Great news Rosie, that’s made my day.

Keith x

My wife and I have found World First to be very good as they base the premium on your exact condition at the time and not just a generic “cancer” rate. My myeloma went into complete remission last August and my wife has had bowel cancer which metastasised to her lung last year. We have a joint multi-trip worldwide policy for just under £500 a…[Read more]

I hope all goes well today Tracey, it’s the worst time for you both until you get some solid fact from the consultant about Tony’s condition and treatment plan. I’m sure you’ve looked around this forum and read plenty of experiences here (including mine) many of which have very positive outcomes.

My original diagnosis came from severe pins and…[Read more]

I had my HDT-SCT at the Royal Marsden and would echo that they were just wonderful. If you do end up connected to Marsden I think you’ll find that Myeloma is treated in Sutton. I was told I’d only end up in Chelsea if I had a bad infection and needed blood transfusions (as far as I can remember). Needless to say I didnt.

Good luck with what’s…[Read more]

That’s great news Phil, well done! It’s always great to hear about long remissions (mine’s only 6 months so far) as that’s the holy grail we’re all looking for.

Keep well,

Keith

Hi Val,

I had my SCT last April and was fit enough to travel by June. That was a trip to Austria and I don’t think my consultant would have been as happy about it if I was headed for Africa or somewhere with health risks and poor medical support.

I’ve just done a detailed reply to Amanda ( see General / Stem Cell Transplant) on my transplant…[Read more]

Hi Val,

I had my SCT last April and was fit enough to travel by June. That was a trip to Austria and I don’t think my consultant would have been as happy about it if I was headed for Africa or somewhere with health risks and poor medical support.

I’ve just done a detailed reply to Amanda on my transplant process so have a read there.

All the…[Read more]

Hi Amanda,

You’ll know by now that everyone’s experiences vary from one to another and I’ll be no different so here goes my story.

I was diagnosed in Aug 2013 when I was 62 and my paraproteins were at 57. After 6 months of CDT they went down to 2 and I was ready for SCT. I read up about the process which scared the hell out of me but as things…[Read more]

Hi Amanda,

You’ll know by now that everyone’s experiences vary from one to another and I’ll be no different so here goes my story.

I was diagnosed in Aug 2013 when I was 62 and my paraproteins were at 57. After 6 months of CDT they went down to 2 and I was ready for SCT. I read up about the process which scared the hell out of me but as things…[Read more]

That is just fabulous news Rosie about the Bence Jones, you must be very relieved. I hope the good news keeps coming …….. let me/us know.

Big hugs

Keith

That us just fabulous news Rosie about the Bence Jones, you must be very relieved. I hope the good news keeps coming …….. let me/us know.

Big hugs

Keith

How come you absolute low-life feel that it’s appropriate to post this crap on a cancer related website.

I pray that one day you don’t find yourself in a position to use this forum for the purpose for which it was intended. But if you do then my theory of “what goes around comes around” will be correct.

Please go away (other wording would not be…[Read more]

Hi Katie,

Just to say that during the whole of my time with MM, I was only ever given my paraprotein count. Your mum may or may not get other counts like Carol (light chains etc) but as far as I know (not much!) it might depend on her treatment regime.

Carol, do you know why you had these readings as part of your monitoring?

Keith

Well Katie, that’s great and positive news from Carol isn’t it? I’m so pleased to hear that you’re coming up to your remission anniversary Carol. Are you still having tests and checkups in Oz?

Katie, the immediate period after the transplant can be a bit tough and like I said before, your mum really doesn’t need to get into the details of that…[Read more]

Hi again Katie,

My transplant was part of the plan from day one. As far as I know they put a person on a set of drugs to suit their condition. In my case it was CDT (Cyclophosphamide, Dexamethasone, Thalidomide) which you take on a monthly cycle when your paraproteins are measured to track how they’re decreasing. As I said, they want to get…[Read more]

Hi Katy,

First of all I’m really sorry to hear about your mum but you’ve done a fantastic thing by finding this site and posting your questions. The Internet is a scary place to research any illness as you always get such a wide view of opinions but at least this site comes from people who really understand their condition.

The next bit of…[Read more]

I know what you mean about taste, I had a similar experience. I don’t think there’s much you can do about it except find those things to eat which aren’t as bad as other things. I found sweet things best.

As for you jumping down your wife’s throat let me leave you with these thoughts as I also had my occasional “moments”. First off, it’s not…[Read more]

Hi Alan,

I was in your position last April and whilst we’re all different, my process was much less stressful than I anticipated.

First off, if (like me) you’re not a big fan of the biopsy process then ask for sedation. Let them know in advance as the effort for them is slightly more, so you won’t get it on the day if you leave it until then to…[Read more]

That is such a pain Rosie, just what you needed eh? I know it’s going to be on your mind but don’t get bogged down with worry, the results might be much better than you expect so try and hang on until you know.

Thinking of you.

Keith

Let us know how you get on With the MRI Rosie …. all the best.

Keith x