Yes you all drink drink and drink some more. I know its a challenge to do but its well worth it yep I do the wee botttles so I know am on the mark but it dunt stop me drinking more 😀 (and not just the beer and Vodka lol)

Not yet watered up but on my way 🙂 Tom Onwards and Upwards x

Hi Tom,

LOL! Other brands available indeed, anyway Tom just wanted to know have got snow where you are?
As you know we're in Nottingham it seems to have missed us last night, think I was a bit disappointed all we got was Jack Frost!

Liz &kev xx

Hi Dai

Am sorry you didn't get to stay on what you wanted 🙁 But I know you will make this one work for you, good luck on the drug free for a time.

Tom as you "Onwards and Upwards" x

Hello Dai,

Sorry to hear that revlimid didn't get to work on the MM or get the chance to see if it could've now that c-diff is under control!
Kevs only on the third week of rev/dex and so far seems ok, I do hope and am sure they will get funding for the bendamustine,
Hope the next couple of weeks pass quickly for ( just for the go ahead) you…[Read more]

Many Thanks ye all from my Iccle cells and I 😀

They have had one or two iccle hick ups over the three years but its nowt my Team cant fix 😀
Never sent them a card (am saving that for the silver Birthday Party 😎 but I did buy them a wee Vodka, that Mr Smirnoff is pretty good you know (other brands are aslo available Lol)

Thanks…[Read more]

Hi Keith,

Not read about it yet but will look it up, good luck for Thursday, you can but try! Fingers crossed.

Thinking of you liz & kev xx

Hello Tom,

Well what can I say, happy birthday stem cells and well done you for keeping well!
Long may it continue:-)

Love liz & kev xx

Thanks Ali,

It is really sweet that you remembered the date. Phil and I are looking forward to ticking another stage off on the road towards remission, hopefully tomorrow will be enough to get stem cells for two transplants but they have Phil provisionally booked in for Thursday as well if needed.

The picture of your Mum and Dad is great!

Megan

Here here I agree with Jo Jo
Love jean xx

Keith good luck on Thursday I will cross everything that you get the chance to go on the trial. Keep us informed.

Take care
Love Jean x

Ali what a lovely photo. You all have had a hard time so enjoy and have a great Christmas
Love Jean xx

Hi Bab's

Am sorry I cant help on this one but just wanted to say you could phone/email the Nurse on this site for info, its better to be safe.

Good Luck.

Love Tom "Onwards and upwards" xxx

Hi Ted

Well I just nipped in to say Hi (Hi) as I aint a clue about PP cc or any other things techie ? so good luck I hope you dont need treatment for many a year to come 🙂

Tom "Onwards and Upwards"

Hi Ali

Great photo of your Mum and Dad, Handsome Man and a Pretty Lady 🙂 you have some good Genes in you girl 🙂

Vicki and Colin (and all you others) just to let you know My Stem Cells are three years old today 😎 so as i have said its well worth the wait 😀 , good to hear Colin's line is now out 😀

Love to you all
Tom…[Read more]

I did enjoy it Dia I think you should get these poems in a book i think they are lovely
Love Jo xx;-) 🙂 😀

Hi Teds

I make heavy light chains which is an indicater of MM being on the move I have started velcade as my light chains had shot up it was the light chains that helped damage my kidney so its omportant they keep a good eye on it you may be ok but it might be a good thing the doctor wants to see you early
Keep well
Love Jo x

Hi Keith
I am glad you are feeling well at the moment the bloods do seem strange my hb fluctuates between 9.5 and just recently 7.5 i think this much to do with my dodgy kidneys but has been worse since starting velcade Do they think you might get back to normal any time soon i hope this is not it! had my week off from velcade last week and felt…[Read more]

Hi Michelle

Your More than Welcome.
Am sure the strenth that your Mum and you have and are showing will be a boost for those that are and have been through what your Mum and yourself have gone through, am sure you will be a great asset on this forum to advice what to do/expect when treatment fails.

Love Tom xxxx

Thank you so much for your lovely message – I'm sure you know just what a real difference it makes.
You are right – I will be out on Harry again in a few months and we will have forgotten all about chemo.
love Carol xxxxx