jules33

  • jules33 replied to the topic SCT question in the forum Treatment 5 years, 10 months ago

    Hi Emsie, my husband was also diagnosed with MM a year ago at 46. I can totally relate to how you are feeling. He was also stage 3, has poor cytogenetics & had substantial damage to his back on diagnoses. Induction treatment at our local hospital of velcade dexamethasone & cyclophosphamide was ineffective & stopped after 5 cycles. We were given…[Read more]

  • jules33 replied to the topic After the transplant… in the forum Carers 6 years, 7 months ago

    Hi, Rebecca, Mojo & Annalyn

    thank you for taking the time to share your experiences it’s really useful to have your honest opinions & personal experiences. The info in the fact sheets doesn’t really cover the carer at all & yet there is an expectation that you will be there to do it :- my real concerns as to what if you can’t not won’t but can’t…[Read more]

  • jules33 replied to the topic After the transplant… in the forum Carers 6 years, 7 months ago

    Tony,

    thank you for the pointers unfortunately we do not yet qualify for help (Marks pay has to drop). In our area we have a Force centre with a CAB adviser in situ 2 days a week who has been a great help & has looked at the small print as they say. We have used savings to purchase a wheel chair, an adjustable bed & create level access to our…[Read more]

  • jules33 replied to the topic After the transplant… in the forum Carers 6 years, 7 months ago

    Mojo,

    i have a similar conundrum with 3 children to add into the mix. My husband Mark diagnoses came after 3 months of debilitating back pain . It took a further 6 weeks post diagnoses to get the pain under control. We are rapidly approaching the end of induction chemo and the Dr is suggesting SCT despite poor cytogenetic results. Our problem is…[Read more]

  • jules33 became a registered member 6 years, 10 months ago