[justmeParticipant]

Hi,

Glad to hear you’re otherwise ok. Apologies for not getting in touch sooner, only just starting to feel human following the infection. Maintenance has been up and down for me too as it really affected my bloods counts at all levels. So the consultant has decided to give me a break for a month to recover and get back to some normality after this infection. It’s taken it’s toll on me, and I’ve struggled emotionally with it.

My kidneys has stabilised which is good news. So they are currently at about 28%.

Let’s hope it’s onwards and upwards for both of us.

Nice to hear from you.

Take Care

X

[justmeParticipant]

Hi Susan,

I hope you’re holding up ok. I don’t necessarily have any experience of a cold post SCT but a couple of months ago I’d picked up a nasty stomach infection (which doctors assumed I’d picked up post transplant as it was a common hospital acquired infection) and it took me at least two month to recover from it and begin to feel slightly better but I did get there in the end. I hope that’s of some reassurance to you. Keep doing what you’re doing and hopefully it starts to clear up for you soon.

Best Wishes

X

[justmeParticipant]

Hi,

Thank you for the message, I hope you’re well.

My consultant is currently on leave but I have an appointment with her next week. I recently had a blood test which showed a slight improvement in kidney function so I’m holding on to that. Mentally, it’s taken me a while to start seeing the positives without catastrophizing symptoms. I’ve had some dark times.

Met my consultant in Leeds last week following my bone marrow biopsy, I’m in complete remission so now moving on to maintenance, extremely pleased with this.

Can I ask if you personally experience any symptoms with poor kidney function?

I hope you’re doing well.

JustMe

[justmeParticipant]

Hi Susan,

Thank you for your response. I too have a young daughter and my husband works away so that’s something that has crossed my mind with regards to the logistical process should I require dialysis.

It’s interesting that you mention a renal consultant, I don’t have one so I think this maybe something I mention to my medical team on the next visit.

I’m just hoping this is a small blip and things start to stabilise when it comes to kidney function.

All the best to you and I’m pleased to hear your kidney function is slowly improving.

Best wishes x

[Author]

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