Thanks Rebecca

Yes, the big green giant is in the building, how very strange eh?

I’m psyched up for the coming weeks and will take each day as it comes as you suggest.

Kind regards

Keith

Thanks for all the tips guys and gals. Very useful.

I’ve just had my stem cells put back in; a very quick process pushed in through a cannula. The cells come to the ward frozen and they’re defrosted in trays here. Then they’re drawn up into syringes and pumped in, still very cold!

No immediate reaction to this so fingers crossed all is OK.…[Read more]

I had nothing like the awful reaction to Dex that you’ve described here (thank God) but I did have 5 days of non-stop hiccups during my first cycle. They reduced the dose and that that reduced the hiccups but I always get them to some degree, as I did last night.

My only reason for mentioning my trivial reaction is that I asked my consultant…[Read more]

Hi Tom,

I’m pleased I’m not the only one who can’t sleep after Dex. I think I managed an hour.

Still, I’ll be having my transplant today so that’ll be a 9 hour opportunity to doze off.

When you say mouthwash, would the hospital provide that or is there a particular type I should take in?

Cheers

Keith

Hi Carol,

Wow, you did exceedingly well then at 15m cells. I’m about to post my stem cell transplant journey under a new thread so will add some more details there.

Kind regards

Keith

Hi David,

I found out today that they collected 10.2 million stem cells during my collection day last week. The nurse said this was very good but I have nothing to compare that with.

Cheers

Keith

Actually I don’t know although I have sent an email asking as I’m fascinated to know.

I must admit I’m surprised by the amount of detail on this forum that people have about their treatment. They talk about light chains and all sorts of things I’ve never been connected to. I don’t know if that’s because they’re at different stages to me but all…[Read more]

Hi Rebecca,

I think you are absolutely right on all counts, the realisation that you’re over that stage (and all its side effects) and now so close to the final stretch must have a positive effect.

I know the transplant is going to be a big climb but I’m mentally prepared to take it on and get this rubbish cancer dealt with as best I can so I…[Read more]

Thanks you Eve, very kind of you

Hi Carol,
It’s very interesting to hear your experience and comforting that what I’m experiencing is fairly “normal”. I had a similar experience with my last employer but over a different illness. I know it’s a tough call and they have to be consistent and consider employment contracts but when someone has been very I’ll it seems very harsh to…[Read more]

Finally ……. My story, albeit in 2 chunks, seems to be there. I have no idea what went wrong, there seem to be many other longer posts than this so any hints would be helpful.

Thanks

Keith

Before I finally give up on trying to post my story, one final attempt at adding what’s been chopped off.

A second biopsy confirmed that I am ready for SCT and I am referred to the Royal Marsden. By the way, my paraprotein level had dropped as follows during my 6 months CDT…. 57 33 21 15 8 4 2.

Mar 2014
Had my cyclophosphamide chemo just over…[Read more]

OK, this is ticking me off now…….

I’ve just written it all again and the same has happened. I’ve just realised it may be my smilies that are corrupting it. Luckily remembered to save it this time.

I might try and do a complete new post and remove the smilies.

If you want to respond, please do so on version 2.

Keith

OK, second attempt to complete my story…….

Feb 2014
A second biopsy (I really don’t like these

Err…… Why has my post just been chopped off when I submitted it ?????????

What a pain, I’ll have to try again ….. Grrrrrr