[katiep59Participant]

Thanks 🙏

[katiep59Participant]

Thanks 🙏

[katiep59Participant]

Aww thank you for asking 🥰 I’ve been told I have MGUS but they want to do an MRI just to check it hasn’t progressed so I’m just waiting for that. If that’s ok I’ll be checked again in 3 months then 6 monthly ongoing. No answers for the sweating or itching which is annoying and after it being deemed so urgent last week to be told just watch and wait was a bit of a strange feeling but 🤷‍♀️

[katiep59Participant]

Aww thank you for asking 🥰 I’ve been told I have MGUS but they want to do an MRI just to check it hasn’t progressed so I’m just waiting for that. If that’s ok I’ll be checked again in 3 months then 6 monthly ongoing.

[katiep59Participant]

Thanks so much for your help and I’ll let you know on Wednesday what they say.

[katiep59Participant]

Thank you. I wonder if they are connected gynae cancer and blood cancer? It’s all come at an awful time for us as my granddaughter is getting married in July 😢

[katiep59Participant]

Aah ok – no I’m 67 in a couple of weeks and I have a lot of daily pain from fibromyalgia and cervical disc compression. It was the sweating that caused me to consult my doctor initially because I’m well out of menopause now and had a hysterectomy for ovarian cancer in 2016. I have had a bit of low back pain that goes into my legs and some peripheral neuropathy and also unexplained itching but apart from that I haven’t noticed anything else.

[katiep59Participant]

Thank you Najmah I hope I don’t have to have an MRI as I couldn’t go through with it last time I panicked. May I ask what your symptoms were if you don’t mind me asking you?

[katiep59Participant]

Thank you 😊

[katiep59Participant]

Ok thank you I’ve had SPEP already and urine immunofixation which were abnormal. My FBC was normal and calcium was borderline. So I just have to wait and see now I suppose. I’m trying hard not to keep reading things but it’s difficult.

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