Dear Rachel

am sure you know how sorry and sad I am to read your Post about Paul, I was sure he was going to have a long remission and be fit and well for many a year.

I hope you can take comfort in that in the short time he was with us in the group he helped mamy a member with his strenth and determination.

Love and Hugs for you and…[Read more]

Hi Kerry

Hope your Mum is doing Ok. I was told Zometa only for two years and that is now complete so far Jaw intact and teeth still good (check out my smile Ha ha)

I do hope they can control the pain for your Mum.

Love Tom "Onwards and Upwards" xxx

Aww RIP John, and thanks for letting us Know Mavis.

Thoughts and Prayers to his Wife Su

Love Tom xxxx

Hi Everyone

Well am back and had a great time with Elaine(the young bride) and two Grandsons (Alex 9Years and Liam 7 Years, Lord knows i wasnt ready for a zimmer frame before I went to Thorpe Park" but I tell you I could use one today Ha ha.

Dai Am pleased to see your getting better 😀 am my you have been through the wars, The NHS is…[Read more]

Hi Kate

Glad to hear you are still battling on wothout needing any more treatment.
Good to hear from you again.

Love,

Mavis x

Dear Dai

I am so glad you have at last got through what has obviously been a most horendous episode in your battle. How is it that we can see the very best AND the very worst of the NHS! You wonder if the Policy Makers really appreciate what it is like on the ground. If only we had the collective emotional energy and clout to do something…[Read more]

Hi Pat

Take this trip to hospital as a big learning curve,it is such a worry to a carer when temp goes up and BP goes down,steroids mask infections,so are very hard to spot,I now go on Slims BP,when he had pneumonia his BP went right down had him in A&E,and even they failed to spot it,although I pointed out his BP which was 60 over 45,Pat next…[Read more]

Hi Anne
So sorry to hear your rotten news – I do understand how very distressed you must be feeling – especially in view of your young family.

I was diagnosed in 2005 and didn´t neet treatment for five years during which time they monitored me and helped with the anemia. I have had chemo and stem cell transplant during the last two years and…[Read more]

Hi Mike

Just wanted to welcome you to the site which none of us wanted to know about!!

All best wishes for the Trial. Glad you have so much faith in your Dr. it does help.

Look forward to hearing good progress.

Mavis

Hi Dai

Oh boy you have really been through the mill!! But I'm so glad to hear that you are on the mend. We all missed you here. Dai I think it might be my fault about Janet being in contact. Tom had told me what had happened to you and I made the assumption that he had been 'talking' to Janet. Sorry for any confusion.

It's really great to…[Read more]

Hi Dai
Well as you know we have all been worried about you,this forum just did not seem the same with out you,Tom in his wisdom managed to get info on you,clever block that he is,when someone goes missing who usually post,it becomes a puzzle why they have not posted,do they need a break!!! are they ill!!! or worst still pushing up the…[Read more]

Hi Mike and Girlfriend

Another welcome to this exclusive site,were everybody is a patient,carer or friend,and we try to help each other out as much as possible,were here for you when you want to rant or need support.We have all been there before you and some are still here now.

Everything is do able,you must learn as much as you can,we are 2…[Read more]

Hi Etta

Treatments Zolinza or Lenalidomide or no treatment randomised,Slim go t no treatment.They are testing the new drugs as a maintenance treatment. Zolinza has been doing well treating other cancers and it is a prohibiter,no results are available as a maintenance drug as this is first time,Lenalidomide has been in use for some time and…[Read more]

Dear David

I think you have cracked it,something for everyone,just watch your back when throwing those balls,have a lovely anniversary,love Eve

Dear Rachel

I am so sorry,Paul seemed to be doing so well,and if any one should have been able to get extra time,it should have been Paul,as he was one of the younger and fitter one,s on this forum,my thoughts are with you and his parents.

I lost my grandson with an infection all so unexpected,the shock and numbness,leaves you drained,I…[Read more]

Hi All

Yep our Dai is going through the mill of Late I got these to inform me how he is doing 🙂

::::::::::Hello Tom, Dai is quite poorly at the moment he has some sort of stomach bug, but he also had DVT in his other leg and it has travelled to his stomach, they are considering surgery but allowed him home yesterday. Good news is his…[Read more]

Rachael I am so sorry to hear of the sad news of the sudden passing of Paul. My deepest sympathy to you and your family. God bless
Jean x