Hi Winston

No not much help,I am more interested about the run up,because I am assured,the bloods,will be the first marker,so how did you get in the position of compression on the spine???,as I said they should have discovered you going out of remission,I have my own reasons for asking,can you help.

Hi Dai
With out taking over Stan and Mary,s thread I would slightly disagree with your figures,If they could only find why some people respond well and others do not,I can honestly say I do not know if Slim will get 6 months or 6 years,and i do not think the experts know either:-P

As for stress,mine was because I found people not doing the job…[Read more]

Thanks Nicola and I'm glad to hear that your dads legs are back to normal. All these horrible side effects are such a worry. No sooner get over one and another rears it's ugly head We are off to see the consultant tomorrow. I really hope that this is the turning point for your dad and he goes from strength to strength

Best wishes to your…[Read more]

Hi jean,

Dads been off treatment for just over 3 weeks now and felt terrible the first few weeks but seems to have started to feel better the last couple of days. His feet and legs are nearly back to normal size and he said tonight that he def feels like his legs are a bit stronger. It's still early days but he's had 2 days now, I just hope…[Read more]

Swollen fete have disappeared!!!!! Back to normal. I think it was the d**m steroids that was the cause. But just thankful l that they are both normal. Thanks all for advice and tips

Love jean x

Hi Winston
Welcome to the club,2003 until 2012,that not bad going at all,sad you are of remission but you gave it a good run,what did you first treatment consist of. 7 years which in it.s self gives everyone on here some hope.

I would have thought as they new you were in a situation,that they new it would come back,how did it get to the point…[Read more]

Hi Polly

I agree with Eve. If it is possible to go home and go back. Franks drugs are ordered roundabout 11.00am and they are not ready till 4.30pm. We are fortunate that we live about 20 mins from hospital. One thing I will say is check the drugs yourself before you leave. Frank is just finishing 6th cycle and the drugs were never right. For…[Read more]

Hi Polly

Well you are getting there,do not mention the pharmacy:-S :'-( >:-(,this is the one thing you will have to look forward to at the start of each cycle,in the hospital we went to they just could not get there act together,I can honestly say the drugs came up to the unit on time only once,and they would not even let me collect them,its…[Read more]

Well hospital appointment today Tuesday at 9.15 for THE TREATMENT signed a few forms had a talk with consultant all done and dusted by 10.00 then directed to pharmacy for drugs which took them two and a half hours to prepare :-/ then back to nurse to go through the cocktail with me and what a cocktail it is apart from CDT you can add to the mix…[Read more]

Hi Polly

Am sure with a handfull of Onwards and Upwards and a sprinkle of one day at a time, and everyone crossing everything we have all it made am sure, hope all went well yesterday

Love Tom "Onwards and Upwards" xx

Hi David
Well we know you cant beat that Bombing about malarky 😀 , lets hope its for many a year 😎

Tom "Onwards and Upwards" x

Hi Kay

Am sorry to see you joined the site on behalf of your Mum.
I cant add anything to your Q as to what does or might not happen at the end stage of MM.
Am sure if you talk to the Dr who is treating your Mum he/she will tell you the best way to go re treatment for your Mum at this stage.

I just wanted to send my thoughts to you your…[Read more]

Hi "K"

Welcome to the site. Sorry your Mum is having such a trying time. Don't have any specific answers, but just wanted to say that, maybe, given all the circumstances, less treatment is better at her stage. Is your Mum able to discuss this with you? Have you been in touch with the Pallitative Care Team in your area? I find their…[Read more]

Hi David

Good to hear you are now feeling a lot better so don't need to have PP count yet. We are all so used to you being upbeat and cheerful! Keep it up!

Very best wishes.

Mavis x

Hi Dai

I'm so glad the wedding went well. It sounds like the wedding venue was loveluy. Look forward to seeing photos.

Take care of yourself and Janet. I expect, like the rest of us, you are now wondering about Christmas plans. We are very sorry not to be able to make it down to London and the grandchildren this year, but we have got to…[Read more]

Hello,Dai, thank you for the information, you went through the wars. . Frank has been on Clexane for the past 6 months. He is still,sleeping do not sure how he is now but yesterday the swelling in both legs had come down a bit. When we went to the Unit on Friday they seemed more interested in his low temperature. Saying that they did give him a…[Read more]

Well put Dai

I think you do go through a time when you want to scream at the world,but you do get past that,and just think we will make the best of the time we have.

Mentally over the last 2 years I have mourned and buried Slim,looking back on it,I think it was just a way of preparing myself when he was very ill.We have talked about it and…[Read more]

Hi Tom as you say its best not to have notice of BMB takes some of the worry away before hand, and when I go for treatment tomorrow I shall take a hand full of your onwards and upwards with me along with one day at a time and hopefully I wont feel to bad on treatment 🙂

Hi Mavis I shall certainly keep a watch out for those shingles as for…[Read more]

Come on in Dai its nice and warm in here 😀 pleased the wedding went well and i cant wait to see more photo's.

Tom

Hi Gill and Dave,

I am so sorry you have had to join us but you have come to the right place, this forum is very helpful and informative. My husband Phil was diagnosed with MM in May this year at the age of 43. There is a lot to take in and it all feels like an out of control roller coaster at the start but it does get easier. Phil has just…[Read more]