Wow you two aint doing this the easy way are you??.

I bet your well peed off I hope the get them all back in nice and safe 🙂

Love Tom "Onwards and Upwards" xxx

Hi Michael and Jo

A warm welcome to the forum and am sure you didnt want to join 🙁 but you will find great people in here and will answer any Q you may have and you will have many, make yourself at home and dont worry about making a mistake it will all fall into place soon.

As for the Velcade am sure its not used as a "Front Line…[Read more]

Hi Joanne

From what I understand the myeloma is in the bone marrow that produces all the blood cells and so it can stop not only red cells but also platelets being produced.

Mike my husband had platelets around 70-80 for over a year after his SCT and they weren't too worried.

Lorna x

Hi Sandra

Thanks for getting back to me. I remember how tough a SCT can be for both parties so you have my sympathy.

Lorna x

Kerry happy birthday for tomorrow. I know it will be difficult but try and have a good day.
Take care
Love Jean x

Hi Kevin Am sure that will be a help for those that are due or just starting CTD and if i may add that I concur with that 😀 and for you and those like you comming up and due to a SCT I can tell you I had mine done in December 2009 and Like your and mine CTD the SCT is well worth it.

I am here nearing 3 years post Transplant and feel Great…[Read more]

Gosh you two Pat and Peter (must be something to do with the letter "P" but you two just might just might make me blush Ha ha

Love Young Tom "Onwards and Upwards" xxx

Hi Kerry and Melvin

Sorry but welcome, am sure you will probally know us all by now if you have read the posts for months 😀 and feel free to pop in and Vent all you want you and melvin have like us all here been dealt a rough deal but am sure you two will whip it into submission.

Good Luck Melvin on your road to remission

Tom "Onwards…[Read more]

Hi Kerry,

I'm so sorry to hear about Melvin, its such a shock when you initially hear those words. My dad was diagnosed earlier this year after suffering excruciating back and hip pain. he has lytic lesions in his spine which showed as quite a large "hole" on the CT scan which was quite scary to see. He was also on Oramorph and zomorph but…[Read more]

Hi Kevin,

Dad has been off it all for just over a week now and today was the first day he had a bit if sparkle back in his eyes. He's far from back to normal but looking better than he did Tuesday! His blood pressure dropped and he felt really dizzy, so horrible to see after all he's been through. I've read about the side effects of withdrawal…[Read more]

Thanks for that Megan. The more info I can get the better so I can have questions for the nurse on Wednesday. Hope Phil's side effects disappear. Frank is having ad side effects and withdrawal from the Dex. I think the thought of aving to continue CDT is really upsetting him.

Thanks again
Regards Jean

Hello Kerry,

You have had such a lot to deal with, it is not surprising you are worrying about everything. It does seem to happen like a whirlwind with no time to take it all in. I am 38 and my husband Phil was diagnosed in May this year at the age of 43. Since the end of May he has had two operations on his legs as well as the chemo…[Read more]

Hello Nicola,

I hope your Dad's hands warm up soon. Phil discussed it with the Doctor yesterday and they reduced the dose of velcade he was given. Hopefully this will help, Phil's feet were still cold last night but today he actually didn't notice it until I foolishly asked if his feet were still cold and that brought them back to his…[Read more]

Hi Kevin,

Great news about your light chains and bone marrow biopsy and it is nice to hear that the side effects went away once you finished treatment. My husband Phil is on his 6th and final cycle of dox-dex-velcade and he has had a few new side effects pop up in the last week that we are hoping will disappear after he finishes this…[Read more]

Thanks for that Lorna. It's a relief to know that they might still do it and I'm glad that Mike is still doing well and long may it continue.

Kevin they said light chains and everything else was good. I did ask the question but it was yet another registrar. I'm thinking of getting a tape and recording answers to all the same questions that each…[Read more]

Hi Kevin

Well done! It's no easy task getting through all those dex days and the days of withdrawal that follow.

Jean, Mike (my husband)had a pp reading of 11 after 8 cycles of Velcade, Dex and Cyclophosphamide and they still went ahead with the collection and SCT. He had his SCT on Christmas Day 2010 and is still doing well.

Lorna

Hi Kevin

Glad to hear your good news and wish you all the best for SCT. We have just coming back from consultant. Frank just finished his 5 th cycle of CDT. For the past two months his protein has been stuck at 2. Did your protein drop to 0. I'm worried that as its not 0 they won't do SCT. sometime trying to get info from professionals is like…[Read more]

Hi Kerry

Poor Melvin what a terrible experience he is going through (and you too). I cannot offer any advice as I have had no experience of anything like this. Kerry please come on and rant as much as you like. I'm sure there will be someone on the forum who can relate to what you are both going throug and be able to give you advice, support…[Read more]

Hi Gill

I just wanted to add my voice to those before me who have said don't leave us for long.

I too have fond memories of you both and remember how much you helped me when Mike was first diagnosed.

I think us carers will always need you, Sarah, Min, Tina and others who have already had to travel the darkest path.

Love Lorna x

Hello Kerry

So sorry to hear about melvin what a shock for you both most of us here are over 50 so I can imagine how heart breaking it is to be diagnose under 40 you must be wondering what next we here are all at different stages and we dont give up i know you will give Melvin strength to get through this
Good luck Jo