Hi David, congratulations! What a lovely photo looks like you are all having the best time, long may it continue,

Cheers to you both love liz & kev xx

We were very impressed by the Cardiff Infoday we attended yesterday. Very well organised by the friendly and helpful Myeloma UK team. The presentations were very informative.I now have a clearer understanding of how the treatment works, the clinical studies etc. Lovely to meet other patients and carers. As a newly diagnosed patient who has not…[Read more]

Hi Ann and Pete

Looks like it has been answered, but just let me say to Vicki and Colin, My line was a "Femoral Line" and those dangly bits I had down near my testies :-0 and that took some getting used to Lol, but so as not to worry you Ann and Pete its all well well worth it I sit here of a Sunday Morning in remission and Drug free 8-)…[Read more]

Hi Vicki and Colin

Well I did Goofle it Lol (I had ti LOL0 and it seems to be the same thing I get 🙁 just had a Ultrasound on right shoulder/arm last week.
Had this discomfort/pain for nearly a year now?? Xray showed up nothing lets see what Scan throws up Eh.

I hope the roids work and he is not having infections one after the other,…[Read more]

Well done to you both, Sounds like you are oing to have a great motn with party's.

Enjoy

Love to you Both
Tom and Elaine xxx

Sounds brilliant David and the photo is great. You are having "a royal" anniversary 😎 and why not Much rather have the champagne than the Guiness. Enjoy. And many ore happy years

Love Jean x

Morning Andy

Well you are still up early so I bet no drink last nite Lol.
Am well pleased it seems to be doing good after all your bits and bobs that has been shoved into you.

Dont get too many Nanna's today cos they dont last as long as they used to do :-S

All the best for Monday 😎

Tom "Onwards and Upwards" x

Hi Andy

Just a quick one,potassium,if you eat at least 2 banana,s a day or anything that has lots of potassium in,it will save you taking those horrible tablets,Slim said they played havoc with his stomach,when in ITU he had in through line,hope this helps.
Good luck with everything.Love Eve

Good on you Peggy and I for one hope you get it sooner so you are out for xmas though am sure its going to be wasted I missed xmas and new year in 2009 🙁 but it was well worth it 😎

Keep strong and hope you have no hold ups 🙂

Love Tom "Onwards and Upwards" xxx

Hi Karen

Its a shame I never done a "Blog" or kept notes? as am sure it would help reading what I can recall going through during my 18 month/two years you would be running into the hospital to get it started 😎

We all go through it in differant ways and you just might beat my 16 days 🙂

Good Luck

Love Tom "Onwards and Upwards"…

Hi Vicki and Colin

Am pleased the Hugs were good for you both, its not a lot but its good enough to cross the distance we have between us all 😀

I hope all went well today with whoever you ended up seeing and are soon on the way back home Arms sorted or at least an answer to Why.

Love and Hugs to you Both
Tom "Onwards and Upwards"…

Well Done Andy and Gang, and a well done on the drink front am with Ali i think you would make a Rock Star drink and drugs and then sleep for hours Ha ha.
Stay well My Friend and drink plenty 😎

Tom "Onwards and Upwards"

Hi Karen,

Welcome to the forum. Everyone here is very helpful and provide a lot of support. My husband Phil was diagnosed in May with MM and he has completed his initial treatment (he is also on the PADIMAC trial that Alex is doing) and will be going in for his SCT on December 17th. Myeloma is very confusing as there are so many different…[Read more]

Hi Peggy,

I hope you get the date for your SCT soon. My husband Phil was in for his lung function and heart tests this week and he is going in on Monday for the priming chemo (cyclo…. – I have a terrible time remembering all the drug names) and the cell harvest will be December 5th and 6th. Phil is then going into St Bart's in London on…[Read more]

Hi Andy
So glad you enjoyed yourself. That's a great amount of money. Well done to all concerned. It is good to hear that you are having a good week – long may it continue 😀

Take care
Love Jean xx

Hi Sarah and Mum

Well I also support your Mum in the decision not to have a SCT I had one but its not for everyone, I wish your Mum a good responce to the treatment she is given and with little sde effects.

Give your Mum my best and tell her i wish her well in the road to recovery, its not over just because she is not having a SCT, stay…[Read more]

Hi Karen

Sorry to hear you are a bit down 🙁 and am sure it will get better as time nips along I have neen in your position and after a few years and many a black day I am now "Spot On" stick with it Girl its going to be worth it 😎

I dont have your request on Face Book ? you will know its me my photo is of me in red dickie bow 😎 one…[Read more]

Vicki and Colin

Has Colin still got hnis Line in?? as sometimes that is the cause of infection and High Temp, Hope its all sorted and you both are back at home am sure its bloody hard work for you both so am sending you BOTH some of my Cyber Hugs (((((Hugs)))) (((Hugs)))) and trust me these work 😀

Love and Hugs with the Hugs

Tom…[Read more]

Just thought I'd pop in and say hello Karen,

I'm my hubby's carer (kev) he was diagnosed with MM August 2010 had stem cell transplant April 2011 at the nottm city hospital under prof: Russell the whole team there are brilliant! Sadly kev relapsed may this year and just finished velcade/ dex
And now on revlimid/dex hopefully get those pesky…[Read more]