Dear Eve and Slim

It is great to get such encouraging news about Slim. It is grezt to think you will be in NZ for Christmas. Who would have thought it this time last year with all you have been through.

Enjoy your new life!!

Lots of love.

Mavis x

Dear Gill

I am so glad you and the family were able to give Stephen such a grand, and appropriate, send off. Just what he would have wanted.

Having been involved in many funerals in my former existence, I always say that the funeral is the last thing that we can do for our loved ones.

Thank you for sharing with us over such a long time…[Read more]

Hi Joanne
Sorry you Dad is having a rough time of it,at least they found out what it was,and he is on his way to improving,just forget about the Velcade for a few weeks,just work on getting your dad in better shape and in the frame of mind to start Velcade,because that will be the last thing he wants to do.

Slim had pneumonia and was 21 days…[Read more]

Dear Eve and Slim,

Thank you for posting your good news, you are right, for those of us at the start of the journey who have already experienced a few hiccups it is lovely to hear positive news. Enjoy your travels!

Megan

Hi Emma,

It is my husband Phil who has been diagnosed with MM but I have read him bits of your blog as so many of your experiences have been similar. I am 38 and Phil is 44, he is also on the PADIMAC trial, a bit ahead of you and Alex but a bit behind Helen. If you have any questions feel free to ask, Phil has already had five sessions of…[Read more]

Hi Eve

Yes going in Saturday to info day – needless to say Frank not going. Off to'hospital tomorrow, consultant wanted to,seem him (2 weeks since last visit) because of infection he had in bladder she though caused by chemo drug – so she gave him another one to take with the chemo to help. Had no infection but side affects not good. I was so…[Read more]

Hi Jean
Yes Scrabble still on,I have 5 games on the go at the moment,I was doing so well against you,then you snuck up on me. lol

How are things with you,,4,5,6.Cycle is hard,just keep an eye out on blood pressure if it goes down,there is something amiss,so easy to miss an infection with steroids.

Will not be long before remission and then…[Read more]

Dear Eve and Slim

So glad to hear your very good news. Enjoy all you trips!!! (Our scrabble is still on!!!!!!!)
Love Jean xx

Hi Gill

May I say you should be very proud of your self,because you not only gave Stephen a good send off,but you did it in style,

I have enjoyed reading your post,I did not cry but smiled and laughed,I can only say,it was like hearing you talking about Slim,even to Rod Stewart. If there is another life,you can bet he will be looking down on…[Read more]

Dear Mary,
Both heparin and warfarin prevent further clots forming ;the clots usually dissolve themselves ( thrombolytic therapy To dissolve clots is only given in special circumstances .)Did he have a ct scan to confirm the diagnosis ? The doctor in Southampton may have an opinion on warfarin in regards to his myeloma therapy . Heparin can be…[Read more]

Dear Gill

By no means was your post waffle. I read it a few time with tears on my face. I had followed your and Stephen 's journey for some time. I loved your trips to France and your wee dogs. Stephens farewell sounded so good, although sad, it was a celebration of his life and in a contradiction of terms -happy. I would love to have seen the…[Read more]

Hi Joanne

Sorry your Dad was poorly but am pleased he is getting better and in his own home (you cant beat it) its all about rest and recuperation now for you and your dad (yep I bet you forgot about your self??)

Hope Velcade is started soon, and please no need to apologize for not being on for some time as this site is for when you have…[Read more]

Thats great news David and a well done to you and your team 😀

I hope after your X Ray you get the byeeeeeeeee. from them and go out and enjoy the three months respite.

Am sure am due this month some time?? but hey ho am sure My Doc will be smiling 😀

And Gill am sure you dont sweat am sure if anything you would perspire Lol.
Week…[Read more]

Hi Mary and Charlie

Where do I get my positivity from?? well I get it from this forum yep this forum every one drops a bit of it when the post good news and I just go along and pick that little bit up and my Young Bride (Elaine) knits it all together for me and that way I have loads and if you look I have dropped a little bit for you all…[Read more]

Dear Mary/
The pulmonary embolism (PE) is a complication of therapy due it causing a deep venous thrombosis .It is a well recognised complication for which aspirin ,heparin injections or even warfarin can be given to prevent the above . So warfarin should not complicate further treatment altho it may require some adjustments of certain…[Read more]

Dad mentioned today that you have sent him an email. I'm not sure if hes managed to reply but i'll be at home the next couple of days so should be able to come back to you :-). Hes got a hospital appt tomorrow for a blood test and has had a bit of a bad day today with those damn steroids!!!

Thanks again Jean

Nicola xx

Hi Ann and Pete,

They have indicated to dad they that he may need another 2 months on CTD which hes really upset about. The steroids play havoc with him, really cross, upset, angry and depressed….he said he cant do anymore. We have an appointment with the consultant next week so we'll find out a bit more then. I think he needs to go with the…[Read more]

Hi Mary and Charlie

I am sorry to see you are both having a rough time, and I hope nay am sure they will soon have it all sorted, trouble with this darned MM not one treatment fits all, so once they find what Chrlie fits it will all fall into place.

Now as for the roof lark oh gi ower Charlie save your strenth and energy for fighting the MM…[Read more]

Hey Tina

Well Girl now is the time 😀 and am sure you will look great wig or no wig (I never used one lol)

Wishing you a fast and trouble free Transplant.

Dont forget Tina The mouth wash please use it every time you pass or go to the loo and even when you think you might want to go to the loo, the more often you use it it am sure the…[Read more]