Hi Helen

Well I stopped smoking in November 2009 just prior to SCT and my cough/chest has never been as bad 🙁 I have always had a iccle tiny cough when I smoked as my Young Bride (Elaine) called it an attention cough Lol, but that iccle cough has grown up and been a bother for a few years now its just weaker :-S

Had me flu Jab…[Read more]

Hi Sue and Michael

I am Pleased you are Home Michael as am sure its best place for rest and comfort, sorry you had a panic attack michael it must have been scarey ?

Sue I have three Handsome Sons but all soreted now but am sure that Pretty Daughter of yours will be sorted when she is ready, aint no rush these days is there?

You both kep…[Read more]

Thanks wendy for your kind thoughts i do have a good medical team at the Lister and UCH
Love Jo x

Well Dia

who knows what is the right course i made my mind up not to go for a SCT it was discussed but i didnt want to finish my kidneys off completely as it happened it has not worked out too badly so i do hope i get the same responce this time thank you for your kind wishes:-)
Love and a hug from Jo xx

Hi Sue
If it is any help Sue,Slim had panic attacks when in ITU,and of course I was not there,and I was there 20hrs out of 24.made me feel awful,but he did say to me they were bad dreams,and we did talk about them after he came home.

So glad to hear he is coming home,make time just for you and Michael,you will need all your strength in the…[Read more]

Hi Emma
Glad to hear your mum is feeling better,there is so much to learn when starting treatment,so it is a big learning curve.:-)

When your mum starts treatment everything will be explained,about tablets when to take them and the best times,there are a lot of tablets so go out and buy a pill box,and make a chart makes life easier.

Kidneys…[Read more]

Hi Sue

Couldn't sleep well last night – unuisual for me, so was thinking and praying for you and Michael a lot. Do hope Michael is calmer now. It is a time when he could naturally feel frightened. Hope you are able to spend time with him, – and perhaps other members of the family. Is it your daughter in the photo with you?

Lots of love…[Read more]

Hi Pat
I have a reduced regime because of the kidney failure i cannot have full strength drugs it worked ok for me last time so hears hoping it will now
my lovely husband takes me every where and waits for me took me this afternoon to my friend sons saloon she arranged for me to have a free manicure which was lovely had the hair done felt much…[Read more]

Hi Scott

I am coping ok at the moment with velcade only once a week SubQ and a reduced dose of dex and cyclo because of the kidneys they started me early
as i was producing heavy light chains which damaged my kidneys in the first place they are still hanging on how are yours coping with the new teatment i am nto giving up going to th MM…[Read more]

Hi Mavis
thank you for thinking of me not doing to badly plenty of hospital visits but i try to carry on life as normal dont like to give up just take a bit more care not get colds etc
Love Jo x

hi Dia
thanks for noticeing me I had 3years 6months remission from CDT so i didnt do too badly my PP were only 9 they usually dont start treatment until you get to 30 but i was creating heavy light chains again which destroyed my kidneys in the first place so they started early the regime is not to bad
20mgs of dex and 200mgs of cyclo day one…[Read more]

Hi Debbie and Les

And I dont know your Mum and dad but I wish I was going with them also Lol.
A m sure your Dad (Les) will be lucky with his treatment and I for one hope the road to remission is a smooth one.

Tom "Onwards and Upwards" xx

Hi Lizzy and mom

Its not a problem and am pleased to read Mum is getting better today and Hope it gets better and last longer 🙂

Love Tom "Onwards and Upwards" xx

Hi Keith

I have strong gums and teeth 😀 but i was told during treatment to use a soft brush, and i always use mouth wash every time i go to the loo its hand wash and mouth wash, I dont floss that often and my dentist tells me to but :-S

if in doubt phone hospital 😀

Tom "Onwards and Upwards"

Hi Eva

How do you get on the myeloma listserve? I haven't heard of it before,

Lots of love.

Mavis x

Hi Susannah and Michael

Just to let you know that i am still rooting for you. Do hope the antibiotics are beginning to do their job and that Michael can be home soon – there is no where like it.

I guess all of us MMers think about our end, from time to time and wonder which way we will go. I am sure we all hope and pray for a gentle…[Read more]

Hiya!

Crept into under 50s group to read your post.

Sorry things aren't going so well for Melvin – ion fact it sound pretty horrible.

Do hope that pain is beginning to be got under control. I am also a great one for recommending asking to see the specialist pain team if you haven't already.

Lots of love to you both.

Mavis x

Hi Lizzy

Welcome from me too. Sorry your Mum has had such a bad time to begin her MM journey with. I do hope she is coming out of the dark tunnel.

The one good thing about the treatment of MM is that there are so many paths to try. Many of us have found CDT, a more traditional treatment, very successful, so don't despair that your Mum…[Read more]

Hi Jo,

Just postine here as it may go straight to your email list to say, look at Dia's posting if you haven't already done so!

Lots of love and all blessings.

Mavis xxx

Hi Everyone

Thank you so much for all your good wishes. It is good that we can share joys and soorows here. Good too that there are a good number of us in remission. It must encourage our newer members just when they are really bowled over by the diagnosis.

Lots of love to all my cyber friends – get well and keep well.

Mavis xxx