[johnandjunediamondParticipant]

thanks mari,
june was sent back to ward last night, she is very weak/fatigued,but hopefully we can now restart the journey and make some progress 😐

[johnandjunediamondParticipant]

thank you maureen,
10mths wow!!junes stir crazy after a couple of week's she hasn't had much fun with hospital's over the year's, best wishes from us for his early release .

[johnandjunediamondParticipant]

thank's for reply mari,
iv'e not been on for a while after june was told she could go home ( fri 26th july )
in the early hrs of the next morning she collapsed with an ulcer in her small intestine
and has been in intensive care ever since,unconcious for 5/6 day's her chemo has been stopped for now,whils't she recovers,so we never got to the sap scan stage but presume that amyloids are present within her stomach,although i have been told that dex in tablet form can cause ulcer's,think she will have to have it infused in the future!!
VERY SCARY PERIOD FOR US!!

[johnandjunediamondParticipant]

good luck mate 🙂 !!

[johnandjunediamondParticipant]

sorry for late reply jan, june collapsed early hrs saturday and is at present in intesive care with an unspecified infection,they have taken her off sedation and we are awaiting her waking, all info helpfull thou as im sure we will need in the near future,
thank's

[johnandjunediamondParticipant]

dont try and take it all in,it will crash your brain!!….each thing you think of …you come back on here and look for the answer and make a note of it.if you dont find it here get janine to write it down for the doctor to answer,also watch all the myloma tv vid's on here 🙂

[johnandjunediamondParticipant]

hi peter, my wife and i are recent also,unfotunatley your world is about to be turned upside down and inside out,but it's good you found the wonderfull folk on here to help guide you. ask your partner to try and take note's for you as to the question's you would like answered,information overload will confuse you and prevent you asking important question's when you see the consultant's. so write it down,eat healthy,and drink plenty,best wishe's june & john

[johnandjunediamondParticipant]

thank's tom appreciated:-)

[johnandjunediamondParticipant]

thank's to all jill megan and etta,
seem's there is a team at the hospital who check to see if all is in place,you would think the consultant would know that wouldn't you !!

[johnandjunediamondParticipant]

MANY THANK'S
rebecca megan and jean appologies for late reply,head department is mush as usual,
the nurses dont seam interested in my desire to learn more,and i find the consultant difficult to talk to…..or should i say he gives the impression of finding me difficult to listen too!! maybe when my emotian's settle down,i will find it easier to get across concern's

[johnandjunediamondParticipant]

Sorry folk's may have missled you,….what i ment was which item's should i be getting that you would consider essential for june's care and well being.

[johnandjunediamondParticipant]

all the very best from us two tom 🙂

[johnandjunediamondParticipant]

thanks san,just got back from visiting…..turns out the nurses had not been recording the sickness on the report……consultant wasn't best pleased!!
pleased to hear your mum having an UP period, june was in better spirit's today which gave me a spring in my step also:-)

[johnandjunediamondParticipant]

hi mal & bruce,pleased to hear your in a good place,mentaly & phisicaly

DITTO,!!
june was also being treated for acid/silent reflux !! and unfortunatly her kidney's are struggling a little at the moment.

[johnandjunediamondParticipant]

thank's jan,
the anti sickness continued to work,now if they can just sort the othier end i might get her home for the weekend 😀

[Author]

Posts