Hi Sarah Jane

I've dropped you a reply on the other page so give me a shout if you want to catch up

take care
Debs

Hi Tessa,

I would be happy to say…..my email is gascoynedeb@gmail.com

MUK have been my lifeline…and like you I am doing much to help them raise money as it is the only way I can truly thank them.

xx

Dear Sarah and Henry,

I haven't been on here for ages due to doing the Ball, but am so pleased to have read this update and to see that things are going well. You must both be feeling chuffed to bits!!

Make sure he continues to take things easy…it really does take up to a year to get back to things full on, but then…and I really mean it,…[Read more]

Hi Sarah Jane

Sorry to hear you have had to join us all, but I'm also glad you found us!

It sounds like you've had a similar story to mine…I was diagnosed at 35 with SMM with a pp of about 30 too. I slowly increased like you and eventually because of suspected bone pain in July 2010, I started treatment at the Royal Marsden.

Life will…[Read more]

Hi Jean,

Thanks for sharing this link, it is always nice to hear positive messages, especially from people researching MM.

Megan

Hi Keith
Good to hear you are feeling better after the large doses of Dex,Slim never had massive doses of Dex,in fact after the pneumonia,they reduced it to 20ml a day on a four day cycle on the trials,so weight loss on heavy steroids still seems iffy.

Slims in remission,and on trials is now receiving no treatment,would love to say he,s…[Read more]

and if this works I copied (am sure its Ok 😀 ) the why the "Way Up" was started.

[b]A brief History of Way Up

In the Spring of 2009, I asked the then Chairman of WAY, Caroline, if there was anything I could do as a WAY volunteer.
Being over 50 myself, it seemed a good idea that I look into doing something for the chronologically…[Read more]

Hi everyone I done the google for you as Min suggested and here is the Link http://www.way-up.co.uk/ just click the link or "Copy and Paste"

I hope it helps for those that need it.

Love Tom

Hi Mari and Steve

Soon be all over Mari,but take it easy that journey alone is a horrible one,I was so tired just going up and down all those steps at the station was awful.

Slim had a driver for meds,could not keep anything down,even now he will not touch stuff he was sick on,cold milk and ice cream seemed to help.I just stocked the fridge…[Read more]

Hi Joanne,

I am sorry to hear your Dad is not feeling well. My husband Phil is on Velcade with Dex and chemo (I can never remember the name of the chemo) and his only side effects have been tiredness sometimes and his hair is thinning, probably from the chemo. Everyone seems to have very different reactions to everything, my husband loves the…[Read more]

Morning Mari and Stephen

Well done on the SCT its now as you know a waiting game for Steve to get it all put together and start the healing part. Good Luck to you Both and dont forget mari you also need to rest 😀

Love Tom "Onwards and Upwards" xxx

Hi Joanne

Sorry to hear your dad is still not getting better, but am sure when they find one that Fits your Dad he will be doing good then its just trial and error for most of the time.
Cant help with the velcade But wanted to wish you and dad Well

Love Tom "Onwards and Upwards" xx

Hi Sarah Jane

It seems like we are pretty much at the same stage so would be lovely to keep in contact. I hope your MRI scan is clear and that you have a long time smouldering. I try not to get stressed and put it to the back of my mind as there is absolutely nothing I can about it! Easier said than done!

Take care
Andrea xx

Yes I agree! It is all very complicated but I think I know quite a lot now and know which scary websites to avoid!

Hi Tina

Well done on that Collection Girl 😀 am proud of you 😎

As for the RT I haven't had any but my young bride (Elaine) had 25 sessions of it due to breast cancer 🙁 and yep she was tired but it went well skin started to burn a little near the end of the treatment but they gave her cream to use. Elaine is doing great now and is…[Read more]

Hi Balders

A welcome to the site I hope your Mum is soon sorted, am sure some one will pop in and say a few things about the treatment and side effects your Mum is having.

Good Luck on your Mum's road to remission.

Tom "Onwards and Upwards" xx

Hi Sarah and Henry

Wished you well on "Twitter" and am gonna do same here 😎

Well done you two you are now "Onwards and Upwards" enoy the remission I am 😎

Long may your remission last 🙂

Love
Tom "Onwards and upwards" xxxx

Thank you for your reply, it is interesting to hear other peoples stories and puts some perspective on the situation. I try and keep busy, working full time with a 10 year old son helps. Occassionally I have moments when my mind drifts and I start worrying but I guess this is normal.
Thank you again
Sarah Jane