johnandjunediamond replied to the topic SLIM in the forum End of Life and Grief 10 years, 6 months ago
oh eve,i am so sorry my thoughts are with you, it’s so hard to understand this existance and it’s ceasless attacks on our sanity,the coming mths will be testing as each emotion is trialed to extreme, but i know you are strong and slim wouldnt wish you sadness. take your time love ok!
johnandjunediamond replied to the topic Life in all its fulness in the forum End of Life and Grief 10 years, 7 months ago
sorry to here your sad news sarah,
my thought’s and wishe’s for the day’s ahead, the strength will come.
best regard’s,john.
johnandjunediamond replied to the topic OK so this is a bit scary now in the forum AL amyloidosis 10 years, 8 months ago
dont worry pat, all will work itself out you concentrate on yourself and stay well!
you could also write down the basics in plain english…..like washing machine settings,
oven setting’s/ basic cooking instructions like potato’s and veg instructions and time’s.
we men all claim to know nothing ( but that’s idolitas )it’s amazing what we pick up…[Read more]
johnandjunediamond replied to the topic ALAmyloidosis in the forum Newcomers 10 years, 11 months ago
hello anita,
amyloidosis is a very rare desease,and you may feel a little isolated in regard’s to
reply’s to your question’s.
there is a ( amyloidosis support group uk ) you could search but it is not as up to date
as it should be, but again down to the rarety of this desease.
however if you scroll part way down the page you will find a short…[Read more]
johnandjunediamond replied to the topic Hi there in the forum Newcomers 11 years, 1 month ago
hi joe.
must be a donny lad by the sound’s of thing’s,
let the doctors worry about the bone stuff joe,meanwhile do all you can to protect and care for your kidney’s,plenty of water……doncaster are not that good at giving out info,but press them for regular printed info such as blood result’s,and do try to write down any verbal info you get,a…[Read more]
johnandjunediamond changed their profile picture 11 years, 1 month ago
johnandjunediamond replied to the topic waiting in the forum Newcomers 11 years, 1 month ago
welcome wendy,
as richard rightly said,it’s not the time to panic,you need to consider what question’s you might need an answer to when you meet your consultant,
ask about your liver & kidney function and anything else on your mind
write them clearly in order and dont allow yourself to forget to ask them all…most can be answered by thier…[Read more]
johnandjunediamond replied to the topic Anyone else with IgM Myeloma? in the forum Newcomers 11 years, 1 month ago
welcome nikki & kev,
sorry but im cluless ref:- IGM myeloma so cant help you there,you will find that you will get less reply’s when you have a rare & or complicated form of the desease or related condition,please dont be offended it’s just that people tend not to reply if they feel they cannot directly contribute in a positive way.
but you will…[Read more]
johnandjunediamond replied to the topic Mums struggle in the forum End of Life and Grief 11 years, 1 month ago
my thought’s are with you san,……sorry for your loss.
johnandjunediamond replied to the topic new one in the forum Newcomers 11 years, 1 month ago
hi,chris.
basicly what that mean’s is that you carry the desease,if you are very lucky it
may never evolve into mm.
if not then you at least have the advantage of being in the best possible position to gain quick control,for the time being try not to get too obsessed with it….but do please read thru the forum ( including the tv/video section…[Read more]