[julierennieParticipant]

Hi

I have the same too, a metallic taste in my mouth.  I think it must be quite common.  My food tastes altered and I no longer enjoy a glass of wine or gin and tonic which is a pain.  Hope your treatment is going well.  I started treatment 3 months ago, at Freeman, Newcastle.  It’s been a bit of a bumpy ride but hopefully we’ll get there.  Take care.

Julie

 

 

[julierennieParticipant]

Hi Mick

You’re right, Professor Jackson  and the team at the Freeman are great and I have absolute faith in their treatment of me.   I find that the insomnia is a bit of a problem, I take sleeping tablets every night which helps me drift off to sleep but then I wake up in the early hours and can’t get back to sleep….what I’d give for  full nights sleep again!!! Good to hear that your pp are controlled, it’s reassuring to know that the horrible treatment we have to go through actually does work.  You sound like you’ve got the right attitude and I know that goes a long way to being able to cope with this condition…..I  hope I’ll be able to get there soon.

Thanks again for taking the time to reply.

 

Julie

 

 

[julierennieParticipant]

Hi Mick

Thank you very much for your response, you sound very positive and that’s just what  I need to hear right now.  I’m new to this site and it’s taken a long time for me to even discuss my diagnosis.  Just thought I’d share with the forum that my light chain level has come down from 29,000  to 1 so my treatment is definitely working.  Wondering if anyone can share experiences of symptoms on  Myeloma VI trial.  I’m currently  on cycle 3, week 3 and feel pretty rubbish, sickly with no appetite and low in energy.  Is this normal?  My first cycle resulted in an admission to ITU following a bad infection which lead to pneumonia. This made me feel extremely anxious for following treatments although now I feel that I can get through it.  Thanks.

[Author]

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