BADGER replied to the topic Spoke too soon! in the forum Side-effects 13 years, 8 months ago
Good Afternoon Pat
Sorry you feel pants bet its the DEX it turned me into a monster I am generally cheerful but not while on DEX dexitude is the word for it hope you will feel better soon I bought a fetching new top today in mixed autumn colours was temped by these skinny leggings but my husband says i look like a barrel on legs:-P so went for…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 8 months ago
Hey Its Sat and I think the Ijection are starting??? Good Luck and Hope all goes well.
Thinking of you both
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Hi Eve
Yes it is hard work with the grandkids as you know we have six yep six but when they have gone home Elaine and I can fall asleep on the sofa and or nip off to bed 😉 and catch up on the sleep.
Love tom "onwards and upwards" xxxx
eve replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Hi David
Thank you,I have grand children out there,So it is a must,its never to late David.
How are things going with you???
Will not be long before you crocuses will be showing in the lawn,make sure you take a picture for us,what colour did you do in them. Eve
eve replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Hi Tom
Thanks for the info on Dai,new something was up.
Tom you are brave,its lovely to see grand kids,but they do tire you out,but were would we be with out them!!!.Your just braver than me.
You are doing so well,I can understand now how people feel about the 3 months,it is not until you walk out of the consultants room,that you suddenly…[Read more]
eve replied to the topic Spoke too soon! in the forum Side-effects 13 years, 8 months ago
Hi Pat
Nice to see your face,took me a while just to learn how to get a picture up,I agree with you,I am growing old disgracefully,we are lucky to have a good bunch of people on here,when my husband was going through a bad time,I could not have managed with out all the help and advice I received. Time has gone on from when I joined and faces have…[Read more]
tom replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Hi Eve and of Course Slim
Its not brave havin the Kids (we have one now) its good to see the Grandkids and they love granddad Pub Lol
Enjoy the oplace that your both in as it will get better (with a few hickups am afraid) but its great just got my tests comming up soon ? and am sure they will be spot on (unless this body is telling me…[Read more]
tom replied to the topic Stephen It was a real celebration in the forum End of Life and Grief 13 years, 8 months ago
Hi Gill
Well what a read and a well done you it sounds like it went well.
Your Post wasn't a waffle it was warm funny and it oozed the strenth that you have always had it made me smile it made me cry (yep Gill you made me cry)
I understand about being away for that "Regroup" and I hope it comes to you fast.
You have am sure heard all…[Read more]
tom replied to the topic Spoke too soon! in the forum Side-effects 13 years, 8 months ago
And a Good Morning to you also Pat 😀
Do you know thats the way I think of it when I was having treatment, treatment all finished now but I tell everyone that I have built a little shed on my left shoulder and shoved the pesky MM in that and shoved a lid on it 😀 and yes I talk to it:-S and yes I tap the top of the Lid :-/ but hey ho it…[Read more]
eve replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Hi Jo
If your on face book please become my friend,and I will enjoy a game of scrabble with you,i play with Jean.I would love more contact in general and play a game of scrabble.it is interesting to know about people outside the bubble.You will find me under my full name.I feel I already know you anyway.
Mike if I had to choose it has to be…[Read more]
docmike replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Dear Eve and Slim,
My son works as a physio in Whangarei,north island; so blood tests(november) willing, that s where we will be in late jan/early feb . We went to New Zealand back in 2010 when he was there before ,altho we did not go to Whangarei and did more in the South Island in our campervan.
mike
BADGER replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Dear Eve and Slim
thats wonderful news I agree never give up I feel there is always something round the corner Enjoy New Zealand and the grandchildren so there is light at the end of the tunnel long may it last dont forget to dip in and from time to time it will be nice to hear from you.
As for scrabble i play my 10 year old grandson he…[Read more]
eve replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Hi Mike
Yes mike it is like someone has switched on a light bulb,and you can see a way forward.8-)
I think at the moment we will settle for this time we have, and try not to look to far back or ahead,as both are not a nice place to be,I see the Myeloma Trials helping generations ahead,in a cure,for people who are here now I only see it buying…[Read more]
docmike replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Dear Eve
Very good news and much more positive than your last reply to me in july?
Never give up indeed ;to which I would add dare to beleive that a cure/or longer term control is getting nearer (based on my reading of the published research over the last 4 years ;more treatments available and more in the pipeline ;availablity and access may be…[Read more]
eve replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Hi Tom and the family of Lappins
Will be lovely when it is 3 months appointments,already been told if we want to go away for any length of time,it can be arranged around Zomita.
It is a good feeling,just to know we are in this position,we will just be doing everything a bit slower as Slims body has taken a battering,and is still on pain…[Read more]
tom replied to the topic What to take in the forum General 13 years, 8 months ago
Hey Tina Good Luck with it all and if I remember well Nightie is faster for lifting than jim jams are for lowering and I prefer the fastest way (not that I wear Nightie's though)
As Eve says During SCT its a throw away Culture you need to have, dont bother with Posh (bless)
Love Tom "Onwards and Upwards " xxx
tom replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Hey you two
Aint you BOTH done well you and your team have and are working wonders 😎
Great Post for the Newbie's and those that are having a rough ride, now all can see it CAN and WILL be sorted just takes longer for some ?
Onwards and Upwards now you two Great Post
Love and Hugs from Us Lappin's in Scunny "Onwards and upwards"…
eve replied to the topic Never Give Up. in the forum General 13 years, 8 months ago
Hi Mavis Megan Joanne and Jean
Yes it is all good,I realised how I felt right through Slims treatment and how many people helped me through the many months with all Slims problems,We seemed to live in the hospital at one stage,and it is so nice to have this extra time to enjoy.
Jean I think Slim would be the same about going,I think they…[Read more]
eve replied to the topic What to take in the forum General 13 years, 8 months ago
Hi Tina
Well I have to say Slim never found the energy to get dressed until near the end,and lots of clothes just got thrown away,you will not expect them to be taken home.
Take things in that are around you at home,like your favourite mug,I would also take anything,that you like to drink in,as this is so important,as food and drink do not…[Read more]
mhnevill replied to the topic 3 month check up in the forum General 13 years, 8 months ago
Hi David
Good to hear you have another "reprieve"!
I hope you are wrong about your next pp and that they don't rise at all!
Enjoy life and keep encouraging the rest of us as you do so well.
Love Mavis x