Thanks Pat for your greetings

I am glad the experience was ok and you are reponding well fingers crossed for 6 cycles not 8 I am not doing to badly on the velcade but it does knock my Hb out so have had a couple of transfusions I hope you and yours have a lovely christmas and you can keep well keep in touch I have a big furry brown fleece on…[Read more]

HI Wendy

saw on your face book no PP really good news you can relax a while yet
Regards Jo

Hi Sue

Welcome from me as well. I know you don't want to be here but you will get the support and friendship that you need. Ken has had a rough ride but David is right this d**n disease is so individual. My husband smouldered for 6 year and started treatment in June. I knew about the Dex and dexitude from the postings on the forum but when…[Read more]

Hi Babs

I want to salute you and all those who take part in these Trials. You do such stirling work for all of us. I just hope that, following on all the horific side effects, that your drug combination does bring on a long remission for you.

Lots of love.

Mavis x

Hi Terry

Like Jean, I can't offer any information but just wanted to show some solidarity to you in your struggle. Do hope the funding comes through and the Bendamustine does the trick. I know Dai is starting on it soon so should be able to give you some feed-back eventually.

Congratulations at keeping on with the car restoration – she…[Read more]

Hi Dai

What you say seems so much sense. I wonder how we can make this particular opinion heard. Is this something Myeloma UK could help us with.

In the USA they have telephone ring rounds with Consultants where such issues can be raised. I guess that here the Consultants are so over-worked that they haven't the time for such luxeries.…[Read more]

good luck Pat

I hope all goes well glad you are ok on the velcade I have just started second cycle not been too bad except it knocks out my red blood cells so i have had a couple of transfusions keep well and strong 😛
Love Jo xx

Hi Peter

this is very interesting to me as I havnt had an SCT
Regards Jo xx

Terry what a terrible terrible time you have had. Sorry I can't help with any info but I'm sure someone will come along who can help. Best wishes to you and loved the car 🙂

Love Jean x

Well done Dai, I am not the only one on here that hopes it works a treat for you Dai with little side effects.

Keep strong and stay well

Tom "Onwards and Upwards" xx

Hi Carol

Sory you have relapsed and i wish you luck on your 2nd SCT and say a big thank you to your Brother from me am sure its better than a scarf for christmas 😀 Lets hope this one will be better.

Love Tom "Onwards and Upwards" xx

Hi Mike

Well am sure the thecko stuff will all fall into place am afraid to say its a long haul this one M8, but i am happy if my Dr is happy 😀 and I feel well 😎

Good Luck in your road to remission

Tom "Onwards and upwards"

Hi Wendy

Am sorry you are having Pain 🙁 and I hope they soon sort it all out for you.

Good luck for friday

Love Tom "Onwards and Upwards" xxx

Hi Emma and Mum

Well I bet your all pleased that a plan has been hatched and that your Mum is Happy with it 😀

Its Going to be a hard slog for you to go and visit at Hospital so Emma you take care of your self while your Mum is in hospital and getting constant help sit back and breath 😎

Just Make sure your Mum does not get too comfy…[Read more]

Dear Emma

Glad to hear that a pathway has been decided for your Mum, and that, although not the brightest news to be in hospital for four months, at least she will be in the "safe" place.

Do hope the chemo does its magic during this time of waiting.

Lots of love to all the family.

Mavis x

Thats Great News Michelle

Another Onwards and Upwards 😀 we are soon gonna need a bigger room 😀
Long may it continue.

Love Tom "Onwards and Upwards" xx

Hi Peter

Thanks for the post. I shall look forward to hearing the link when the lounge is Christmas preparations free! Gordon has just put the first forty lights on our tree!!

I am always interested in what Dr Berenson has to say on this subject. I am one of the "less is more" folk and decided against pressing for a SCT. I guess age has…[Read more]

Dear Dai

At last some really good news from you. I couldn't be more pleased. You so deserve for things to go well now and I hope that Bendamustine breaks all records in its positive effects on your MM.

AND, I know what you mean about keeping Revlimid in the back of your mind for the future, but hopefully, after the Bendamustine you won't…[Read more]

Dear Jet

Have been following your campaign. Do hope the desired young potential donors are rsponding.

And from a Christian, Happy Christmas!!!

Much love.

Mavis x

Dear Michelle

What marvellous news. I do hope and pray you continue PP free for many years to come.

Have a very special Christmas.

Love Mavis x