Thank you all for all your tips on blood results. Consultant was more than happy to give me past results and as her printer wasn't linked up I sat there and scribbled them down, still some blanks still to fill next time but a good start.

Start of Cycle 2. 3. 4.
Haem: 12.9 13.1. 12.7
WBC: 4.1 3.6 2.7
Plate: 215 124…[Read more]

Hi Tebebe

Sorry you had to join 🙁 us but a warm welcome anyways now you are here.
Seven Children wow I have three Sons all grown up and yes I/we found it pretty easy to tell the kids as we had been through it before with my Young bride (breast cancer) but I know its hard, it depends on how old the Children are as to how much I would tell…[Read more]

Hi Andy and all

Pleased your doing Good Andy and I as a MM'er super glued my fingers crossed lol (only joking lol) your doing well Andy and am sure its a blessing for those that have had to start new treatment to know people like you do well with it 😀

Keep going strong My Friend and stay strong.

Tom Onwards and Upwards x

Hi Peter

And I got this in my Email :::::

PeterJames has posted to a discussion you're monitoring:

Subject:
RE: Harvesting for SCT

Message:
Hi to one & all out there
Came into the Christie yesterday , set upon straight away , Hickman , line installed & drugs into me in quick order
Late pm had my dose of killer chemo , but…[Read more]

Hi Lesley and Jill

Sorry I cant help on this one, Just wanted to wish you Luck.

Love Tom "Onwards and Upwards" xx

hi Steveo

my kidneys were working only at 20% when we discussed SCT they still are I was told there was every chance with the chemo that went along with SCT it would probably put me on dialysis I didnt want to take that chance so no more was said hope this helps you
Regards Jo

Hi

It is so nice to see such positive reply,s to Mari.No matter how many people tell you there is light at the end of the tunnel,you find it hard to believe until you can see it for yourself plus we all know how this illness can change to become a fight for your life.no matter how old your children are,you still worry how things will turn…[Read more]

Hi

I can only tell you about my hubby,admitted with AKF,but kidney function improved,after a few blips,pneumonia which left him with wholes in his lungs plus blood clots,resulting in injections for 8 months, finally,referred to Kings for SCT.

Had SCT,but a reduced dose of chemo,enough to do the job,it worked SCT successful .
He had 2…[Read more]

Hi Tina

And a well done young lady,am sure you will get a Long Remission out of your treatment, good luck Tina.

Love Tom Onwards and Upwards xxxx

Hi Tina

Great to hear about the PPs. It is always encouraging to read positive things. Good luck for the trial everything crossed for a loooooong remission 🙂

Love Jean x

Hi Liz and Kev

Yes Elaine and I are doing great Thanks 😀
Kev will have same as Elaine the "Tattoos" for his R/T Elaine had 25 sessions of R/T in 2008 and did pretty good with it 😎

Its like your rink here in Sunny Scuuny am afraid, I just hope the dog dunt pull me over when i take him for a walk Lol.
Good Luck and am sure the RT will…[Read more]

Hi Tom,
Good to hear from you how are you and Elaine? Hope you had a good Xmas and new year.
Kevs all sorted and ready to begin his radiotherapy they did all the marking out and begin tomorrow so hopefully this will bring him some pain relief, I'm just hoping the weather doesn't get any worse, the road outside is like a ice rink, how you coping…[Read more]

Hi ANdy
Superstition or not fingers crossed that this treatment is the one for you as you must of read SCT is not now concidered an option by a lot of at least American doctors less is more! SCT was not an option for me either so i am hoping that first CDT which gave me 3yrs6months remission now on Velcade Sub Q hope it works just as long have…[Read more]

Hi All

Well who has put a Great Photo on 😀 you both Look great and yep you scrub up real well (not that either of you need to )

Love iccle ole me xxx

Hi You two

Well I hope he can get infection kicked out and get on with treatment,its bad this time of year no matter wher you are some one is infected with somthing and are only to keen to pass it on 🙁

It looka like the revlimid Is working 😎 so it is good if infectios is sorted.

Get well Kev and keep away from those with germs…[Read more]

Hi Rob

Do not worry. About the tube it is the least of your worries,one would have been fitted later for SCT it actually makes your life a lot easier,on normal treatment they go in to veins every time often they collapse,some like my husband it takes a number of tries,so a centreline sounds much better.

If you are looking at all…[Read more]

Hello Rob,

My husband Phil was on the the PADIMAC trial at St. Bart's in London. He had six cycles of dex-dox-velcade that finished in October. Phil has just returned home from his Stem Cell Transplant. If you have any questions about PADIMAC please let us know. I think it depends on the hospital but Phil did not actually have a line put in…[Read more]

Hello Maureen

velcade is not so bad as for dex i take 20mgs twice a week Ians consultant can ajust the dose if needed but its best to try and take the full dose if possible he may be able to tollerate 20mgs
Regards Jo x

Hi Megan and Phil

I've just read this post for the first time and wanted to say Welcome Home Phil. It made me cry reading the post, just because it brought back memories of the journey that Nick and I went through 18 months ago. I remember so well, those first steps outside of the hospital room and what a HUGE achievement it was 🙂

As…[Read more]