Hi Liz and Kev
Yep its Cold here these last few days but as for the hair I have plenty of hat/caps to keep the Bald pate warm Lol

Hi Mavis
Many Thanks for that and happy and cheeful is best for me i dont do Sad am pleased to say 😀

Hi Phil Jan and Sam 😀

Thanks for that and it is Great News and I have been told the next 12 years…[Read more]

Hi Emma and Mum

Am so sorry your Mum has had a fall and I hope its soon sorted.
Your Mum is a fighter as I recall when she found out about the MM she said "Onwards and Upwards" and that Emma speaks volumes about your Mum's strenth.

I do hope the consultant ask's your Mum what she wants and just lets you sit and listen because it is your Mum…[Read more]

Hi Tom

May I, alonside everyone else, welcome you to this Site – sorry you have had to join – so young too.

I am 67yrs and, like you, had a plasmacytoma needing surgery followed by radiotherepy. I them had approx 16 months before next crash! Then followed six cycles of CDT. I am now PP free and hoping for a long remission and working on…[Read more]

Hi Emma

Sorry your Mum is having such a grim time. I can understand where she is coming from about quality of life.

One thing, as they have already identified blood clots they will be extra careful in any procedures. I have had four hip ops – at least they can do them by epiduaral. I had such dire warnings before my forth operation (I was…[Read more]

Hi Tom

Happy many returns for your stem cells!!!!

Thank you for your unfailing cheerfulness.

Best wishes.

Mavis x

Hi Dai

Just caught up with your news. Sory about the Revlimid, but maybe the Bendamustine will be even better for you. You say that you have only had eight months from Rev, but in fact you are still going strong – well strong in the fight anyway.

Hope the Thalidomide doesn't cause problems this time.

Rooting for you as always. I'm…[Read more]

Hi Dai and Paul

Dai thank you for your post – you spoke very eloquently about Paul. I know we have lost very good friends to the this awful disease but I think it hit hard because as you say he was doing so well and was so young and just something that I never expected. I will make sure that Frank takes recovery very slowly and just pray that…[Read more]

Hi Charlotte

I can give you Franks experience. He was diagnosed in 2006 with Smouldering MM in Sept 2006 and was monitored every 3 months. Bloods and everything were fine and the he took a pain In his side. He had it for 18 months and was sent for an MRI which didn't show up anything Pain went on and it was decided to have a PET scan (I think…[Read more]

Yes Helen a complete bolt from the blue. Doing the blast of Chemo on Tuesday and then injections twice a day till the following Wednesday and if all goes well they will harvest on the Wednesday. No date for the cells to be put back as we were told that Leukemia and lymphoma patients get first dibs. It was quite a shock but we are seeing consultant…[Read more]

Helen thanks so much for the info. I am so glad that I posted my concerns on the forum as the replies, info and advice that I have had has made things so much clearer and put my mind at ease a little. I can't help but worry as my mind runs riot. The registrar had said that if he put the SCT of for a a time he may relapse andd then he would have…[Read more]

Hi Babs thanks for that. I am trying to get things straight in my head so I can give Frank Informed information. When I think of your post it does make sense to try and keep him infection free as possible. One of our sons tell s me that I am OCD when we have visitors they are made to cleanse their hands. I will pass your info on to Frank as it…[Read more]

Hi Megan and Ali

Thanks so much for your posts. I really appreciate the support. Don't know what I would do without the forum and all my cyber friends

Take care and thanks again
Love Jean xx

Hi Ali,

There is an appt: on the 17th to see prof: so if we don't hear anything
It will be at the clinic , upto now we've not heard so is that a good sign?

As for the snow missing us I was disapointed ! But it's feeling a bit like
Xmas been doing the tree and trimming the house up I love this time
Of year. Kevs had a better night last…[Read more]

Hi Jean,

Phil was not told to avoid people but we have found the advice and details a bit non existent since he finished his induction treatment! Most of what we knew about the harvest phase came from this forum 🙂

While Phil was doing the daily injections he actually did not end up going out much as they had to done at 4pm everday but…[Read more]

Hi Peter

Not sure if I am thick or what. Clicked on the link and it brought me into the site but can find no link to play the recording. I am very interested to hear it as Frank is going for SCT. Any guidance how to listen

Thanks
Jean

Hi Megan

iWeb we saw the registrar yesterday ( she wasn't the brightest tool in the box) but after she gave us the dates for chemo and harvesting she told Frank to stay away from people. Was Phil told this as well? We were talking this morning and Frank says he can't understand this as he is only having the one zap of chemo. Megan ani info…[Read more]

Hi Tom,

Phil has managed to keep his hair so far, it did thin out a bit during the first four cycles but since then it has stopped falling out and it was never noticeable that it was being lost unless you looked at his pillow!!

Work wise I can't really help. Phil volunteered for redundancy in January, we had sold the house and were moving…[Read more]

Megan, Vicki, Colin and Tom

Thank you so much for your posts I have followed SCT posts for some time but when it arrives on your door step its another story. Thanks Megan on the tip about bananas, I have started a note book. Hospital told us before harvesting for Frank to try and eat cheese and drink milk to build up calcium. My best…[Read more]

Hi Gill

And for that I am gratfull, yes am gratfull you mad it to the First talok at the Harris, and you are correct Stephen passing has not and am sure will not force you to move on as we all do things at OUR pace and not to fit in with this that or them.

I hope you go back and talk its better to talk to some one you dont know rather than…[Read more]

Hi Jean and Frank

Its a shame a lot of the Dr's and Consultant tell us how it is is if we have done all the study's he/she has done for the last 10 years or more :-S But hey ho am sure its what we have got to get used to (but mine is a slow talker and stops if he sees am confused Bless)

Hey I aint a Footie thingie?? what do they call them…[Read more]