Hi Mari

Poor Steve is having a rough ride. I hope things start to improve soon. It must be awful for you watching him go through this. Try and keep your spirits up. Will be thinking of you both
Love Jean x

hi sarah jane,
Welcome.
I have had smm for 4 years ,having been told I originally required treatment only to have a MRI which confirmed the absence of bone lesions . I have written extensively on smm on this forum as I also happen to be a (virtually retired) doctor.
I note terryls reply but his experience is based as in the usa and not all of…[Read more]

Your More than Welcome Sue, you are the one that knows what they need and i for one hope you find it.

Good Luck with the "Way Up" I hope its good for you, Keep us informed and we are here when you need to chat.

Love Tom xxx

How is the Coffin going David? I was looking at the photo's you posted the other nite.

Well done on the saving Money lark Ha ha, but am sure it will be years before its needed 🙂

Tom "Onwards and Upwards" x

Well I have seen your Photo's on "Face Book" and I think you are trying to rub it in Lol.

Have a great Time you two, and dont burn 😎

Tom xx

Hi Mari and Steve

Well I for one knows what your Steve is going through and am sure my young bride Elaine knows what you are going through, the struggle to eat was a worry to Elaine but for me I just didn't care if I ate or not 🙁 But in the end I have ate wayyy too much now am up and running and I know that Steve will be getting to that…[Read more]

Hi Ray

And a warm welcome to you, Just wanted to tell you ask Away no Q is too silly for us lot ha ha.

Good Luck with your Road to remission.

Tom "Onwards and Upwards" x

Hi all

Interested in discussion as I am waiting for an appointment to come to have two roots out in hospital as dentist can't do it because I am on Zometa. It has proved a real nuisance as I am having quite a bit of discomfort and have already been waiting five weeks to hear.

Best wishes.

Mavis

Hi Mari

Just want to send greetings to Steve. Glad he is well on his way even if it has been a very bumpy road.

Hope Steve's appetite returns soon.

Lots of love.

Mavis x

Hi Nettie

Thanks for this contact. I will try it and let folk know.

Love Mavis x

Hi Andy

we have just got back from Majorca I must say some sunshine and a few Sangria,s did me the world of good its funny how well we can get relaxed if we take the chance and have a holiday
Keep well and Hydrated enjoy the rest of your holiday8-)
Love Jo x

Hi Andy and Steph

Just what the doctor ordered. Hope you have a brilliant time – you both deserve it
Love Jean x

Hi Sarah and Henry
It is nice just to have that result from the BMB,so we know how you felt,here is were you start doing all the things that you keep putting off,have those holidays,and days out,and just enjoy your second chance.

Live your life,for all those people who are fighting this disease,enjoy it to the full.Love Eve and Slim.

Hi Sue

All the things you say in your post are so true but trust me Sue you will get through it and the counselling is a good way to start, I had a bit after my SCT didn't think I needed it didn't think I was weak to need it? DID I NEED it ?? too true I did, started to feel better before he stopped for coffee 😀 had a couple and if I felt the…[Read more]

David

this is wonderful news i had every thing crossed for you, you did have to bite very hard this time;-)
love Jo

Hi Gill

I am so sorry to read about your loss. I remember how much hope me and Mike gained when we first joined when we read about how well Stephen was doing.

I can only imagine how devastated you must be.

Love Lorna x x x

Your More than welcome try and stay strong Hugs for you xxxx

Morning Mari and Steve

Well lets hope its faster on the way back up for Steve, its a long wait (or seems it) waiting to get ill before you can get better :-S strange as it is, the sooner they work out how to make you better without making you Ill will be a blessing for everybody 😀

Thinking of you on the Road to remission.

Love Tom…[Read more]

Hi Min

This little one will be for my daughter,her thoughts are never far away,from Matty,she is strong,but at times finds she is over whelmed,It is usually when she does not expect it. Thanks again Eve

Hi Dai and David

Yes Dai you are right,I am impatient,it just seems to go on for ever.

David this maintenance treatment is part of the Myeloma X1 trials,after SCT you are randomised for revlimid or Zolinza,or not treatment,Slim got no treatment.

How are things going with you???? Love Eve