Hi Dai

I hope they get back to you soon to let you know its been passed and can start it of soon (am the sooner the better type of guy)
As for the Thalidomide I was on Four Tabs a day (8pm) with my CTD. still got dodgy toes though Lol but if thats all I get then am Happy (ish)

Good Luck Dai

Tom "Onwards and Upwards"

hello Tom
i am sorry you have had to join us but you will find much help and advice here I havnt had any of these treatments or a sct I had CDT with 3yr and 6month remission have just started on velcade i chose not to have an SCT as my kidneys were very damaged and i didnt want to finish them off completely with the heavy chemo needed
Stay well jo:-)

Hi Vicki and Colin

Hope your back to work is going Ok am sure it helped Elaine when she went back to work after my SCT it gives her something else to worry about apart from iccle ole me Lol, Colin is just a mere male we never knnow when too much is TOO much till we end up in bed early nite shattered:-S and if Colin is like me he will never learn 😛

Tom, cold is an understatement, but as I type it is chucking it down me duck! And dare I say it's warmed up abit?

Take care Tom and you might want to keep hold of your hair all this frosty weather!

Liz & kev xx

Hi Vicki and Colin

"Look young for my age" Give over you will make me blush 😉 am sure it will last me a fair few years yet 😀

Party aint stopping yet and hair will be cut at week end ready for Grandson's Birthday Party 😎

Love Tom "Onwards and upwards" xx

Hi Ali
Thanks for that now i think my Vodka intake seems to beknown to all and sundry Lol, did you get the snow today?? we aint had none yet but its been bloomin cold today out on that river trent brrr

Love tom "onwards and upwards" xxxx

Thanks for your reply vicki & Colin,

The ABs seem to be doing there magic and he's chilling very nicely at the moment.
Hope Colin's continuing to get stronger and you take care too!

Love liz & kev xx

A warm welcome from one tom to Another 😀

I had CDT 5 28 day cycles if my mind serves me correct :-S leading up to a SCT all in the year 2009 AC 😉 done me ill bit and now am up and at em drug free and just had a few drinks on the 3rd December to celebrate my Stem cells 3rd Birthday 😎

Good Luck in you road to remission and trust me…[Read more]

Hi Jean and Frank,

Phil and I found things a bit confusing as well, we sometimes get the feeling that all the doctors and nurses assume the other doctors and nurses have told us things so it ends up that nobody tells us anything!!! Phil was just given his injections to take home and we worked out from the instruction booklet enclosed with them…[Read more]

Hi Tom,

Welcome to the forum. My husband Phil was diagnosed in May this year with MM at the age of 43. He has just completed six cycles of PAD at St. Bart's in London. His stem cells were harvested yesterday and the transplant will go ahead December 17th. With PAD he had very few side effects other than being very tired but not being able…[Read more]

Hello Ali

Kevs been in hospital early Sunday morning till Tuesday, he had a fractured sternum when he was first diagnosed in 2010
At the weekend he had a coughing fit and felt it go again, sat/sun early hours he was in agony so rang 999 his breathing was not good, once admitted discovered chest infection aswell! He is now home with ABs and…[Read more]

Hi Peter

ye no probs 😀 but still do the water thing lol.

Great to hear you got plenty of cells, flog em on ebay I would love to see that ha haha, as for the drink I went off it all during my CDT and it aint come back to what it used to be like :-/

Your Transplant will go great 🙂

Tom "Onwards and Upwards" x

Thanks Peter and they are doing great thanks and am sure her maj cant wait to meet me He he.

To be fair i have been a bit on the thin side on top ? (am sure that makes sense ha ha) BUT the top is getting thicker and thats the bit that tells me I need a Hair cut 😀 so for you all that are head.ing (no pun inteded):-D for that SCT just think…[Read more]

Thanks Jo 😀 am up for the many more to come and am sure my cells are comming with me 🙂

I will tell Elaine when she comes out of the kitchen Thank you xxx

Well
Dia
here we go again I think Scott is doing ok on this regime and Keith has just started they said this might be an option for me next if velcade doesnt work not thinking about that yet:-P what you really need is a break from meds lets hope this comes soon there have been really good reports about it its not a new drug its been used for…[Read more]

well Tom
🙂
HAPPY BIRTHDAY TO YOUR CELLS AND MANY MORE TO COME WHAT SAY SAY YOU
lOVE TO ELAINE AND YOU:-) lOVE jO X

Hi Peter no need for royalties am sure just get through it with a sence of humour and a big smile 😀 dont forget to drink the water its good for you.

Keep well
Tom Onwards and Upwards x

Hi Liz and Kev nope No snow YET but a good Jack frost here also ye old Nottinhham aint that far from us so when you get it we will wrap up warm and stay in doors Lol.

Love Tom "Onwards and Upwards" xxx