Hi Keith,
Thankyou for your reply especially when your busy with your new treatment , can I ask how long inbetween treatments was the first and second sct? Because they seem reluctant to go for the second saying its too soon, his first was April 2011 relapse 8 months after remission.

Love liz & kev xx

Hi Keith

All the best with this next stage of treatment, I'll pop in to see how you are doing.

Keep well love liz & kev xx

Hi Karen

I was on CTD had five cycles of it leading up to SCT in dec 2009.
When I was on CTD I had the cough(still got the bugger lol) and as for the wishy washy brain I was told its "Chemo Brain" and it will come back???? but I think I got Chemo brain then straight into Old age lol

Few of us on here have F/B think am here…[Read more]

Hi Jean,

Dad finished his 6th cycle of CTD about 6 weeks ago now and for the first few weeks he said he felt worse than when he was on the treatment. He had expected to finish the treatment and start to feel better straight away. Its only the past week or so that hes actually started to feel better and he has even managed to take the car out…[Read more]

Hi Jill and Mum
I hope the new treatment for your Mum works, I am not sure why they stop treatment ? when its known to cause problems??

Good Luck to you and your Mum in the road to remission.

Love Tom "Onwards and Upwards" xxxx

Hi Jean and Frank

Well I was on CTD and I was taking "Granisetron" twice a day evry seven days, I cant recall feeling Sick while going through MY CTD but was felt it after SCT and did for over a month so get the anti sick tabs for Yourself Frank when you get sent home.

I would check for a sickness bug ? lot of it going around, so get well…[Read more]

Hi Keith

Thanks for that. Will remember but Frank hasn't started SCT yet, he's waiting for a date. He has just finished the CTD. He is really feeling rough

Keith hope your treatment works for you. Thinking of you

Love Jean x

Hope treatment works Keith. Kick this bu**er into touch. Thinking of you

Love Jean x

Good news Phil keep improving!!
Take care
Love Jean x

Hi Chris and Lena,

Yes, Phil and I did see the little dog on the news, science is amazing and getting better at fixing things all the time. I never really had much time for science before this year but I am amazed at everything I have learned since Phil's diagnosis and astounded at what the human body is capable of. It gives me hope.

I am…[Read more]

Hi Ali,

Phil is due to have his cells harvested on December 5th and will then go into St Bart's in London on December 17th for the transplant. Not quite the Christmas we would normally have but MM has never seemed too concerned with our plans:-D

Our view is get it done and dusted and then bring on the New Year and start fresh. Here's to…[Read more]

Morning Keith

I also hope the Bendamustine works for you with little or no side effects (as if :-S ) lets hope it kicks its butt and give you a long long remission.

Tom "Onwards and upwards" xx

Hi Liz and Kev

Am sorry to read you both are having a bad time with the Bloomin MM 🙁

And hey Liz a tear here and their is good for you trust me been done tee shirted an all, am sure it will only be a matter of time before they get a comination that will work.

Stay strong you two its the best way hard at times i know like all of us here…[Read more]

Morning Chris and Lena

Yes the ward was a comfort as much as we wanted to get out and home 😀 a strange strange feeling :-S but when home for that day and a bit it all falls into place.

I was like you Chris 5 (ish) days when I was a bit too bad not wanting the young bride (Elaine) to visit as I spent most of it asleep, the nurses used to…[Read more]

Hello Wendy,

I too was reeling from outdoors Paul's sudden passing I read your post and thought it was a lovely thought.

Thinking of you love liz xx

Hi Ali,

Thankyou Ali I've been on autopilot these last few weeks but today I cried in clinic but kev being kev didn't know what to do bless him he just says right bring the next lot on let's get started soon as, so that's what we're doing what else can you do but try and kick this MM into touch!

Again congratulations to your mum xx
Love liz…

Hi vicky & Colin,

I've been following your journey and am so pleased everything is going well, kev ( hubby) had his sct April 2011 and getting him home was the best and in time for Christmas, aside from keeping him bug free hope it goes well for you both.

Keep well love liz xx

Hi Ali,

What great news for you, your mum and all the family! So pleased for you all.

Love liz xx

Hi carol,

Just going through the posts and came across yours sorry to hear that you have relapsed, not heard of PAD? But I hope it works for you.

Take care love liz xx