[julierennieParticipant]

We use Covered 2 go which is very reasonable and seems to give good level of cover.

Good luck

[julierennieParticipant]

I can completely understand how you feel. I was 43 when I was diagnosed in 2014. I underwent chemotherapy and a stem cell transplant. My treatment was tough but worked amazingly and 5 years on i’m Still in remission, back to work for 4 years and living a normal life. I struggled with anxiety too, it was debilitating and was really making me ill. My decision was to start taking Fluoxetine, maybe not for everyone but for me it made a huge difference. Whatever works for you. Good luck xx

[julierennieParticipant]

I can definitely relate to this. I lose my train of thought constantly, it takes me ages to get myself motivated and the memory is shocking.

[julierennieParticipant]

Hi Katy
I was 43 when I was diagnosed with MM in 2014. It was a massive shock as I my only symptoms were mouth ulcers. I was feeling tired but having a 4 year old daughter and working part time, I put it down to the demands of everyday life. Let me try to reassure you that you do get your life back. I never thought it was possible but MM for me now is something that sits in the back of my mind not the forefront which it used to. I’ve only just returned to this site as I became slightly obsessed with it whilst going through treatment, wanting answers that simply couldn’t be answered. I hope you’re doing good. Best of luck to you x

[julierennieParticipant]

Hi Millie

Trust me, you will get through this! I was diagnosed with MM aged 43, I’ve been through chemo and last January had a SCT.  No denying it was tough at times but you will get back to normality.  I was back to work in April last year, didn’t expect that and now I’m living my life the way I used to, before this all started.  At times you feel like you will never get your old self back but you do.  At this point, it’s still very raw, not knowing what to expect and trying to cope with the diagnosis.  Please take heart that it will get better, you’ll get through treatment and be a stronger person for it. Good luck – Julie.

[julierennieParticipant]

Hi Chris

Thank you so much for your post and take your advice about mouthwash. I feel so anxious at the moment, i’m unable to concentrate on anything, feel very low and sickness seems to have returned. I wish i could get my head around this whole thing but at the minute it seems very consuming. Sorry to sound so negative, really want to feel more upbeat but unfortunately can’t manage this at the present time.

Julie

[julierennieParticipant]

Hi Dawn

I’m being treated at the Freeman Hospital in Newcastle, my consultant is Professor Graeme Jackson. I couldn’t ask for better care by
Both Professor Jackson and the nursing staff. You said in your post that you have maintained a good quality of life, that’s so good to hear. My concern is that whilst i’ve been on this treatment my quality of life has not been so good which is why i was interested in finding out how other treatments faired although i realise that everyone is different. Thank you for your reply.

Good luck with the Carflizomib

Julie

[julierennieParticipant]

Hi

Just been started on Fluoxetine for anxiety and depression. I’m feeling nausous, dizzy and generally lethargic since starting this although not sure if the chemo is still affecting me although nearly 3 weeks post chemo. I just wondered if anyone had any experiences with this medication and how they felt taking it.

Julie

[julierennieParticipant]

Hi Chris

Thanks very much for your reply. I know what you mean about the shakes when taking dex., just a couple of weeks ago the side effects of this steroid became really awful, felt very agitated and generally anxious and unwell. I’m finished treatment now but still not feeling great. I’ve been prescribed Fluoxetine for anxiety which i think is causing sickness and light headedness but not sure, hoping that it’s not still the side effects of chemo. It seems like you have responded really well to treatment, i hope it continues for you.

Julie

[julierennieParticipant]

Hi

Yes i have just completed four months treatment on the myeloma 11 trial and carflizomib was part of this treatment. This has worked extremely well for me. I am due to have sct in January. I can’t say that this treatment has been easy for me but that may not have been due to the carflimozib. Can i ask you how you have found treatments, its encouraging yo me that you have had this condition for 8 years. I hope this treatment works well for you. Good luck.

[julierennieParticipant]

H Rebecca

Thank you so much for your positive and informative response.  I felt a lot better when I read it. I have sct on 6 January so hopefully have a few weeks not on treatment where i feel well before i need to think about it. You mentioned about the nausia, can i ask how long it lasted for you. I was hoping that it would have passed by the time i was discharged.

Thanks again for your response.

Julie

[julierennieParticipant]

Hi

 

Thank you so much for your response.  I think I may have turned that corner now, it feels great.  I was able to go to my daughter’s 5th birthday party today, a few days ago I didn’t think I be able to.    Following the stem cell transplant, when you were discharged from hospital, were you still feeling poorly or were you able to ‘function’.  I’m just not sure what to expect, the medics say a 3 month recovery period but are you feeling rotten for that time?

 

Thanks again for your reply.

Julie

[julierennieParticipant]

Hi Nick

I was diagnosed with MM in July this year, complete shock as no real symptoms to speak of.  I’m on the Myeloma VI trial, just finishing my fourth and last cycle before SCT in January.  I’m finding the treatment very tough at the moment with side effects of the chemo.   Try to stay positive and take comfort from some of the stories on this site.

take care

Julie

[julierennieParticipant]

Hi Mick

You’re absolutely right…..having kids gives us the strength and will to fight this disease.  I often feel guilty that I’ve subjected my family to this.  My Daughter is only 4, nearly 5 and needs her mum around for a lot longer yet.  It’s what keeps me going.

take care

 

Julie

 

 

[julierennieParticipant]

Hi RichardB

Like you, we have kept the information to our daughter very simple.   We kept it completely from her at first but then I was admitted to hospital for a week so we had to tell her something.  She actually coped with the situation far better than I would have imagined.  We’d never been apart for even a night so I thought she’d fall apart but she didn’t and came to hospital to see me with her nurses uniform on. It’s so hard when you have small children, they don’t understand when you’re not up to playing out or taking them places, this has been the case over the past couple of days, it’s so frustrating….but more often than not, I’m able to manage things, school runs, etc.  I take on board what you say about physical activity and I know that mentally, getting out and about helps me a great deal when I’m able.  I hate being stuck in the house….hoping to get back to work next year.  Thanks for your response, much appreciated.

Julie.

 

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