Hi Wendy

Can understand your worries. Strange to be saying that I hope it is something like arthritis which I assume attacks folk with MM as well as others.

I get lots of bone pain and most are my arthritis, although I am riddled with lessions in my bones, including in my head! Trouble is, I find taking too many pain killers causes worse…[Read more]

Dear Mike

Just hope you have a lovely time with your family over Christmas to give you something to hold onto when you are having a grim time in the New Year.

Very best wishes.

Mavis

Hi Ann and Pete

Frank went today for the high dose chemo and starts the injections tomorrow . We were told that there may be aches and pains in back, legs, or chest. Nurse said this is a good thing as it means marrow producing cells!! We have to go back next Wednesday early in morning and they will take blood and we have to go to canteen were…[Read more]

Great news Dia

lets hope this is the one everything crossed keep well and stay strong
BIG BIG (((HUG)))
lOVE jO XX;-)

Dai some more great news. Well done!!! Take care
Love Jean xx

Michelle that is really great news. Frank is going for harvest next Wednesday. It is so inspiring to read posts like this. Thank you and have a fantastic Christmas

Love Jean xx

What wonderful news Michelle!

Long may it continue, have a fabulous Christmas!

Love liz & kev xx

Hello Dai,
Brilliant news! But I agree with you about the rev: being there to try again, I also hope the bendamustine works for you, good luck and take care Dai

Love liz & kev xx

Hey Emma am sending ciber hugs for you and your Mum I hope they will give you some comfort during this difficult time, I hope Monday works out good for you both and will sit and say "Gosh why did I worry about that"
so big big ((((((Cyber Hugs))))) for you both

Love Tom "Onwards and Upwards" ((((HUGS)))) xxxx

Hi Ann and Pete

Well I had two a day of the injections and the nurse bless her used the same needle left needle in and just changed the filler 😀
Side effects? pain in ribs and back for me for about two/three days and as the saying goes the more pain the better 😎

Hair well I lost mine shaved the head, lost all body hair cept eye lashes…[Read more]

Hi Ann and Pete

Frank is 2 days behind Pete. He is due on 19th (all goes well). So I will be following your posts closely and wish Pete the best of luck in the world. Ann we were having 12 for Christmas and the registrar sad no. So we cancelled. But we don't thing she is right. We are seeing consultant before the zap of chemo starts so will…[Read more]

Hello Vicki

I am sorry i cannot be me help but my thoughts are with you never give up stay strong
Regards Jo x

Hi Scott

glad you are doing ok on the Bendamustine as we are both in trouble with our kidneys i wonderd how yours are reacting to this treatment because it might be for me down the line
keep well
Love Jo xxx

Hi Jean

Well I have been known to watch Footy at the Club we drink in 🙂
I got three £5 notes for friends of ours that had George Best on limited edtions from Ireland a few years ago, so I do a fair bit re football memorabilia Ha ha not bad for a man that dunt do footy Ha ha

Off side rule :::: When a player is nearer the goal before the…[Read more]

Hi Tom

Well I had my transplant in December 09 I hhad Zometa infusion every four weeks in Scunthorpe General and that lasted 2 years.

I am now Drug free and in remission would i want to go on a trial?? if I am in remission I see no reason to take more drugs that would possibly give me side effects.

I was well and truly pleased when I came…[Read more]

Hi Emma

Like Vicki I cannot say anything that will be of help to you. But I know what you are going through and I hope you get some comfort that there are many thinking about your mum. And wishing her well. Good luck for tomorrow

Take care of yourself
Love Jean x

Hi Vicki

Thanks for your advice. At first I was a bit uncomfortable when people visited but not now. Frank is more important. I have the poor mans head turned. He went with sons to pub to watch United. He has the hand wash, wipes and I made him take first defence before he left the house and he has it with him. And I forgot the Manuka honey -…[Read more]

Hi Tom

Just to add my input on Zometa

I get daily emails from the Myloma Beacon with the latest news from America and Europe I am also hooked up to Andrew Schorr Patient Power and on occasions he talks to Dr James Berenson a leading myeloma expert
some time ago I recall a conversation regarding Zometa and how long you should be on it…[Read more]

Hi Jean and Frank

Well football :-/ am sure some of the men are crazy 😀 never liked it never understood it BUT two out of our three Sons are pretty good in the local teams and are well fought after at the start of the season to go onto other teams ??????? :-S
And tell Frank I have a Footy shirt that was Mark Wilson's (played for Man U)…[Read more]

Hi Sarah and Henry

Well one of the ways to go is Onwards and Upwards 😀 and we also have Vasbyte and the famous Whatever it takes 😀 and the oh lets get on with it saying 😎

I hope you dont have to take on extra work to get what should be given as a matter of course (dont do mucky chimneys lol)
And a well done to your Daughter on her…[Read more]