Bloody hell! Sorry about bad words but it's the best I can say. I really feel for you two and your family. Please visit us a lot and vent all your frustration here as much as you like. Sending you lots of hugs!!!

Bella

Ps my twins are 5 now

I just wanted to say thanks again for all your kind words. I have been looking regularly at this discussion forum and it warms my heart to know that Paul was thought of so highly by so many people. Thanks especially to Steve: you will be pleased to know that on the day Paul was admitted to hospital this last time we'd been out for a 5 mile walk…[Read more]

Hi Kerry

My goodness you have been handed quite a bad hand haven't you? I remember how overwhelmed I felt when my partner was given his original diagnosis, but I have come to realise over the last couple of years that we had it easy compared to others like you.

I'm not much help when it comes to certain aspects of the blooming disease but I…[Read more]

Hi Megan,

My dad was on ctd and suffered PN in both his hands and feet, painful to touch and he called them "old mans hands" as they seemed to wrinkle and go a funny colour. He stopped all his treatment last week and still has the sand symptoms and his hands were freezing yesterday, even though we were in the warm. I'm not sure if they will get…[Read more]

Hi Keith,

Thank you for your reply. I think we are all so eager to see dad looking and feeling better. His last blood results were fine, haemoglobin was 11.7, which they said was good and kidney function normal. I've been looking on the Internet about the withdrawal symptoms from the steroids and that seems to cause just as many problems as…[Read more]

Hi Pat

I have just renewed my blue badge (they last three years) and still had to fill in the 70 odd pages lol, never knew about a single page one all I know was she said (lady in blue badge dept) that if I have a Mac Nurse it will come through faster as it was only a phone call for them to make (i dint have a mac nurse and still dont have one)…[Read more]

Hi John

A well done from me and Keep well and strong 🙂

Tom "Onwards and upwards" 😎

Hi John

Well done on the three years and a Happy Birthday Stems :-D, as for coughs and colds well it might be same as i mine is coughs and bad chest 🙁 but hey ho bloods all good so far 😎

Am not sure how long the shelf life is John but am sure you aint gonna need them for many a year 😎 hope some one else can answer that one or E mail…[Read more]

Hi Dai,

We spoke to a doctor again today and they reduced the dose. Phil only needs one more injection now on Saturday and they will reduce that dose as well so hopefully it will not be a long term side effect. Very frustrating that the medicine you need to get better can cause other problems.

Thanks for sharing your experience. I hope…[Read more]

Hi Helen
gosh whooping cough is something you expect to get when a child it shows how vunerable we are even to childhood illness I had shingles and thought that if you had had chicken pox you couldnt get it how wrong was I its true whooping cough is on the increase I dont know why because I havent heard about it for years now hope you feel better…[Read more]

Hi Pat
Try Mcmillan they gave me a form and the Mcmillan nurse in the hospital signed it for me you doc will probably sign yours as he suggested it its a real help if if you are feeling unwell a lot of places charge in carparks but you usually get a space you can also park on yellow lines upto 3 hours good luck
Love Jo x

Well As I said on last post "if am wrong am sorry" BUT this Forum is for people with Cancer more importantly those that are suffering Myeloma and fogive me? but you have posted only two posts and I cant see any mention of a Migrain let alone a alone a terminal illness ?
You dont seem interested in helping/giving advice to those that might want…[Read more]

Dear Rachel,

I am so shocked and just want to wish you all my thoughts as you deal with the loss of Paul. I remember him first coming to this site…he was always so very positive and you must have been so proud of him.

I don't come on here often at the moment, but know that when I did, he was always there supporting people.

Thinking of…[Read more]

Hi Keith

glad you are feeling better at the moment bit of a nuisence out the bloods have you thought about a transfusion i have had a few they do make you feel a bit better dont think it will effect sugars or any thing it might buck you up for the next round of treatment stay well
love Jo x

Vicky

David is correct we all understand your feelings even though we are going through it, unlike your Poor Dad we here on the forum know what to expext to a certain degree :-/ and I also no big worry about leaving my young bride Elaine as I know she is a strong lady and we have some great friends and Family around us, But I aint going…[Read more]

Hi Keith

Your welcome and this reply is a bit later am afraid as I have been to work.

As for the bloods they are a strange thing and yes am sure its not all about bloods this MM as no one can get to grips with how some are doing great and others are always fighting it and its same Illness :-S as long as you feel OK and stay that way its…[Read more]

Hi Etta

Well Good Luck for you 100 day post SCT check, I was only on Zometa and nothing else after my SCT so cant add to your post on your new tabs but wish you good luck if you decide to take it on.

Love Tom "Onwards and Upwards" xxx

Hi Peter

And dont worry am sure my hair is longer darker and thicker than it looks on the photo ha ha it must be the Light angle he he.
And the Pint sounds good to me 😀

Hi Emma and Cathy

Will you Cathy be joining the forum? am sure it will do you good.
Hope your Mum is son out of Hospital and you yourself Emma soon better.

Tom…[Read more]