Hey if am wrong am sorry BUT I think this newbie should be banned. am sure they have mad a mistake and joined wrong goup he he

Tom "Onwards and Upwards" 😎

Hi Etta

Glad you have got through your 100 days post SCT so well. It must be difficult for you to contemplate going back on treatment again. I hope that what folk have contributed is helpful. Are you going to go ahead with it? Presunably you get to give your view.

Best wishes and love.

Mavis x

Hi Keith

So glad you are feeling well in yourself, in spite of the low blood results. This is what is important isn't it!

Keep well. Best wishes for next week's readings.

Mavis

Dear Rachel

I was devastated by the news of Paul's death and my heart goes out to you. I had missed it because I don't usually visit the under 50's!

I always felt Paul was a near fellow traveller as we spent 33yrs of our married life in Calderdale. We only moved to Bradford to get adapted housing. As others have said, Paul was always so…[Read more]

Hi Emma

Welcome from me! You have had so much good advice from the others that there is not more than I can add, but wanted to say hello. I can sympathise with where you are coming from. I am 67yrs, diagnosed two years ago, and have one daughter and two young grandsons. Kate worries so much about them not knowing me as they grow up. Me,…[Read more]

Hi Keith,

Phil did mention it but the Doctor was not too concerned, we will mention it again more forcefully when we go in on Wednesday as it is bearable as a temporaray side effect but Phil would not want it to continue long term! It is often hard to tell what is caused by the Myeloma and what is caused by the medication but we are sure this…[Read more]

Hi Emma,

I was in the same place as you earlier this year. My dad was diagnosed with mm after suffering severe back and hip pain for months. They thought he had slipped a disc but it was only after being on morphine and no improvement in the pain was he sent for an MRI scan. He had lytic lesions in his hip, rib and back and oven ever seen…[Read more]

Hi Mary and Charlie

Hows things? hope your both well, tell Charlie I have just had a week end away with the grandkids and its some thing I didn't think I would be able to do a few years ago 😀

What to do or not to do? well this is for both of you "Dont do too much" it will all save till later when Charlie is tired let him sleep and when…[Read more]

Hi Vicky

So Sorry to read about your Dad, 50 years is some time for your Mum and Dad and am sure they together have great memories which am sure loads of those are on Photo's ? I would use them to remember Dad in his Good Days prior to and during his treatment and try to push the bad times to the back.

I have heard people say to "Open new…[Read more]

Hi Keith

Well Thats Looking Good ? even if the Nurse want to give you more Blood?? am sure our Blood go up and down and its just luck that mine are taken on a good day Lol.

Am sure you will wake up with a Zest for Life and I hope am up with the same first Lol.

Argument Over 😎

Tom "Onwards and Upwards" x

Hi Emma and Mum (name :-))

Well like all the others am sorry you had to join us, and hey reading your first post you klnow more than I and thats over nearly four years down the line 😎

Your Mum sounds like a strong Lady and will get through it all with your help.

I was first started on CTD in Feb 2009 for 5 28 day cycles, then SCT in…[Read more]

Hi Peter
I never noticed about my hair till you said? then i had a wee look? and to be fair you are correct I seem to be going Bald ;-0 , Now I wonder why my Young Bride didn't tell me before ha ha, and am sure the dentist could have given you your three teath so you could have saved them in a tin for your old age 😀 in many a year to come…[Read more]

hello Dia

I am so glad you are back with us wow! you have been through the mill but I believe you are a surviver thinking off you:-)
Love Jo x

hi Vicki
glad you laughed at the legging or as my husband says "that is just not a good look" went to see Henrey Blofelt the cricket commentator the other night he had us rolling with laughter it certainly does you good
Love Jo x

Hello Pat
sorry you have not been well bit of a b+++gger glad you are feeling a bit better now co codamol are good but they may make you constipated so back on the syrup of figs!!!! if its not one end its the other I have know people to defer treatment to go on holiday so i bet its possible I dont think you are a wimp all these treatment are…[Read more]

Hello Jean
like the new photo of you and Frank how is he doing at the moment any news about his SCT is it soon will mail you soon
love Jo x

Hello Emma

what a terrible shock for you all I dont think anyone really gets over it we just learn to live with it the trearments now are so much better than even 10 years ago with new ones coming on every couple of years you will get some really good advice here and the myeloma help line is a god send they seem to be able to answer most…[Read more]

Thank you so much to everyone for your kind comments. It is warming to know that Paul was in touch with so many people and offered support to so many of you. That was Paul – always helpful and always on the look out for who needed rescuing. He was 'Our hero' to me and Chloe, the foster child we look after every few weeks.
With love to all of you.…[Read more]

Dear Emma

So sorry that you have had to join us but you are very welcome. My hubby has Mm and is just starting his 6 th cycle of CDT with the hope of going for a stem cell transplant. Emma it will take you some time to get your head around it but you are in the right place. This forum and the Myeloma Beacon (USA) are great sites for…[Read more]

Dear Rachel,

I am so sorry to hear this, and my heart goes out to you and the family. I remember many of Outdoors Paul's post on here and on the under-50s pages – we won't forget him.

Bella x