Hi Jo

I'm glad that DAi spotted too that things aren't all well for you. I had noticed it in your posting to me and was going to respond. I have always been so encouraged by your postings.

Do hope the new treatment works very quickly so there is no more kidney damage. Also hope the side effects aren't too bad. Are you still able to…[Read more]

Hi Lizzy

A Warm Welcome to the site to you an your Mum.

My Run was straight foreward so Cant add nor help you at this time but am sure some one will be along that is on this treatment and give the advice you need.

What Hospital is your Mum getting treated as some on here might be able to help and advize.

Tom "Onwards and upwards" xx

Hi Chris and Colin

Doing great Chris 😀 and Colin you will be the same soon My Friend, dont rush it as we all differ in the getting home Time mine was on day 16 and I have been beat and i have beat others so as you all see we differ in the Home run.

Stay Strong you all

Tom "Onwards and Upwards" xx

Hi Debbie
A warm welcome to you and your dad and sorry am late with the reply, and am sure it has been answered.
But Get that holiday in and dont wait till after or during treatment as I didn't know how I was going to feel the day after let alone four months away :-/ but the Uk is fine as you wont need Insurance as such?

As for Driving I…[Read more]

Sorry Debbie
Must have had one of my moments Dad became Mum:-/ :-S 😛 Eve

Hi Debbie

Welcome to you and your Dad. Sorry you have had to join us and that your Dad has now to start treatment. I would deffinitely advise a holiday before treatment starts because I found my appitite was seriously affected, also, as others as said, even if he does well, there will be "off" days.

As to driving, I started driving again,…[Read more]

Hi Jo

I have only just read you post and realised you have started treatment again,So sorry Jo,lets hope by starting early it gets you into remmision early.

Velcade worked for Slim the worse part was going and waiting so long for an injection that lasted seconds.
Good Luck with the treatment Jo,Love Eve

Hi Mavis
I am so pleased for you,lets hope you mobility gets better as you get stronger.Love Eve

Hi Debbie

No one says you cannot drive,to me it just seems reasonably not to drive whilst taking heavy drugs,your mums treatment might only go 4 to 6 cycles,so no reason why she cannot drive the rest of the time.
As for insurance you are supposed to inform them of any changers:-/ but if you cancel your insurance and after a year take it up…[Read more]

Hello Kerry,

I am sorry to hear that Melvin had to go to the hospital again but that is very good news about the drop in pp levels.

My husband Phil has been admitted to hospital three times since his diagnosis in May, two of these times were unexpected. The first time he had gone in for his chemo as normal and they would not let him go home…[Read more]

Hey Helen

I thought the pesky cough had cleared up. Hope it goes soon. I know the whooping cough does last some time but you have had it long enough. It's time it takes a hike!!

Take care
Love Jean x

Hi Sue and Michael

Sorry to hear its a Hospital stay for Michael but am pleased that when he is home a plan will be put in place for Michael and yourself.

Please mdont worry about what you can and cant do that will all wait and do what you are doing now "One Day At A Time" stay well Sue

Love and Huhs to you all

Tom xxx

Hi Vicki and Colin

Your doing Good Colin thats the way it rolls My Friend stick with it and slowley it will get better but it will be slow for you and Vicki.

Vicki am sure Elaine (my young bride) walked out of and into my room many a time during treatment with that heavy heart al ask ang on ??

Am Back yes she said she felt and did the…[Read more]

Hi Pat

had my second dose today app at 1 0'clock got out of the hospital at 4.30!!
my dex is 20mgs two days running and 200mgs of cyclo on the first day having my treatment sub Q only takes a minute to get the injection I wore my very bright pink jumper today very loud but fun:-P having a colour tomorrow hope my hair wont fall out:-(
Love Jo

Hi Debbie

My husband was like Wendy. He's coming to the end of 6th cycle of CDT and for abouT 4 days after coming of Dex he was very shakey and could not drive. As to going on holiday while on treatment I would say it would have to be cleared by consultant but with Franks experience – out of the 6 months we had to go to the hospital on 5…[Read more]

Hi Sue
As with Myeloma every person is different when in your situation,and also react differently,You have to do what is best for you.

I have a friend who use to be in the same position,she used to be worried how she would cope with the practical side of nursing,her husband chose to stay at home,he did go to respite,to give her a break,but…[Read more]

Hi Vicky
It will soon be over and Colin will start to recover so fast,it is heavy going,for both of you,I went in to the hospital every day except once when I went to a funeral,the funeral seemed light relieve compared to going in every day,

When Colin comes out the hard work begins,so you must try and rest now.
You soon forget,they do…[Read more]

Hi Vicki
Well it is what it is am afraid and no one escapes the great Run(s) ha ha, I also hope its only two days??? for you Chris (mine was months) lol:-0

Colin is doing well getting the sickness under control but I think on reflection I didn't get the anti sick tabs as often as i should have :-/ good to see Colin eating a bit now.

All…[Read more]

Hi Pat

Well am pleased the "Onwards and Upwards" keeps yopu going but dont get the tattoo as it hurts honest he he.
And Mind those Pigeons, better of in a pie than gave to cat 🙂

Love Tom "Onwards and Upwards" xxx

Hi Pat
sorry you are not too good lets hoe things soon get better I am just starting vcd had one lot i am having it once a week sub Q and a reduced dose of DEX and CYCLO because of my kidneys i expect we will be sharing experiences try and keep well love Jo xx