Hi Lisa and Mick

Sorry you had to join, but pull up that comfy chair and ask away, I had CDT in 2009 leading up to SCT Dec 09 and am now Drug Free, dont worry too much about not getting a SCT as we have people on here that cant do a SCT and are doing great without it 😎

Am afraid the chest thing is something we have all had to get used to,…[Read more]

Hi Tina
Sorry you have A rash, I had a rash during my CDT but I have had a skin problem for years it just kicked in worse during treatment.

Good luck and hope the rash soon calms down.
Love Tom Onwards and Upwards xxx

Hi Susan
Yes I was on Thal, I got through it pretty well to be honest, yes I went on sick for a year had all it done in 09 and am now Pleased to say drug free and still in remission, my ext visit will be 14 Feb,

Keep well and hope it all works well with little or no side effects
Love Tom Onwards and Upwards xxxx

Hi Jenny

Well I was on CDT and was pretty much the same, I went on sick in the May (that would have put me nearly finished. My third cycle, so am sure it's same as mine.
Good luck with it and hope it puts you in remission.

Love Tom Onwards and Upwards xxx

Hi Keith

Good first week, keep your eye out for constipation that was a devil for me if I got lax (no pun intended) and never took the mess to keep me regular.

And don't forget the water, I would say a little more than 3 Ltr a day as I suffered urinery infections and was told to drink more.

Keep well Keith I did 5 cycles then SCT.…[Read more]

Hi Keith

Well done, that's one down. How many are you expecting?

All best wishes.

Maivs x

Hi Tina

Very interested to hear you are on the Trial. Can't remember, did you have a SCT?

Sorry you have got this annoying itchy side effect! Hope the alternative treatment works for you. I wish you a long and event free remission.

All best wishes.

Mavis x

Hi Jenny

Sorry you are feeling so crap at the moment. Sorry I don't have any experience of your particular regime, but wanted to send good wishes. I'm sure that someone will come along with some sensible advice, but do let your medical team know how low you are feeling so they can help.

Very best wishes.

Mavis

Hi Susan

So sorry that you have been diagnosed with MM, but welcome to the Discussion Group, we aren't a bad lot! I find it very helpful.

I finished six rounds of CDT on October and responded very well and am currently in full remission. I just had two Thalidomide tablets each night. I had always decided not to go down the route of SCT…[Read more]

Hi Phil
I have a Medic Alert bracelet, which also comes with a small credit card info leaflet.
My reason for using this system is that the bracelet clearly displays my diagnosis, stem cell transplant ,risk of GVHD ( graft versus host disease if given non- irradiated blood) and my allergies.(11 words total) with my registration number in the UK…[Read more]

Hi Susan

Welcome to the discussion group. Although I haven't been on here for a while I can vouch for the valuable support that being able to air concerns with others can bring when facing daunting situations like you are.
I have MM, had 4 cycles of CTD before my Stem Cell collection and transplant in April last year. Being 9 months 'down the…[Read more]

Hi Megan
I was given "The Card" but I don't carry a wallet and the bracelet works for me.
And it's important that we have the information about our bloods and our MM

Tom xx

Hi Susan
A warm welcome to the site.
Am sure I can't advice you what to do, but I can tell you I was on CDT then onto a Successful SCT all in 2009, I am now in remission and drug free and still doing well , it has had it's moments over the year and a bit to be fair but it is a doable .

Where are you being treated ? As some on here might be at…[Read more]

Hi Susan

Sorry to hear you have Myeloma,but welcome to the club,it is very mind blowing when they tell you!!!,i cried when our own doctor told us,my thoughts were how do you control a cancer that goes all round the body in a blood supply.I had a lot to learn,and i have to say it takes awhile to take it all in.

My husband is on the Myeloma X1…[Read more]

Hi Phil and Tom,

Phil – thank you for asking the question and thank you Tom for your response. My husband Phil does not wear any jewellery but I have been worrying that carrying a card in his wallet may not be good enough, now that he is home from his SCT I need to research this a bit more and convince Phil that a bracelet is the way forward…[Read more]

Hi Tebebe

Your more than welcome, am please you found a site that is specifice to you, but pop in every now and then and let us know how you are getting on.

Love Tom Onwards and Upwards xx

Hi Phil

I have an SOS Talisman Bracelet Like one here ::::http://www.medical-bracelets.co.uk/SOSBracelets_Men.shtml

Got mine Localy and it has a "Fold up sheet" inside that gives you space to put Contact details, allergys and things that need to be told to medics before treatment starts, hope you never have to use it 🙂 but it puts my mind…[Read more]

Hi Paul and Gayle, so sorry to hear about your latest results. I have sent you a private message. Take care Andrea xx

Hi Wendy, good luck with your tests. Hope you manage the triathlon! I am a newbie here so find all of you very inspirational. All the best Andrea xx

Hi Sarah Jane

You seem to be in very good hands and coping really well. Good luck with the rest of the treatment and stem cell harvest. My pp are stable at just under 40 and I am still under close observation. I have read in depth about myeloma so feel prepared! Also knowing that everone here is so friendly and supportive is very reasuuring.…[Read more]

Hi David

Sorry that you may be relapsing and I can't give any adviceoin other treatments. Frank is 70 in Aptil and waiting for date for SCT. Consultant told hm that they would not give him another because of his age. The harvested 7,6 million cells.
On news few weeks at Macmillan were confronting the government saying they were denying…[Read more]