Hi Andy,

Phil and I are relatively new members and we have found the forum very useful, it is so nice to know you are not alone and most things we have experienced some one else has been through before. It is also nice to read the good news because as newbies it can all seem a bit overwhelming at the start of the journey.

I hope the RCD…[Read more]

Ann and Pete,

Good luck for tomorrow, hopefully the cells will behave themselves and you will get enough. I'm glad it went well today.

Megan

Ann and Pete

Good luck for tomorrow. Everything crossed 🙂

Love Jean xx

Good luck from me Peggy. Hope all goes well
Love Jean xxxx

Hello Megan
I have some PN which is unconfortable but not painful we have a foot machine that puts electrical pulses in the foot it does help i also rub in coconut oil thats good as well hope this settles for you husband i expect he can do with out all this
Regards Jo x

gOOD Luck Peggy

I hope all goes well for you and you have a successful SCT
rEGARDS Jo x

Hi Christine,

I will hopefully be starting a new post tonight about Phil's auto stem cell transplant but I don't want to jinx things by posting it too early! We are going to St. Bart's this afternoon and provided they can find a bed for Phil he will be in for his transplant. If no bed is available we will come home and try again tomorrow.…[Read more]

Hi Christine and Chris,

I am afraid we have not found a magic wand yet but just wanted to offer Chris my sympathy as I know how annoying it can be. My husband Phil had six cycles of Velcade sub-cutaneously and during the second cycle his fingers tingled a bit but that went away. At the start of the sixth cycle Phil's feet became very numb and…[Read more]

From me too I wish all my friends a happy Christmas and a very healthy and happy new year. My thoughts too are with the families of all the lovely friends that we have lost this year. May 2013 bring even more positive news on MM

Merry Christmas and a HAPPY HEALTHY NEW YEAR to all
Love Jean xx

Hi Sue
Hope you are all doing ok and Michael is having the pain under control, I am pleased that you have got scones and a new friend.
Love and hugs
Tom xxx

Hi Andy

Just thought how nice your welcoming message was. I joined the forum in August and have attended the Cardiff info day. I am asymptomatic but followed closely at clinic. After reading these posts and meeting people I feel in a much better position to deal with whatever happens in the future knowing there is always someone here who can…[Read more]

Dear Sue
I read your post on the day it went up and wanted to say something to you but was scared that I would say the wrong thing. I pray that Michaels pain is under control and that God gives you strength. I'm so glad that your neighbour came round and now you will have someone that you can talk to who is nearby.
I hope you and your family…[Read more]

Aww whats this busy iccle bee missed this time??

Onwards and Upwards xx

Hi Gill

I nearly had a fit when I saw these postings this morning. Didn't know what to do about them. It is a disgrace

Gill how are you doing? iIthink about you often
Take care
Love Jean x

Hi Sue

It must be very hard for you at the moment ,people do not know what to say,must find it very hard to send a card,wishing you a happy Christmas,but as Gill said we do understand what you are going through. At least you have your daughters around,I would suggest if you have a good friend reach out to her,no one wants to upset you,but if…[Read more]

Aww Sue

I am sending you loads of Cyber Hugs Girl ((((HUGS)))) as that is all I can do from this distance.

I dont know how you feel watching Michael being in that much Pain and i dont understand why he is in pain?? am sure they must be able to stop the pain?.

Am sorry you haven't heard from folk for a bit am sure that would help you…[Read more]

Wonderful News Wendy, Just what we need to throw us into the week end.

I know its a worry every time we have a bit of a grumble but its best to be checked out 🙂

Stay Well Wendy

Love Tom "Onwards and Upwards" xx

Great news Wendy well done so uplifting to read good news
Jean x

Hi Vicki and Colin

Good to hear from you and glad that Colin is on the right road. What terrible news about Colin's dad. It's never good to hear news like that but at Christmas it just seems so poignant. I do hope you have a brilliant Christmas. I'm a bit worried (there is no satisfying me) this is the best Frank has felt in a long time. He…[Read more]

Hi Emma and Mum

Sorry Mum's got a poorly mouth, I was told to use a soft tooth brush during my treatment on CTD and I always have used mothwash but used it four/five times as much as i do when on treatment.

Get the Nurses to get the act together I had a chart for all my drugs to take at a certain time I would make sure that your Mum is…[Read more]