Hi Trish

Glad that you and Peter had a great time. It sounds wonderful and congratulations on your 40th. Grandchildren are brilliant we are looking forward to our next in 5 weeks. Hoe Peter goes from strength to strength

Take care
Love Jean x

Hi Eve
Yes thats correct you cant smell it lol. ye reflection is hard even for us in remission? but hey ho.

The site is great for old and new members as out treatment changes as some one will have been through it before.

Pleased you like the Onesie my youngest Son bought it for me as a christmas Pressie 😀 and yes he likes a laugh 8-)…[Read more]

Hi Peter and Trish

Great to read you all had a great time I bet it was worth that long flight 😎 and trust me May will be here before you know it enjoy the twins.

Love Tom "Onwards and Upwards" xxx

Hi Sal

Am sorry your Dad has been Diagnosed with MM. your Dad has done well getting it found out as soon as he did.

What Hospital is your Dad getting his treatment from (some on here might be in same hospital)
What treatment is your Dad on or going on?

Good Luck to your Dad in his treatment and stay strong for your Mum also.

Love…[Read more]

Sue

You are correct this site is a godsend for us all, Patient and Carer.

The One I would advice anyone to phone would be 999 they would be my first call.

Honest Sue please ask anything you feel you need to know more about I know it wont be easy for you but am sure if you feel its important then it is.

Stay Strong

Love and Hugs Tom xxxx

Hello Dai

It is nice to hear you are doing well,with this new treatment,I just want to wish you well and to let you know although Slim has moved to remission,you are never very far away from our thoughts,I know the last few months have been hard for you, I wish you a good 2013with not many hiccups. Love Eve and Slim

Hi Tom,

With baited breath and anticipation,now I know why you drink vodka,you cannot smell it,( only joking ),it is the reflection time that hurts,that,s why it is so nice that Tina can reflect and enjoy the memory.

This is what is good about this site,people understand what you are going through plus the feelings which do come to the…[Read more]

Hi Megan and Phil
Still doing good as far as i can see 😀 , RE the hair thing well I got the Nurse to shave it in Hospital and when I came home I used my Leccie Razor and took it to the bone :-S and kept it like that till it started to grow back, and it was bloomin cold but a good hat sorted that out.

Megan you do right in resting as you…[Read more]

Hi Eve
And a Happy New Year to you and Slim 😀

I know what you mean when you say you look back each new year, I also do that but I also look forward with baited breath and anticipation 😎 but yet again I still worry during every new pain cough/cold and or ache its normal (or so am told) I also try and shove the MM to the back of my brain…[Read more]

Hi Tina and Tom,
Happy New year to you both,this New Year seemed very strange to me,as We were going backwards in time on our journey home from NZ,and a;ways at new year your mind goes back to the last year,and you cannot help but ponder and reflect about the good and bad of the year,and wonder what the future year will hold.

the year 2011…[Read more]

Hi Tom, Jean and Frank, Vicki and Colin,

I do find it helpful to post as it allows us to sum up each day and when things feel like they aren't getting any better Phil and I can look back at previous days and see how far we have come. It is nice for the neutrophils to be rising although they aren't in a hurry, still 0.1 today, but at least the…[Read more]

[u]Day Seventeen (Day Thirteen)[/u] Hair No More

When I left Phil last night he had hair, today he did not. There is still a little bit left on the top of his head but effectively it is gone. We had been told and had read that all of his hair would fall out. We thought everybody has a different reaction to things and Phil had lost some hair…[Read more]

Hi Suzy

I had an itchy rash after my SCT but it soon settled, I have had exma for many a year in the winter months and as I had SCT in December I was on top of it straight away.
Hope hubby is soon sorted.

Love Tom Onwards and Upwards xxx

Hi Tom. Think that is a good idea about dedicated thread. Thanks for PDF file

Megan hope Phil is feeling bit better today

Love Jean x

Hi Megan

So so good to read that Phil has turned the corner. Bloods sound good. Frank has no date yet just sitting by the phone. Your posting and others on stem cell transplants are so useful. I have a little notebook that I jot down tips and advice . So thanks to all who have contributed

Megan hope Phill is home soo enjoying marmite on…[Read more]

Hi sue
Am pleased Xmas was ok for you, this time of year is difficult for us all and I send you hugs during those dark moments (( hugs )) am not sure why you were both told how long?? As it doesn't sound like it has helped.
Stay strong.

Love Tom xx

Hi Tina

I am pleased you had a good time at your Brothers wedding, it's brave picking this time of year for the wedding.
It's a beautiful place to live/visit. But Ice cream. Brrrrr.
Keep having god thoughts Tina.

And my best wishes for you this year.

Love Tom xxxxx

Hi Dai
I hope you have a good run on this Dai, and Rosie seems to be doing ok on it 😀 .
Like all treatment it's a listen to your body and you Dai are a good listener 😎
Good luck with it Dai

Happy new year to you and Janet.

Tom Onwards and Upwards. X

Hi Helen,

Myeloma twin, I like that!!

It is amazing how annoying an inanimate object can be but the IV stand is the most hated thing in the room, luckily it has spent all of today in the corner unused.:-)

Megan

Hi Tom,

So far the infection seems to be getting better so fingers crossed he will stay healthy now. The doctor seems to think he may be let out by the middle of next if his counts carry on in the upward direction.

Happy New Year to you and your young bride Elaine.

Megan