your partner as i found most of the SCT was in the mind but we are all diffrent. i find that turning a negative into a…[Read more]