[jonoParticipant]

I was able to take my own quilt and pillow that made a difference

[jonoParticipant]

Hi it is after day 100 that I started maintenance I am only on cycle one. I have picked up an infection of some sort. I ended up in hospital for four days. At first I put it down to the drug but now I am not so sure.

[jonoParticipant]

Hi susie

I have just started maintenance therapy the thing that swayed me is that on the trial you are more closely monitored whether I was selected to have lenolidamide or no drugs. Also you can opt out anytime you want.

I was selected to be on the treatment it is a lower dose than I was on before with no problems so far also I hope my involvement will help people in future.

Jono

[jonoParticipant]

WD keep up the good work you will be home before you know it I am around day 100 now

All the best jono…

[jonoParticipant]

Hi matt I am 47 having my SCT at the moment . I am sure there is an insurance company connected with this site. If not McMillan will be able to point you in the right direction.

Jono

[jonoParticipant]

Hi Nick

I had one weeks worth of radiotherapy on my collapsed l3 pain has reduced greatly I am on the x1 trial at the end of the low dose chemo part just before SCT stage. One peace of advice is at the moment stick to this web site and forum. As info on the internet is outdated and sometimes completely wrong

Jono

[jonoParticipant]

Done

[Author]

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