Hi Sal

Sorry we have to welcome you to this site on your Dad's behalf. In view of his age, I do hope someone will have agood chat with him about what treatments are realistic and will still give him the best quality of life possible. I am nearly 68 yrs and was diagnosed in 2019. My approach is to have the lguhtest treatment possible while…[Read more]

Hi Heather

Welcome to you and John from me too. I do hope you got on well with the Consiltant yesterday and understood what he was saying. You obviously have a lot to cope with as well as a lot to contend with. This is a strange illness to come to terms with.

Like John my myeloma was diagnosed after lots of treatment for arthritis. I have…[Read more]

Hi Keith

I can understand why you are feeling down and the whole thing must be so tiring ,ask you self how you would feel this time of the year without having MM.most people feel a bit washed out,cold weather rain,and with you the added trips to the hospital,
I would try to look on it as just a blip,we all know how even a cold can effect…[Read more]

Hi Heather
Your Welcome, I am not sure which I have I am just pleased my consultant knows he he.
Love Tom Onwards and Upwards xxx

Hi Megan and Phil

Don't nick it just take a photo of it,cos if you nicked it you would only bump into it at night he he.
Doing good you two keep it up

Love Tom xxxx

Hi Tina
13 weeks is not that long to be fair I am oh lord knows how many months post I am and thirst is a Devil for me. And as for the sleep I also have a nap in afternoon.
It just takes time Tina.

Love Tom Onwards and Upwards xx

Hi Peter

How you doing ? All set for it. It will go smother than that pint we are due .

Tom Onwards and upwards

Ha ha I bet it is, I hope you don't get chemo brain he he

Hi Peter
Just dropped in to wish you a smooth hassle free transplant. Look forward to reading your progress. Frank is waiting for the phone call.

All the very best
Love jean x

Hi Peggy,

I hope you were released from hospital today and that you are now back in the comfort of your own home. Remember to take it easy and not rush into doing too much.

Megan

Hi Peter,

The one thing Phil has used the most since he has been in hospital for his transplant is a radio. Phil finds it hard to concentrate enough to read or watch something but the radio is a nice distraction in the background that you don't have to focus on too much unless you want to. It also make the room feel less lonely when you are…[Read more]

Hi David

You would have been first to put your hand up.David,we all want the same thing,a cure,David Ian sure before your time is done,new trials will be coming along,and I believe passionately this is the way to a cure,saying that it,s Slim who takes the Drugs

My admiration goes out to all myeloma patients,even the ones who decide no…[Read more]

Hi Peter,

Just to wish you good look with SCT,not very nice at the time,but if you achieve extra time it,s well worth it.

A few tips for you,take your own mug in,as hospital vessels not big enough,take old clothiers that can be dumped,I can assure you if you do have any accident s your wife will not want to take your clothes home,physo…[Read more]

Hi Vicki and Colin,

My posts are no longer everyday because the last bit of the transplant seems to be just a waiting game for the numbers to go up, Phil is still having the GCSF injections every day but luckily, so far, he hasn't experienced any of the pain Colin got towards the end of his transplant. I am also finding I am more tired now I…[Read more]

Hello Chris,

I will be keeping a close eye on Phil when he gets home to make sure he does not overdo it. I was just saying to Phil today that there is no point spending all this time in hospital and finally getting released only to end up having to go back because you try to do too much too quickly. Luckily (?) the weather isn't that great so…[Read more]

Hi Tom,

I am thinking of smuggling the IV stand home with us as I think Phil will miss it (not!) but we could use it as a coat stand 🙂

Megan

Hi Helen,

We are definitely looking forward to some trips to the south west this summer! We have spent the last two days discussing what we are going to do to our house now that we are staying in London and it has ranged from just decorating to a full on refurb including moving the stairs, knocking down walls and extending into the loft so we…[Read more]

[u]Day Twenty (Day Sixteen)[/u] and [u]Day Twenty One (Day Seventeen)[/u]

More of the same. Phil is ready to come home now, he is tired of his windowless room and he is tired of hospital food. The funny thing is the evening of Day Nineteen Phil was offered a room with a window but he decided not to move, he didn't want to risk any germs that…[Read more]

Hi Steve

Pleased your doing well and as for getting dizzy if it was me my young bride would tell me I was born dizzy lol.

Keep fighting it steve.
Happy new year.

Tom Onwards and Upwards