john_mouldingyahoo-com replied to the topic Alternative to Stem Cell? in the forum Treatment 10 years, 1 month ago
Hi Andy,
thanks for your reply. I see a respiratory consultant at the end of the month but this cough has been going on for a while and no-one seems to know why. Last explanation was that it must be the cancer irritating the lung.
Nice to know that drugs can do it as well although SCT appears to be the preferred way.
Keep, keeping on
John
john_mouldingyahoo-com started the topic Alternative to Stem Cell? in the forum Treatment 10 years, 1 month ago
I have been told I cannot have SCT at the moment because I have a persistant cough which no one has been able to work out what is causing it. I have had a CT scan on the lungs and am waiting an appointment with a specialist.
But is there an alternative to SCT if things don’t work out?
John
john_mouldingyahoo-com replied to the topic Advice welcome in the forum Newcomers 10 years, 3 months ago
Thanks for you reply. Other people on the forum seem positive about the treatment too. Tendacy towards, at the moment, but will see. Im 61 so not much difference there, on my 5th cycle.
John
john_mouldingyahoo-com replied to the topic Advice welcome in the forum Newcomers 10 years, 3 months ago
hi Keith.
I interested in your experience of SCT. I have just fininshed cycle 4 CDT and dr says I should think about SCT or not. It seems to involve being in hospital for 3 weeks and a harsh chemo.
john_mouldingyahoo-com replied to the topic Newly Diagnosed in the forum Newcomers 10 years, 4 months ago
I,m pretty much the same as far as the stats. The only one my consultant seems to be considering is the paraprotein and getting it as far as possible down. So at present I’m just taking my cue from him.
john_mouldingyahoo-com replied to the topic blood infusions in the forum Newcomers 10 years, 4 months ago
Thanks for replying mavis. I have had breaks . Where I work I am afraid of picking up certain items because I feel they are on the edge of my weight lifting thresh hold. It would make a difference to me to have the confidence to pick them up, with care, without too much worry. I guess it may be a bit of trial and error. I have only just started on…[Read more]
john_mouldingyahoo-com started the topic blood infusions in the forum Newcomers 10 years, 4 months ago
I am taking infusions to improve my bone strength. How will I know when it is working so I can pick up something heavier?
john_mouldingyahoo-com replied to the topic Associated Cough? in the forum Newcomers 10 years, 5 months ago
Thanks to the replies. Mine isn’t due to nerves and doesn’t go. I might get a bit of respite if I cough something up but it soon comes back. And it started before the drugs as well. I dont think its going so I will have to learn to live with it.
john_mouldingyahoo-com started the topic Associated Cough? in the forum Newcomers 10 years, 5 months ago
Has anyone got a cough that their dr says must be due to the cancer irritating the lungs. Ive had this cough for a while. I did a sputam check – nothing. Dr gave me antibiotics just in case – no difference so he says it must be the cancer irritating as there is nothing wrong with lung. Had a CT scan previously.
John
john_mouldingyahoo-com replied to the topic My story to Date in the forum Newcomers 10 years, 5 months ago
Back from infusion of Zoledronic acid. Painless really, just sat in a chair while saline and the zoledronic dripped in. Took more time than necessary today because i should have bloods done before hand. Am told will only take an hour next month.
The infusion should help to fill in the holes in the bone so reducing the risk of breakage. Staff…[Read more]
john_mouldingyahoo-com replied to the topic My story to Date in the forum Newcomers 10 years, 5 months ago
Hi Chris,
As far as the hiccups is concerned I was told to take the Metoclopramide tablets I have for sickness and nausea. These really helped if you have them too.
The in fusions as ,I understand it, are to strengthen the bone. (1.30pm today).
Let you know how I get on.
John
john_mouldingyahoo-com changed their profile picture 10 years, 5 months ago
john_mouldingyahoo-com replied to the topic My story to Date in the forum Newcomers 10 years, 5 months ago
Hi Chris,
thanks for posting. I’m a newbie and its good to see someone else at a comparative stage.
I’m 60 and my story’s pretty much the same. Ribs going, vertebrate breaking and initially thinking osteoparosis. On second cycle of CDT at the moment, due a blood infusion tomorrow.
Nice to see that someone else posting got the hiccups. That…[Read more]