Juliec

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  • #141689

    juliec
    Participant

    Hi

    Thank you for your reply.
    Hope you don’t mind me asking but is yours MGUS or Smouldering? The doctor we saw didn’t say which my husband had, all we was told was level 6g but don’t know if this puts him in the Smouldering category as it says on web >3g/dl is Smouldering. But then on other sites Smouldering >30 g/l. So unsure if his 6 is g/l or g/dl. Could I ask what yours is measured in?
    Thank you

    #141687

    juliec
    Participant

    My husband had blood tests last year as he was suffering from IBS, it came back showing his platelets count was around 90, he had repeated blood and one came back normal, but then another 2 were low again. He was referred to haematologist in March, and was advised to have a scan on his spleen. Due to covid he didn’t have the scan till November. In the meantime the gp ran blood test again and in September his platelet count was normal, but then in November it went down to 120 and then following a repeat 99 then 94. He saw the haematologist yesterday who said the spleen scan was fine and he thought he may have a Pseudothrombocytopenia and to repeat blood test in 6 months, but he also mentioned that he has protein in his blood (6g) and said because of this they are keeping him on there books, but didn’t say anymore. I have since look this up on internet and am very alarmed that this may lead onto multiple myeloma. I am now very worried as this hasn’t be explained to us, and from reading about it on the web it say anything over 3g protein is smoulding myeloma that nearly always progresses to multiple myeloma. Is this correct as his white and red blood counts are normal? And they are not doing any tests on his bone marrow.
    Thanks

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