Hello SArah

I didnt have an SCT due to kidney damage I had cdt and achieved 3yrs 6 month remission just started on velcade there are lots of ongoing treatments:-) so it not all doom and gloom so I hope your mum keeps well on the treatments so keep your chin up good luck to mum
Love JO

Hi Everybody

Yes still here,have been busy packing and going out to lunch ,will be leaving 2 friends behind who lost there husbands to cancer this year.:-(

Nearly finished now,staying at daughter,s in Sevenoaks,and getting a taxi to Heathrow,£70:-0 ,that,s mates rates feel it,s better for Slim.wheelchair assistance on stand by.
Taking the…[Read more]

Hey Tina
Its not a moan Girl its an observation that you cant do what you did before and or want to do now, you have undergone "Major Surgery" I know we have no large scars no gaping wound and no stitches to show off but it is Major op we have had.

Being weepy doesnt make you week it will make you better tears are a good release for us.
As…[Read more]

Hi Sarah and Mum

As for needing someone at home after my SCT ? I asked my young bride (Elaine) and she says that she went to work but left me a flask of coffee and a pack up (just like work lol) after feeding me breakfast and said i stayed in bed till she got home for the first week and she also said that the first time i went out was Xmas Eve…[Read more]

Hello Eve

I really hope you and slim have a brilliant holiday hope you both keep well and looking forward to hearing your holiday tails
Love Jo x

Hello Jean

sorry Frank is feeling sick it could of course be a winter sickness bug and not the CDT its probably hard to tell but he hasnt felt sick before has he perhaps a quick call to the clinic will sort it out
Love Jo x

good luck Keith

I really hope this new regime works for you it sounds a good drug there seems to be even more on the way from America so watch this space they said to me if VCT doesnt work they even revisit CDT as it worked well last time! finished the first four shots today week off next week;-) yippee had to have 2 units of blood as as Hb…[Read more]

Hi Tina

Yes it does get you down,I felt things would never improve always worrying about Slim,and I am just the carer,you have been through so much,it is expected,but there is only one way to go,and thats Tom,s way.
The expectation that things will improve on a day to day bases does not happen,often felt Slim was taking one step forward and…[Read more]

Hi Karen

Yep it looks like its going the correct way 😀 and as for the Chemo brain hey am a mere male I have had that for years (or so am told lol)
Am sure the MRI will be fine i have had a cough for years i think and it varies in degree of roughness he he.

I am doing great thanks, but I have always tried to beat it andnot bother too…[Read more]

Just to let you know Eve is still here stalking me 😎 and will set off for her jaunt on Sunday I think, am sure Eve will be along soon.
Have a good Un Eve am gonna miss you 😎

Iccle ole Tom "Onwards and Upwards" xxx

Lol Eve
Well I have to say with all our Kids (three handsome Men now) I got Morning sickness with each one so I knew the young bride was pregnant 😀
and you are corect I soon forgot about that.
My Glass is always half full so it all works for me 😎

Love Iccle ole Me "Onwards and upwards" xxx

Hi Vicki & Colin

Well That devil likes hospital food?? or is it a pretty nurse?? Lol
Tell That Colin yes he has had it rougher than I can recall my time but he will get through it, keep the fluid level topped up and all being well it will keep him healthy.
The IV drip will soon have it sorted and soon be home but ask for a few plates of…[Read more]

Hi Ann and pete

Its not a bother at all.

so here goes,I had my Blast of Chemo a couple of Months prior to my harvest (my consultant sent wrong patiant??) But I went in one Monday Morning and was sent up to X Ray Dept to have my Femoral Line inserted (no pain no discomfort )

the Tues I was up early breakfast then a Transport car takes…[Read more]

Hi Tom,

Well Tom,you should ask yourself how does it compare with child birth,you do forget about the bad things and look at all the good things that come out of it .LOL Love Eve

Hi Sarah and Mum

A warm welcome to the forum, get comfy and ask away.

First I am ???? 57 and was told i had MM in Jan 2009 done the CTD (that made me go on sick) had the SCT in December 2009, was in Hospital 16 days but 5 of those were lost in sleep :-0
Now I cant give you advice on what yous Mum should do all I can say is that if I came…[Read more]

Hi Sarah

I can only give you the view of the carer ,I am 63 and Slim my husband is in remission after 2 years and a SCT.

From they start of having to make a decision to have a SCT,I looked at everything,then told my husband the facts,and told him he must decide for himself,if any thing had gone wrong,I would never forgive myself for pushing…[Read more]

Hi Stewart,
I echo what Alex says above….I was 34 when I was diagnosed in 2009. Our children are now 8 and 6, 3 years down the line. But they are who help me to get through those darker moments when your whole world feels upside down. That said, I can only imagine how hard it is to go through those 'exhausted' early days whilst also dealing…[Read more]

Hello David,

Just seen you post thought I'd say hi and how are you keeping? Well I hope.

Regards liz & kev xx

Hello Tom

Lovely to hear from you, Thankyou for your kind words, it's great that your keeping well and so encouraging to everyone!
Keep up with your upbeat attitude Tom it makes a good read.

Keep well love liz & kev xx