wonderful news Mavis

lets hope ou get a long remission I have had 3yrs 6 after CDT just started VCD rthe MM is not to bad but i am creating heavy light chains which destroyed my kidneys in the first place so they are starting early
God bless Jo x

Morning Chris

Well I dint want to wish it upon you M8 BUT I dont know anyone who has got away with it Ha ha.

as for the release date I went in on the 1st December 09 and was thrown out on the 16th 😎 day was was a waste nowt much done just line in chemo on 2nd day and three bags of Cells in on day three 😀 , cant remember when i messed the…[Read more]

Well I have a Bald(ish) head so I wear a Cap and that is Raised to the rafters for those three 😎

Tom "Onwards and upwards"

Hey Gill

I am same as the others here.

I have read no where anywhere that tells people to be back to normal after X many months/years and I assume everyone differs in the time before they feel ready to move forwards BUT not forget the loved one who has passed away.

I would hate it to happen to me if I lost my Young Bride and Fmaily and…[Read more]

Hi Keith,

I am afraid I can't offer any suggestions/opinions as my husband Phil is just at the start of his MM journey and he has only had one infection so far that resulted in a hospital stay and he has not needed any extra platelets yet. I just wanted you to know that my thoughts are with you and I hope you find a solution with your…[Read more]

Well done Mavis, that is wonderful news!

Megan

Hi Keith

Well I for one feel for you, what a decision, to stop what is making you better/then ill to nothing that you know will make you ill?? (if i got it correct??)

And what is the Consultants view on it all?? am sure he/she has some input to throw on the smouldering fire?.
I cant make that Call for you Keith but I wish you luck in your…[Read more]

Trish and Peter,

That is wonderful news, thank you for sharing and enjoy your well deserved holiday. It does give me hope that holidays may happen again one day, it is all so scary at the beginning…

Megan

Hey you two its great to hear Colin is awake make the most of it cos sleep will come 😛

I never bothered about Food to be fair when i was in hospital and not too much passed my lips for a long time when i came home just plenty of water was good for me 🙂

Keep Well Coin

Tom "Onwards and Upwards" xx

Hey Peter dont expect it to change after your SCT in Jan I can still fall asleep at at at ?? well before the hat even starts to drop he he, and if you ask my young bride my ears have never been anygood at listening lol. and I aint on any drugs 😀

So still get tired
Still feel the cold (lot more than i used to)

But am still here and if…[Read more]

Hey Trish and Peter

Well done you two, am pleased for you thats great news get yersen off and have a great time.

From this Onwards and Upwards to you two that are also Onwards and Upwards.

Tom xxxx and dont forget the 😎

Hi Mavis

A Well done from Iccle ole me 😀 thats great news to read on here and I bet you were and still are over the moon to write it, well done Mavis and long may it continue 😎

I am comming up to my third year post SCT and am not expecting it to fail 😎
Keep it up Love Tom "Onwards and Upwards" xxxx8-)

Hi Trish
That is lovely news,worry always there in the back ground,but say to mm and worry(s-d It),this is your time so enjoy.None of us know what the future brings8-)

We are off to NZ on the 25th of Nov.return New Years Eve,it is exactly 34 months since we have seen one of our grandchildren,the other one flew home with are daughter last…[Read more]

Thank you so much for all your replies, all interesting to read. I know everyone is different but it helps to know how people cope with everything.
I am now on day 14 of my first cycle. I have never taken so many pills :0

Chemo tablets OK, taken with anti-sickness.
Revlimid – dizzy/foggy head, night sweats, awake at 4pm – not helped by all…[Read more]

Dear Sue and Michael

Just wanted to let you know that you will both be in my thoughts and prayers at this very difficult time. I am sure you will feel better after you have seen the Pallative Care Team. They will really want to take your thoughts and wishes into account aand make things as easy as possible.

No one can predict how long a…[Read more]

Dear Gill

I'm sorry that you have people around who obviously have no idea what it is like to lose someone so close. Two months is no time at all for healing even to begin to happen. YOU be kind to yourself, and don't expect too much from yourself, even if other people are insensitive.

Do keep in touch here.

Lots of love.

Mavis xxx

Mavis what brilliant news to read. I am so happy for you. It's so great to read positive posting like this. Paul's passing was so tragic and such a shock. You will be in my prayers for a long happy remission. Enjoy every minute 🙂

Love and best wishes
Jean xx

Hi Pat

Sorry you are having trouble with your silver rings. I wear a lot of silver, but not rings, and I haven't had any trouble!

This is a funny disease. We all react so differently and these seemingly "little" things can tip the balance in making us feel depressed.

Do take care.

Mavis x

Hi Tina

You know I'd admire you for following the CDT with the Transplant. I know, from reading what others have experienced, that it won't be an easy time, but, if like with CDT, you mark off the weeks, I know you are going to come fine. What was your PP reading pre SCT?

I know one of the worse things with all this treatment is how food…[Read more]